MONDAY"S RANT ~~2014

[selmaS]

Rainy days and Mondays always get me down"
          .....so lets rant all day Monday- each Monday a different topic!!
                     Idea's for rants...ur NS, ur NL, ur PCP, ur meds, family and friends...the list is endless......

                                                            ........ post ur rant and get it out of ur system and enjoy the rest of the week!!

[Brendaz20]

Is it better that I see a well known chiari specialist..for example, like one of the ones on the drs list on this site?

[selmaS]

  No worries....as for  instability....yes,  it can be  related  to  Chiari  in  that  Ehlers-Danlos is  a related  condition  and  usually  the  reason  for  instability  as  it  is  a connective  tissue disorder....with the  tissue that  are to hold our joints in  place fail,  our  muscles  try  to help causing all  over  joint  and  muscle  pain.....

  Do  look  into EDS  and  have  it  ruled  out.  EDS  can cause  Headaches,  and  many  of  the  same  symptoms as  Chiari....

[Brendaz20]

Thank you so much for your advice..I'm not gonna give up on finding answers..especially since my health is slowly deteriorating right before my eyes...and it is the most scariest thing. I'm glad I could come on here  for support. Thank you.

[Brendaz20]

Thank you for your response. I have not been diagnosed with chiari but I have so many similar symptoms to it. Is instability in the C1 and C2 related to chiari at all?

[selmaS]

Push  for  more testing and answers....that  is  the way  to  move  forward....Many  Chiari specialists  will offer  all  sorts  of tests in  hopes to rule out  the  related conditions and to help  them  know the best  way  to  proceed  should  surgery  be  an  option.

  Hang  in  there.

[Nellan12]

I have  been  diagnosed with cranial cervical instability and chiari.. I have had the Flex extension exray only because, I was getting a second opinion and this doctor said i needed to do it, then came to find out that those exray are not for diagnosing CCI.. I also did physical therapy for my neck wich did nothing!! My dizziness is much worse my vision is worse and now I at the point I no longer go out...but I do have a good NS who did diagnos me from the very beginning when he first saw my MRI saw make sure you find a good chiari specialist..I am going to have sugery next moth the decompression and the fusion of myC1&C2... I also did a lot of research and had several second and third opinions..before I made my decision.
Good luck and keep us posted