Aa
worried the surgery didnt work
hi i am 17 years old and im new to the chiari community. i had a decompression on june 8th,2010 and i felt great for a while. now i have mild headaches,my hands and feet are always cold, i have had vertigo a few times, i feel like my hands shake more than usual, sometimes my words get mixed up, my body is always warm and i sweat more, and i have had a ringing noise in my ear. i dont want to tell my parents yet because they will get upset. does this mean the surgery didnt work? or is it normal to be experiencing these things after the decompression?
COMMUNITY LEADER
I would let her know how draining it is...see what u think u can do and if need be cut back ans slowly add more time as u go...so u can build up to it.
It does take 2 yrs to fully heal from this surgery....and u deff have to listen to ur body....other wise u may begin to feel worse instead of better.
"selma"
It does take 2 yrs to fully heal from this surgery....and u deff have to listen to ur body....other wise u may begin to feel worse instead of better.
"selma"
Yea i really loved him!
Do you think i should tell my mom that school is too much for me? or should i just tough it out? i really thought that by 2 months i would be back to normal and ready for school
Do you think i should tell my mom that school is too much for me? or should i just tough it out? i really thought that by 2 months i would be back to normal and ready for school
COMMUNITY LEADER
Yeah steps r tough...in fact, I can in the last few months carry a few towels going up stairs, but not too much else, but with out carrying something I can do the steps and feel ok at the top : )
No Dr Bolognese was not my NS, but was in the OR...he did the doplar mapping for mine...I had Dr Insinga. Both of them r great!!
No Dr Bolognese was not my NS, but was in the OR...he did the doplar mapping for mine...I had Dr Insinga. Both of them r great!!
Going up and down stairs takes a lot out of me and i have a hard time concentrating because i am in pain. i havent brought my books in with me because my doctor said i can only lift 10 pounds. i feel like its way too much for me but its my senior year and i cant really afford to not go. i saw you went to the chiari institute in new york! i got my surgery done there by dr.bolognese. was he your surgeon??
COMMUNITY LEADER
I still get exhausted and am past my 1 yr post op annv.....I am much older than u, and I do have a few other issues going on....but, I do believe we have to listen to our bodies.....
It is possible that u r doing too much...a full day at school at 2 months post op...I am not sure I could do it...scratch that I know I could not have.....carrying books...nope...going up stairs...nope.....
Just the concentration on subjects...reading has been diff for me...it is finally getting better, but not at 2 months....
I also have a problem still with loud noise...so everyone passing classes would get to me for sure....and florescent lights also bother me...so, I am not sure how u did it.....
Do u have someone to carry ur books?....I know there r drs out there that say u can do this or that by this time frame, but they do not take into consideration how the person is feeling and doing...a time line is a gauge, but can not be the same for everyone.
"selma"
It is possible that u r doing too much...a full day at school at 2 months post op...I am not sure I could do it...scratch that I know I could not have.....carrying books...nope...going up stairs...nope.....
Just the concentration on subjects...reading has been diff for me...it is finally getting better, but not at 2 months....
I also have a problem still with loud noise...so everyone passing classes would get to me for sure....and florescent lights also bother me...so, I am not sure how u did it.....
Do u have someone to carry ur books?....I know there r drs out there that say u can do this or that by this time frame, but they do not take into consideration how the person is feeling and doing...a time line is a gauge, but can not be the same for everyone.
"selma"
i just started back up with school today and im so exhausted. i think that i am doing too much because it really hit me when i got home. i dont want to complain but im just not feeling well. how was it for you? did you get exhausted easily after 2 months? i thought that i would be okay for school but i dont know now.
COMMUNITY LEADER
No worries...unless it continues to get worse, u should be ok.....some discomfort is part of it unfortunately.....
"selma"
"selma"
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U r only 2 months post op!..wow...give urself some time...mild HA's r not uncommon as r a return of some symptoms especially at this point in recovery....I was told to expect this as u heal.
It is also possible the sweating could be a thyroid issue...many chiarians do have an autoimmune thyroid condition called Hashimoto's....do ask ur dr about this possibility.
It could explain the ringing in ur ears as well.
The shaking u r experiencing could be tremors again a healing process issue unless it gets worse with time....
There r related conditions to chiari that u should have been tested for, but Ehlers-Danlos can explain the cold hands and feet...so again ask ur dr about this too.
It is possible to have a return of some symptoms...surgery i snot a cure, but a means to slow progression and avoid a syrinx from forming and possibly causing perm nerve damage.
We r happy to have u join our little family here, but not happy about the circumstances that bring u here.
"selma"
"selma"