I Have IPF Lung

[gennie777]

I was told in January of this 2007 I have A Terminal Lung Diease called IPF witch causes the lungs to harden and make it almost inpossable to lead a normal life. I am on 5 leaders of oxygen at rest and I half to turn it up as far as it will go, 10 leaders" to walk to go to the bathroom or go to bed and taking a shower well thats a all day job and it's getting harder and harder to even try, because my sats fall into the low 60's and sometime in the 50's on 10 leaders of o2, the other say I was just setting in my recliner and my hands and fingernails turned real blue, So I checked my 02 or sat's and they were fine they were in the mid 90's. Anyone out there that can give some information on this it will greatly appreaced : Because I thought that the blueness in the hand and fingernails were from low sat's or not enough oxygen getting into the blood.

Thanks for any input on this!
Roger"

[National Jewish Health]

Blueness of the hands, lips or fingernails is most often a sign of low oxygen levels.  Sometimes it is a sign of temporarily decreased blood flow to the hands and this may or may not be associated with your hands being still for a long period of time.  In either event, if your oxygen level is 90% or better, you may be able to bring your hand color back to normal by simply raising your arms and opening and closing your hand.  This is not something to be concerned about.

Please read our idiopathic pulmonary fibrosis (IPF) information at http://www.nationaljewish.org/disease-info/diseases/rheum/ild/index.aspx to learn more.  Have you inquired of your doctors, if you might be a candidate for a lung transplant?

[kaybritches]

Yes, agree with Roger. Go to Huff-n-Puff. Very good website for information and support. My mother was diagnosed in August 2004 with IPF. I wish you the very best. My 47 yr old brother and myself now have been diagnosed with Chronic Obstructive Pulmonary Disease. I am 50. But I have been on the Huff-n-Puff website. It is very good. I now have joined COPD International for my lung disease. These websites do offer great support and are informative. You take care of yourself.

[Between]

Hi, While you wait for the Dr. to answer you. There is a website that has a lot of great people with the same diagnosis as yours. If you have not visited it this is it:
http://huff-n-puff.net/
If you go to the online forum button there are a lot of boards to visit.
Please visit it.