pulmonary fiberois

[daddyslilgirl]

Well since the last time i wrote my daddy has been through an awful lot. He was brought back to the hospital with double pnemion and was getting no better they did a lung biopsy through his nasal passage and then the waiting game began. He was sent to a rehabilation center only to be brought back to the hospital in 2 days this time they admitted him into ICU. That was 2 wks ago. From the biospy the determined my daddy had pulmanary fiberois but that wasn't the end his biospy was then sent to Mass General that determined my daddy also had Histoplasois a fungus that is inhaled into the lungs. Very odd seeing we do not live in the region this is found my daddy lives in Massachuttes and this fungus is in the Mississippi Ohio area. He was put on anti-fungus medication which didn't seem to give much improvement. He is in very critical condition So when we decided to go ahead with a bigger lung biospy so they could determine the kind of fiberois he had it was so so scary.He has successfully made it through the biospsy but was know put on a ventalater and the doctor told us he would not put him on if he couldn't get him off but he is still on it day 2 My question is how hard will it be to get him off? The doctor did explain when people with fiberois go on ventalator they usually pass on the machine. The 5 different types of fiberois are scary is it true 2 are fatal and 3 are treatable or curable?

[lynnkay]

i am so very sorry to read these posts. i very much understand what you all are going through. pulmonary fibrosis is a terrible lung disease. they did lung biopsy on my mother, to determine what caused her IPF. they could not determine what caused it. i am saddened to say, my mother passed away august 2007. she died 4 months after a lung transplant. the hospital that did the transplant made so many mistakes. also, they just waited too long to perform the transplant. she had IPF for approximately 6 yrs. she got to go home for 2 days only. she spent 4 months in the hospital after the transplant. this hospital brutalized her. i helped care for my dear little momma. my heart breaks for what you and your ill loved ones are going through. since my mother's death, i have been diagnosed with lung disease, also. Chronic Obstructive Pulmonary Disease. The thing is my only sibling, has been diagnosed with it as well. I watched momma suffer for each breath. At times I am experiencing the same thing. People take each breath for granted. I will not nor cannot put time frames on your loved ones lives. That is not for me to say. I though will pray for both of you and your loved ones. Lung disease is a terrible thing. Maybe in time, they will know more about it. May God Bless you both and your dear fathers. you all are in my thoughts and prayers.

[conniecox]

I just wanted to say I am sorry about your Dad, because my dad has the same disease.  His is called idiopathic pulmanary fibrosis because they dont know how he developed the stupid disease.  He was diagnosed with it 3/4 years ago and just last week they told us he only has 25% lung capacity left.  It is so sad to see your own dad struggling for air.  We will pray for your dad along with our dad and ask Jesus for a 2 for 1 special on the miracle !!    God bless you and your family

Connie and my family

[LLWB]

I'm sorry I don't know the answer to your questions, but wanted to send you prayers and hope that things will get better for your Dad. I know how hard it is to watch someone we love struggle for life. My thoughts and prayers are with you.