Things are getting worse.

[rmlyonsfamily]

DHs surgery is scheduled for August 1st currently.  Since his diagnosis of CM1 with Syrinx from T2-T10 about 6 weeks ago, things have continued to get worse.  His headaches are debilitating now (didn't realize they could get worse...  but they did), the tingling in his hands is now numbness, he has tingling starting in his feet intermittently, he is having tremors in his hands on and off now, he isn't sleeping despite being put on Valium, and most notably - his confusion is starting to be more frequent and he's had a few episodes of almost what I would call rage.  Last night he absolutely could not sleep.  He finally came to bed at 5am after I told him he had to try....   but he still didn't fall alseep until well after 6am.  

I talked to his NS this morning to see about moving the date up (DH chose August 1) and told him what's been going on.  He said before he'd move the surgery he wanted new pictures to see what was causing the symptoms to rapidly progress.  So - he's going in Monday for another MRI series - Brain, CINE, and he's also doing a Brain and Craniocervical Series with contrast this time.  Not real sure what he's looking for outside of the chiari and syrinx itself....  but it's got me worried because he seemed quite concerned, especially about the confusion and moodswings/rage episodes.  

It's got me scared.  Anyone else progress this rapidly??    What else could be going on?

[selmaS]

  Hi, I do recall one member a few yrs back that did have rapid growth of the syrinx...and the symptoms increased rapidly as well.....

Many Drs do not think this is possible, but it does happen...I will see if I can find the thread where we talked about this.....I think she was in TN....I will check and post the link when I find it.

Keep in mind ...stress can trigger the symptoms to increase as well, and with setting s surgery date, I am sure he is feeling stressed.

[Viva001]

I think I declined rapidly--for me.  Not the pain, but the dysautonomia.  I didn't do anything differently at all.

After the test results were explained to me, and even though surgery was my decision, my NS said that sometimes people wait too long after they get a Dx,, & then it's an emergency.
I hope that's not the case w/your DH.