TMJ disorder, abnormal symptoms need some advice

[mithras]

Hey all, I have been in pain for the last 2 years and I am only 19! About 2 years ago when this all started I had a pretty severe injury to my head, jaw and neck. I started going to a Chiropractor, doctor, and even an allergist for sinus pressure. I have been to 3 diff chiropractors, 2 dentists and my doctor multiple times. I was diagnosed with TMJ, whiplash and a reversed cervical curve. My jaw pops every time I chew, I feel like I am in a fog, My ears sometimes get randomly clogged, I get sharp shooting pains in my temples, forehead, eyebrow, right next to my eye, my ears and all over the back  and sometimes top of my head. I also have pretty bad tinnitus (ringing in the ears) when I am in a quiet room or trying to sleep. My neck feels tight, achy and sore all the time. Even when I get 9+ hours of sleep, I wake up feeling like I had slept for like 2 hours. I wear a night guard at night and it dosent seem to be helping. Every time I roll my neck I hear cracking and popping. I also have a whole bunch of little painless bumps deep in my neck along my spine, and one larger soft one. (My chiropractor said that it was tissue, my doctor said they were tendons) This has been slowly getting worse over the past two years and I have no idea what to do. I ruled out sinusitis with a CT scan of my sinuses, so it is not allergy related. Should I have an MRI done of my neck and head to rule out really bad stuff? Also to see if there was any tissue damage? All my doctors say that TMJ is causing a lot of these symptoms. The funny thing is, my jaw is the least of my problems at the moment, even though it aches, and pops from time to time, but all the other symptoms are more common than jaw symptoms. for the first 3-4 months after the injury i had severe headaches EVERY DAY!! but for the last year and 5 months i have only had 4-5 minor headaches. Im so confused...barley any headaches!?.  Could all of this pain be muscle tension related? Any advice would me much appreciated

[mammatwo]

hello you said your neck hurts ? do you get joint stiffness or feel pain /sore any were else? if you do go see a rheumatologist i have lot of same problems and i have fibromyalgia,tmj,and sjogrens syndrome you might want to look into it if you havent found an answer for your problems yet i to get very bad headaches /migranes that make you unable to move i now go to doctors monthly take meds and go for physical therapy and water therapy weekly also YOUR SLEEP FIBROMYALGIA GOES HAND IN HAND WITH CHRONIC FATIGUE SYNDROME YOU CAN SLEEP FOR 30 HOURS IF POSSIBLE AND IT STILL FEELS LIKE YOU ONLY SLEPT ONE HOUR IF YOU WOULD LIKE TO TALK MORE MY E-MAIL IS ***@**** hope this helps and good luck hope you feel better  mammatwo

[mithras]

No they are not working as a team. In fact, they all tell me that the other is wrong and that they are right. Its getting me confused. The same thing happens when a go to a new one. They all have their own opinions.

[Me2mommy2b]

I'm sorry you're having so many problems but your issues sound very complex.  There are many things that are involved and not only your TM joint.  I hope those drs are all working as a team trying to relieve your pain.  If they're not, then there is no point in getting all that treatment.  Your night guard may not be done properly.  I've seen many times when it actually causes the problem, not help resolve it.  I can't advice you on the MRI but I would suggest you to find a better team of drs who would dig deeper.