Finding a Doctor

[shaemika89]

I requested to be referred to UNC Chapel Hill, in regards to recieving treatment for my Chiari Malformation.I recieved a letter saying that they can not treat me due to resource constraints.I do not understand what that means.Could someone please help me out?Do you know what that means?

[meshell_32]

Thats true, I was in a car accident at work and I called the NS my NL referred me to, and they tell me its debated trauma makes chiari symptomatic, I know better I had NONE of these symptoms before accident!! Never even heard of chiari!! Therefore for treatment, no 1 and legal reasons no. 2, I am going to noone less than a chiari specialist!!

[selmaS]

  Hi...not all well known medical centers have a dr/NS that is a chiari specialist...they may have a dr that can do a chiari surgery, but u want a true chiari specialist to handle this for u.....

  Many of us do need to travel to get to a chiari dr, and I would rather travel and get the proper care, then go to a fancy  center and have  a dr that is not as experienced with this condition.

JMHO
"selma"

[shaemika89]

I am looking for a neurologist at John Hopkins Medical Center.I would prefer to go there.My doctor wants to send me to a neurologist first, to find out what they will say.

[selmaS]

  Hi and welcome to the chiari forum.

It means they do not treat chiari...plain and simple...put in crazy terms.....but, many medical  locations do not treat all medical conditions as they r not equipped with the proper staff or MRI machines....

  "selma"

[*Stormy*]

Hello and Welcome.

I'm not exactly sure what they mean either but my best guess is that they are saying that they don't have the resources to deal with a condition like Chiari. If that is the case, then they are doing you a favor in not being able to treat you because it is REALLY important to have a NS who specializes with Chiari. This can be a controversial condition and you will receive vastly different pieces of information depending on what Dr you talk to. You can save yourself a lot of trouble by going to a specialist right away. We have a link here to specialist that members have used and liked, I hope that there is one on it near to you. Please make sure you do a little research to find the one that is right for you.

http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483

I wish you all the luck in finding the right NS...never hesitate to get a 2nd or even 3rd opinion if you are not feeling comfortable with what they have to say.

Carolyn

[pamk5]

Hello and welcome!  I am assuming that you are in NC also.  I am not sure what that means unless they just dont have a doctor there who is comfortable with this illness.  I see Dr Rosner in Hendersonville.  He is pretty awesome and does specialize in Chiari.  

Good luck to you.