Cure for leukocytoclastic vasculitis

[Dot2773]

I've just been diagnosed with  leukocytoclastic vasculitis.  Is there a cure for this or is this something that will reoccur... whenever it feels like it?  What causes it? Stress, medication, etc?

[IsmailAzmee]

I am living in Maldives, im 30yrs now. i have had LCV rashes since 10years ago, i was diagnosed of LCV by doctors 4 years ago, prior to that they were diagnosing, for 6 years they had no idea what this was, and 2years ago doctors said i had 1year left to live, if the LCV enters my internal organs they said i will die. I had my whole lower bodu covered in red spots and rashes, all joints, elbows and even joins on mu fingers had red spots inflammed and by the slightest wind it would be like burning.. it was absolutely unbearable.
my foot was full of pus from the open red spots, it was decaying and i kept applying the steriod medications doctors gave me. they said that they may have to cut out the muscles from my foot that were damaged and maybe amputate my left foot. But .. Today i alhamdhulillah i am cured by the will of god. there are no rashes no red spots, my foot that was once was rotten with pus and that doctors said that had to be amputated is working great, back then i had to use a cane to walk, now i am walking like i never got LCV.
I was given treatment in 2 phases, i know people will be skeptical about this but this is my journey i dont care what anyone else thinks this is wht i experiece and i have no reason to lie, i just want to help as i never want anyone to go through LCV, its so much pain.
I had ruqya performed on me and i found out that this sickness is caused by a demon shayateen. It wanted to afflict pain in me and it is a spirit who can get inside us, it can even go into our blood stream, it can shrink to the size of an atom. it is as if it is energy. This is what i understood from my experience. This demon causes bad dreams, depression, it even whispers thoughts in our mind to confuse us to make things harder for us, make it difficult to sleep. The time it likes to cause most pain is at night, you will notice that the most pain is always at night.

Now for the releif. The raquee is a herbal med doctor. He got leaves from a certain type of tree. and cooked he leaves and and i had to soak my legs in it for 1 hour, when the feet and ted spots and wounds werre soaked, he would scrub the spots with a brush until the wounds open up and the blood is seen and bleeding stops. It was very painful but he recites some words from the Quran and blows on my leg and amazingly it would feel cold and soothing. After all the wounds are red he would dry my leg and put a mixture of another round leaf paste mixed with kafur(a very minty herb white color like a crystal powder) when jt is pit it is soo cold its soo soothing. The pain goes away. He continued this for a 2 weeks.
after 2 weeks the wounds had recovered and he said that i would get it one more time. So i waited, he gave me some quran to recite to get rid of the demon(i wws seeing the demon and it was talking to me it keeps saying it wants to kill me and painfully.) so after reading quran regularly kept it away from me. you may think i have some psycological problem but no i am perfectly healthy mentally, i run 3 ngos and i am the president of a sports association here. so i am fully mentally stable im not making this up. Soafter a year the LcV spots cam again but it was difffent the spots were just in my ankles and it was v small spots. and then i was asked to pu some kafur(white minty herb) into a glass of water and recite quran on it and pour the water on the spots and rub the white powder kn the spots, and the ehite powder is a hard powder it feels like sand so it did hurt when i first started to rub, and he said to rub hard on the red spots and not to think of the pain so i rubbed and then the pain was gone, it was so cold the feet was so cold the pain dissapears, it stays cool for a long time. That day the raquee removed the demon jinn from my body. And my would i put kafur water on it for 7 dats And after that day i have never had to deal with LCV ever again.
This is my survuval story from LCV. i hope you all will find a way too. it was such a painful journey i hope you all will find your way out too. I beleive it is caused by a jinn demon now as no doctor can tell u how it starts and how it can be cured too, its not scientifically proven to what triggers it and you cant really find out. Also for sudden relief try to get kafur blocks and put it in water keep it in water for a day and when it hurts pour a little water on the spot nd smush the kafur in ur hand and rub it on your spots, be brave when u do this, it will hurt for like 30secs but after that it will be gone and also following days it will be faster to heal, there will be blisters starting to heal the next day. I will pray all of your will find your way out.

