Muscle Pain

[gmaldonado]

Well I don't know if its just muscle pain but I've noticed that when i touch my arm and press a little bit it hurts A LOT. When anyone gives me a back massage I have to ask them to stop after a few secons because it hurts A LOT and after they stop i can still feel their fingers pressing down and its so painful. Wondering if anyoen experiences the same thing.

[gmaldonado]

my friend gave me a massage today in my upper back omg i wanted to cry. i can only imagine what the chiropractor is going to do to me! im still in pain and that was 6hrs ago. I know that of course they'll know what to do but like cmoeller i'm nervous too.

[*Stormy*]

The chiropractor has crossed my mind...but I admit I'm nervous. Here is Canada I am lucky to have a DOCTOR that is knowledgeable in Chiari..much less anyone else. I am going to see a physiatrist (pain management) in a few weeks so I am hoping that he can give me some direction.
Lyrica hasn't helped much for me BUT I think it may be b/c I am on a low dose..I am supposed to be taking twice as much but I just can't tolerate it in the daytime. I am seeing my GP tomorrow and am going to ask her what my options are...at this rate I was actually doing better with the Gabapentin.

Carolyn

[Lovemygirls2]

I have the pain you referred to.  My daughters often want to sit on my lap and I can't let them because it hurts simply when they touch me.  I have been diagnosed with lupus along with the Chiari.  Sometimes I have a hard time knowing what symptom goes with what condition.  One thing about lupus- it is very hard to get a diagnosis so I wish you luck.  I am on Plaquenil now (for the lupus) and it helps alot with my pain!

[thankful2bhere]

I know lots of people tell you not to see a chiropractor if you've had chiari decompression surgery, but I talked to mine about it and made sure he understood it. He read up more about it since he, as most dr.s, didn't know much about chiari and now after speaking with other docs etc. understands what he can and cannot do. I have horrible nerve and muscle pain 24 hrs day caused by many different health issues. After a visit to my chiropractor I always feel some relief for a little while and it is well worth the 30 minutes and $20 copay, plus I know I am doing something good and healthy and NATURAL for my body that will help me when I'm older and maybe I won't shrink 4 inches like my poor little mother did.
I hope you can find something to offer you some relief. I know how hard it is. Lyrica has helped me, but it does have some pretty bad side effects. :(
D from AR

[gmaldonado]

very frustrating! and you're right we need to keep pushing. They do tend to medicate you instead of looking in deeper. If there is something wrong with your spine you can bet that the rest of your body will feel the effects! thanks, i pray that you get your answers too =-)


-Gina

[*Stormy*]

Yes, it's completely frustrating...b/c all the meds I have been given I react adversely too. I would rather be in constant pain than be so out of it that I can't take care of my kids. I took Lyrica in the day for 3 days...and I was so dizzy, nauseated and I couldn't think straight..I couldn't stand it. So I have to make a dr appt today and see if there are any alternatives.

I think the big thing for us is to keep pushing the "why"? Dr's tend to want to medicate  you and not get to the bottom of what is causing it in the first place. I am very convinced that it has something to do with issue on my spine so it is just a matter of finding the right dr to dx it.

I pray that you get the answers that you need soon :)
Carolyn

[gmaldonado]

i thought that that would be a diagnosis. It is very hard to take meds when you have children. I have 2 of my own so i know its tough. hopefully we can find some good help soon. It is a slow process but we've got to keep the faith and be patient.

[*Stormy*]

I went to a Rheumy  and I think she thought it was Fibromyalgia. She didn't actually say the word but she recommended to my GP that I try Lyrica. I am doing that now but I find that it is barely working...somewhat due to the fact that it needs to be taken during the day as well as night..which I can't do b/c I am unable to function properly. Not a good thing when you have 3 kids to care for.

I am hoping we don't have to live with it...I am still hoping there will be some kind of solution but it is a slow process.

Carolyn

[gmaldonado]

I have pain like that almost everywhere too and It does hurt minutes after theres no pressure in that spot. So is it something a rheumy would treat?? or do we just have to live with it?? I dont think there are any muscles my DH can massage I seem to hurt everywhere!

[*Stormy*]

I get exactly the same thing..

When the rheumy was doing the tenderpoint test for FM..I told her that it hurt more after she stopped applying the pressure than right at the time.

I do think it's a muscular thing b/c the muscles of mine that are the most affected are the ones that hurt the most. So for me that's the inside and outside muscles of my thighs and the backs of my arms. But everywhere hurts like that...and sometimes the pain can last for several minutes after someone touches me.

When I told my PT..she told me this makes sense b/c those muscles are straining to do their jobs but they are not receiving the correct nervous impulses. So it's like having muscle strain 24/7..not very nice.

I taught my DH what muscles to massage and what ones to be careful with:)

Carolyn

[selmaS]

No worries....I am always testing on the low positive side for lupus as well and was in fact what they were testing for again when that finally found my chiari.

Have a great weekend : )

"selma"

[gmaldonado]

My mom has something in the family of Lupus. So i def going to check w/rehumatoid dr. and look into EDS.  Thanks so much Selma. I'm going to run and get my kiddos from daycare yay! i'm out of work THANK GOD! have a good weekend. I might log on this wknd if i get the chance.

[selmaS]

That could be a diff type of EDS when the veins r involved like that...deff look into it...u may want to try a rheumatoid dr to see what they feel...

sorry ur PCP is not helpful.

Most people have low vit D...we spend more time indoors and slather sunscreen on to block the rays we need...my dr said to get 15 mins of sun a day...without burn.
http://en.wikipedia.org/wiki/Ehlers-Danlos_syndrome
Check this out.

"selma"

[gmaldonado]

I mentioned it to my PCP and he didnt really seem to care since he's convinced its all in my head...WHICH IT IS! I'm going to start looking for a new doc and a new NL. I don't bruise easily but i do have tons of spider veins and I noticed that my veins are very visible. I have a bright green line across my chest and the veins in my arms are very very noticable. I dont know about my B12 but they told me my Vit D is extremely low... explains why i'm so pale. They want to give me 5000 IU's.

[selmaS]

Hi...yes....there r several diff things this could be...since it seems it is the pressure of the touch and not just certain areas...it could be something like Ehlers-Danlos....

U could also have low levels of vit B12....so u should talk to ur PCP about this to get to the bottom of it.

I also get bruises where the person touches me....not sure if u get that too, but it is one indication of EDS, but like chiari u do not have to have all the symptoms to have this condition.

"selma"