Aa
Pain when bending over please help
Does anyone else have this? I have 4 children who I am constantly picking up after and when I bend over to pick up toys clothes etc I get a horrible pain in my head best way to describe it is a horrible migraine and a brain freeze together if I take deep breaths it will shortly go away but also when I bend over my back gets stuck where I can't move... Does anyone know why this happens?...
COMMUNITY LEADER
Aww....not sure why that happens there....and that is how I feel about it too...
Congratulations on having a surgery date....wishing you all the best....if you want a prayer thread, post your date in the list your surgery date thread......
here is the link- http://www.medhelp.org/posts/Chiari-Malformation/List-your-surgery-date-2015/show/2424998
Lol I just saw Ur msg today but funny u say that cause I actually saw that myself last week. It seems like it's more of a club than support group they scrutinize and pick on people I'm not for that so I deleted myself. I actually wanted to let u know I'm having decompression surgery aug 4th I'm really nervous
COMMUNITY LEADER
Hi yes I am on FB but prefer the group here as many on FB tend to argue and fight with each other,,,,,we are all in pain and frustrated and do not need that drama......just know we are here for you should you find that drama there.
We are all drawn to what is right for us.....
Thank u for your response... I am going through the exact same thing he tells me I'm anti social but I just feel so weak and the headaches are horrible. We got into an argument the other day and he said I needed to quit playing a victim which really hurt he later apologized but now i feel like I can't go to him and that's the main reason I looked for this to get clarity and support. He's a good person we've been together for going on 15 yrs in August but he can be *** sometimes
I just wanted to let you know that like your husband I was very insensitive to my husbands complaints 18 yrs ago when he had his initial diagnosis of Chiari. He had his decompression 1 month after we got married. I felt like he was a hypochondriac, constantly complained of pain which was in a different spot every day & many times thought that he needed "to catch a grip" because he looked fine to me!!!!! We have actually fought about him complaining of pain so much & not wanting to do fun things (btw he was a body builder & exercised all of the time). We are from south Louisiana & my husband is about as manly is it gets (hunter, fisher, golfer, handyman ect....). WELL I am here to tell you & your husband that I regret the way I felt & have to apologize to him everyday. You see I was diagnosed with Chiari in Feb of this year (I woke up with hearing loss in my right ear & was dizzy for 7 weeks straight)!!! I had headaches all of my life so I just dealt with them & didn't realize it was Chiari headaches. I have had the decompression surgery & had to go back to surgery for a CSF leak within 9 weeks of the 1st surgery.
I am also a registered nurse that had a complete hysterectomy 2 years ago & never took pain medicine (not even while in the hospital).........I am saying this so you can understand that I can tolerate pain fairly well. I was a healthy person that took 0 meds prior to this. I never missed work unless running a high fever (its going on 6 months that I haven't worked). I do feel much better since my surgeries, but still have moments of pain on & off. I just try to avoid the activities that make my symptoms worse. I am hoping to go back to work in the next month because I am not someone that likes being home constantly!!!! I encourage you to do as Selma said & have your husband read this stuff. Its very hard to understand someone's pain & misery when they physically look good!!!! Btw it makes it very hard on a marriage so make sure you have good communication!!! Wishing you & your husband the best!!!
I am also a registered nurse that had a complete hysterectomy 2 years ago & never took pain medicine (not even while in the hospital).........I am saying this so you can understand that I can tolerate pain fairly well. I was a healthy person that took 0 meds prior to this. I never missed work unless running a high fever (its going on 6 months that I haven't worked). I do feel much better since my surgeries, but still have moments of pain on & off. I just try to avoid the activities that make my symptoms worse. I am hoping to go back to work in the next month because I am not someone that likes being home constantly!!!! I encourage you to do as Selma said & have your husband read this stuff. Its very hard to understand someone's pain & misery when they physically look good!!!! Btw it makes it very hard on a marriage so make sure you have good communication!!! Wishing you & your husband the best!!!
Thank u... I'm gonna try to get him to read it tonight... Are u on FB? I found a chiari group there as well
COMMUNITY LEADER
No worries....many post a lot of different threads and it can be hard to find all the answers...so keeping them in one thread should not only help you, but those offering help as we can re read what else was posted.....
Have your hubby read thru this forum....he may see that you are not alone in how you feel...it is hard to find a Dr that is aware and believes that Chiari can and does affect us....so to expect family and friends to when they never heard of it can be difficult as well....share as much info as you can....and this forum just may help him understand that you are not alone in how you feel.
Thank u not too savy with this never used a community discussion point taken ☺️ I really appreciate all Ur help. I tell my husband about this but he doesn't take me serious and I hate complaining about my pain to him. I feel like he doesn't understand.
COMMUNITY LEADER
Activities to avoid with Chiari and Syringomyelia
The subject no one wants to hear about, but chiari and syringomyelia are life-altering conditions and you WILL have to face that and change some major things in your life. You will find people with these conditions who continue to do some of these things, but they do so with the knowledge that it can severely alter their current condition for the worse. The following are just some of those No-No’s:
NO neck stressing activities, such as roller-coasters, 4-wheelers, skateboards, horseback riding, motorcycles, wave pools, backpacking, falling asleep in chairs, extended reading with head bent ect.. Anything that “jars” your head and/or spine is a definite no-no.
NO neck stressing sports, such as water skiing, snow skiing, snow boarding, sky diving, bungee jumping, diving, playing tennis, basketball, soccer, football ect (Just trying to cover all the basics – you get the idea.)
NO contact sports.
NO Chiropractor!- Especially at the neck for chiarians and for those with a syrinx, no deep tissue in the area of ur syrinx.(The chiro should be well versed on Both CM/SM)
NO straining which includes straining to reach something, or even straining during a bowel movement. Take a fiber supplement every day if you tend to get blocked up.
NO moving furniture or heavy objects around by pushing, pulling, lifting, or any other way. Pick up nothing heavier than a gallon of milk. I know – that sounds impossible, but keep that gallon of milk in the back of your mind.
NO moving around in the dark!
NO putting yourself into stressful situations or relationships. Try to relax, avoid noise and keep your neck muscles relaxed.
NO twisting your spine – try to keep a good posture with your spine lined up and straight.
NO bending over. lower yourself to the floor by bending your knees – not your back.
NO sudden spinal/neck movements.
NO using the hair wash sink at the hair salon.Instead ask for the special try that most hair salons have that are designed to accommodate people who are unable to bend their head/necks backward.
NO Lifting more than 15 lbs when strength training or backpacking.Heavy lifting is generally not recommended especially if you have a syrinx.
AVOID sleeping in a head down position.
Avoid cervical traction.
Avoid lumbar punctures, spinal taps or epidurals, unless it is a well informed chiari dr....if a LP is drawn too quick it can cause the tonsils to herniate even further.Done incorrectly, this can be very dangerous for a chiarian.
AVOID doing any kind of activity that causes you to bend your head backwards, such as: bending back to gargle, washing hair in the shower ect.
AVOID food with too much salt.Especially for woman during their premenstrual period.
DON'T participate in any physical activity that puts you in jeopardy of falling and or creating trauma of any kind.
DON’T try to keep commitments when you’re feeling badly. Listen to your body.
COMMUNITY LEADER
Hi to help keep all your info in one place.....use one thread....it will help you and those that answer....
Bending is one thing you will not want to do as it will cause not only pain and pressure....but could cause dizziness and possibly black outs.
Lifting or any strain will cause symptoms to flare.....We do have a list of activities to avoid....
Have an Answer?
You are reading content posted in the Chiari Malformation Community
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
