I've suffered with crohns disease since 1996 and take Pensasa. In 2005 I was admitted into hospital with vomiting and found I had narrowing of the intestines. I was put on steroid and felt better. In march this year I started vomiting again on and off and recently had a ct scan. They said I've a partial
with the vomiting, etc., or I would say just have them give you a CT Scan once a month over the next year to keep an eye on it and see if it grows.
That's what they did with me. They discovered a mass in my small intestine when I had an emergency
. They wanted to go in at that time and see what it was but I had just had surgery and didn't relish another surgery. I asked them if we could just keep an eye on it for now. I didn't have the symptoms yet though of the blockage but it did show a narrowing of the intestine in that area.
We did CT Scans over the next year and it didn't grow so we figured it was benign and left it alone. Besides, I felt fine at that point. Two years later I was having symptoms off and on of pain and nausea but chalked it up to something I was eating. A couple of times it got real bad where I had to curl up in a fetal position until it passed.
Finally, it got so bad I had to go to the ER and they saw that the mass had grown some. At that point they said it really should come out because the fact that it had grown showed it could grow some more and I could have a full blockage and a complete mess on my hands. Like I said before, it could become life threatening real fast. Again I didn't relish the thought of major surgery just three years after my last surgery but I knew this was probably for the best.
I had the mass removed with a resection and that was when I discovered it was Crohns when they tested the mass. It took some time to heal from the surgery but I feel so much better than I did before the surgery! Sometimes it really is for the best. I do understand your reluctance but I think you should probably go ahead and get the surgery and get it taken care of before it gets worse. That's my opinion. I wish you well!