just wanted to say thank you

[Emme80]

This is not a question...just a statement. I know I've shared and asked a sheer handful of questions that can't really be answered. You all have been so very kind, truly kind and caring. But, I'm going to be disconnecting as things are just sooo bad and are going nowhere that I don't want to continue to complain, be a bummer or perpetuate the agony that I'm feeling. The confusion that will obviously not end.
I'm sure one day things will start to look up, that eventually I won't have this painful brick that's being too heavy to carry.
At this point, I've been given the runaround between My Neorosurgeon, who said to go to ER who said my NS said to call him if I had problem to which i did(again) and he referred me to ER again or contact my Rhematologist, who said to contact my Neurosurgeon. So.....I officially give up. I'm done. Even with my Neurosurgeon-I've cancelled my future appt(s) with him. I feel jerked around like an idiot. Loads of Tylenol will hopefully be good to me and I will put a heating pad on my head and try not to cry while this chapter slowly passes.
I just TRULY WANT TO THANK EVERYONE! You've been beyond kind and helpful. I know someday, this will be behind me. Remember: to anyone who reads this not knowing about my history:this is NOT everyone's story. You'll do great.
Best wishes to you all!!! And again, thank you so much for your kindness & seeing me through the a rough road.
Many many thanks!

[HeathasaurusRex]

Check out this link :)

https://www.powerofpositivity.com/why-crying-a-lot-means-youre-mentally-tough/

[selmaS]

  This forum is here to help those thru rough patches no matter how tough it may seem there is always light at the end of the tunnel....keep posting and using the members here for support as we ALL know what you are going thru no matter how our journey with Chiari unfolds or unfolded....we are here and want to help.

[lasel22]

I do hope you start to feel better.  And please continue to use the forum if you need support, it sounds like you still do.  We all go through times like this and this is why the forum is here, to try and help through experience.  I have definitely met many more doctors that I dislike than like that give you the runaround and push you on to the next doctor.  But then, you meet a doctor that truly cares and does help and if you stop looking you wouldn't find the help you need.  I hope your neck heals and if not please seek help with another neurosurgeon.

I wish you all the best and don't give up!  Never give up.  You know your body and if something isn't right try to find the right doctor that will help you.

[KerriC1]

Selma is such a selfless and caring person. She's helped me in ways that I don't think she is even aware of. I owe a lot to her also. She's the rock of this community!

I saw a sticker that says chiari makes the weakest person strong and the strongest person weak....
You're stronger than you think! I try hard not to dwell on my issues but lately I've caved and felt beaten also. We're all here for the same purpose! Just take a deep breath and  tomorrow is hopefully gonna be a better day

[Emme80]

Thank you very much KerriC1. I know, but, I have reached an end. As of today, I give up. Done.
I did forget though&other reason I jumped back on- is to tell Selma just how grateful I am for the support and info. she gave me. You're so kind and invaluable to this community. I do appreciate to the fullest, what a sweet giving person you were to me.. I just wanted to tell you you're amazing and thank you.
To that...I wish you all great hope, positive outcomes and I will gracefully bid adieu!  <3

[KerriC1]

Well just so you know, everyone here has complained a time or two! It may not have been in this forum but believe me, complaining is normal. The condition alone is frightening and then when we venture into the unknown of surgery, it becomes even scarier. The fear of what's normal, what's not takes its toll and you begin to feel like maybe you're just bothering people and your Drs. I had a csf leak after surgery, but didn't have the bulge. Now I have a large indentation and soft spot and my ns is giving me the run around over. Having me take pictures and email and then when it's not visible, saying its fine and move on.. After he told me that the only thing that would cause that would be if the muscle that he cut and sewed back together had ripped. Now I'm confused and unsure. So we have a few things in common. You have a big outward bulge and I have a big inward dent.... So confusing! Just know you're not alone and I hope it gets better for you!