Chiari Malformation Community
MRI WITH CONTRAST
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

MRI WITH CONTRAST

Have my mri with contrast on 10th Nov, my question is if there is csf blockage or and overcrowding do your symptoms get worse intensify the more you do.

At the moment I can wake fine, and somedays not, then go about normal mum,housewife, stuff you no the type girls, washing,ironing,hoovering,walk the dog,grocery shopping,prepare meals etc etc etc and then progressivly feel worse,
is it the more you do the more the blockage of csf effects become apparent.

The reason I ask is because if this is true then for my mri on 10th I want to go crazy do all things that usually  make me feel worse in order for a more accurate result!!!

I no this is a crazy way to do things but im desperate now for hospital to take me seriously, dont want to go in for mri having rested all day and this give false result!!! is this possible and does what you do make a difference to the flow, or is it that if it blocked it blocked and your symptoms regardless of how rested or hectic yr day has been will be the same.

Hey guys im not a crazy lady just want to be heard in the medical world and for them to hear me and believe me.

Any advice as usual would be lovely, hey no I will suffer for days after if what I am asking is true but am prepared for this to get answers im so desperatly searching for!!!

Hugs
Niki x x x
Related Discussions
5 Comments Post a Comment
Blank
1422823_tn?1287682880
I know that like you, if I do too much I feel horrible. If I do too much one day, usually the next day I am feeling the after effects of it. I don't think what you are doing is crazy. Sometimes I feel like we have to go to the extreme to get help!
Blank
620923_tn?1402936350
HI...not sure if it is the CSF blockage causing u to feel worse as the day goes or by what u do, but I was like that for yrs....still am pretty much....

I would imagine that the more of a blockage u have, it will give u this effect.

I also am aware how chiari cycles and I feel IMHO, that the tonsils may shift, either from the way we slept which side etc...and may affect how or when they block CSF....but the longer we r upright gravity kicks in and pulls them....

Hang in there u r soooooooo close now : )

"selma"
Blank
1375148_tn?1323170521
Hope all goes well nikki, I'm taking a break from it all at the moment, feel totally let down by the medical world, not even a cine MRI/pain management or acknowledgement that's there's anything wrong with me at all so what ever u have to do I say do it! Xx
Blank
1179332_tn?1297482590
Niki..your not crazy, I know exactly how you feel!! It used to go shopping or something that was on my feet before Dr's appts...after all it's no good if they don't see how just doing simple things like shopping and housework affect you!! However, I'm not sure if that will really help the results of the MRI or not...so don't wear yourself out!!

Carolyn
Blank
1372734_tn?1309953837
Thanks again as usual ladies,

It was just my crazy idea but thought there may have been connection and if so it was going to be one crazy mornin b4 afternoon mri, Just me thinking the more active you are and blood pumping around yr body and whatever else makes our bodies
work or not in our cases may have affected the cererbral flow.

Its just such a shame we even have to have these crazy thoughts to get answes.

Hugs
niki x x x
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
979826_tn?1389039958
Blank
soccero I wish this pain would stop... Comment
1 hr ago
Avatar_n_tn
Blank
lilbit1166 commented on Pain Control via Mind...
Jul 23
Avatar_f_tn
Blank
22amber44 joined this community
Welcome them!
Jul 23
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH