18M Old son diagnosed with Epidermal Nevus

[Camp2010]

Hello.
My 18M old son was just diagnosed with linear epidermal nevus.  His pediatric dermotologist told me it was just birthmarks, he may get more, they may appear warty as he gets older, but overall, he will be fine.  

He currently has them all on the right leg.  Approxinately 4 lines of them.  She feels they will stay to this leg and he should not get them anywhere else.

She did tell me about the Epidermal Nevus Syndrome, but really feels that my son does not have this.  My son is perfectly healthy and growing/developing fine so far.  As a precaution, he is to be seen by her every 3 months until he is 5 and "out of the woods".

All the reading I have done about epidermal nevi show me horrific things and I am just terrified for my little boy.

I am having a hard time understanding how being diagnosed with epidermal nevi can be not a big deal.  She swaers to me not worry - he will grow up a normal little boy.

Can you please help me understand this better?  His are of a linear pattern.

Thank you so much.

~ Tricia

[spresa]

by spresa, less than a minute
Hi i had ilven for 28 years i got it when i was 6 weeks old ive tried everything to get rid of it but nothing helped so i researched about it and i did find a cure for it its co2 laser so i gave it a try and yes its gone and hasnt come back thank god but i had to do a few procedures to get rid of it because for haveing it for so long so give it a try to. So if you know anyone who has it let them know  that co2 laser does work cause it really work for me and i thank god for it because haveing ilven was hell for me i suffered alot from it but not no more.

[naomi12]

My daughter is a few months younger than your son and was born with the Linear epidermal nevus syndrome and has had every test known to man because she should have things wrong with her but she is fine. Yes we can see it as its down the whole left side of her body in the linear pattern but other than that she is on track and doing fine. The only problems we have encounted is when she has scratched the nevus, as she also has ecema, and it has swollen in problem areas like on her ankle, therefore she cant wear shoes, so we have had to have it removed and fixed with a skin graft, which was also ok.
Dont really know if that answers your question but i was just letting you know that you are not alone, as i know how that feels.
Hope all goes well for you but i wouldnt stress as most children are born with the difficulties you may be expecting and dont grow into them. The only change is the nevus and its appearance... which is also rare and proberly wont happen as the odds are minimal.