[Anna10hayslip]

10 year old female diagnosed with idiopathic leukocytoclastic vasvulitis, no protein in urine no autoimmune problems I bloodwork biopsy done confiming LCV. What is best treatment? Rash has cleared while on strong regime of predisone however bad pain is present and now bad pain in chest area.

[utkarsh123]

hello i ve diagnosed with leucoytoclastic vasculittis since 7 years , and i have been under dosage of predinslone and Mycophenolate  and also Hydroxycholroquine for 6 years . These tablets are able to control for a while but in winters i again develop red rashes , skin burning and ulcers . these become very painful.in my experience , extensive burning sensation can be mitigated by using a wet towel over the burning tissue/cell/place.

[Lamoose1]

After reading several posts stating of a possible link between LCV and the flu shot it makes me wonder.  I received my flu and pneumonia shots approx 2 weeks before I was diagnosed with LCV.  I did not think to tell my dermatologist (who made the diagnosis) this information.

[Lamoose1]

After reading several posts stating of a possible link between LCV and the flu shot it makes me wonder.  I received my flu and pneumonia shots approx 2 weeks before I was diagnosed with LCV.  I did not think to tell my dermatologist (who made the diagnosis) this information.

[shahzadnew]

My red spots have also been diagnosed as small vessels leukocytoclastic vasculitis. I also went through a flu vaccine. But not sure it can be the exact reason for this. But i guess it has triggered something

[Moxie779]

Hello Jewel,

If you are active here, i would like to share that i am also experiencing LCV (Vasculitis) and also started after a flu vaccine that caused severe flu.

i, like others am looking for remedies and help.

thank you all for posting your experiences.

[kumquatmay]

Just wondered how you were doing with LCV? I use a variety of things and am interested in what others do. For topical: I use Arnica Gel by Boiron, and any brand cortizone-10 Cream. I take a glyconutritional: Manna Cleanse by Mannatech as a help for body/skin toxins. I use pain relievers, prescribed and OTC. Specifically for the red dots on the skin, I use low-dose doxycline hyclate and for the burning, low-dose xanax. It is important to use low dosage on the meds. Doxy is actually an antibiotic, but at a low-dose it has an anti- inflammatory effect in the skin, and does not become active as an antibiotic and cause side effects. Same for Xanax - at a low dose it relaxes your muscles, at full dose it becomes active as an anti-depressant. Getting rid of or reducing stress has also been helpful.

[withrow]

Hello! I am a 34yr old female and have been diagnosed with LCV. I have heard a lot of people saying this has effected their legs, feet and back but not arms or between fingers.. Mine started inbetween my toes,ankles and calves, but now is mostly on my arms and alittle above elbows. My hands itch really bad. I have done the steriod shots, different creams, icepacks because my skin gets real hot sometimes before I break out.

I would do anything for this to go away. The itching and burning is almost everyday. I have had this the last 8 months. I am unable to enjoy a shower like I used to. Does anyone feel this way?

[Davidiscured]

I bought a machine from gametimetherapy after using for one month I was cured. The machine is easy to use and is no invasive. The machine is expensive but I had tried others with no success. I urge you to read about PEMF it has been around for 50 years helping all kind of illnesses.

[kittykatkate136]

David tell me about this machine and give specifacation. I have been battling this for about 2 years and have good days and Bad days. You do know there are other reasons you get this diasease . Lyme and infected cat bites from fleas and it's called Bartonella hencillia . If you look them up you will see  the disease we have. The medical Dr's here want acknowledge it Theres a DR in Raleigh NC that will and They cure it with a pick line and Antibioctics. I will get you more info if you like it's very exspensive/

[jochrist]

Hi i also had vasculitis after being injected with flu vaccine!  Doctors were denying that this is the cause but i'm really sure that that flu vaccine triggered this disease.  This started last September 04, 2012 and i'm still suffering for it now...:-( waaaaahhhhhhh...if i could just turn back time, i hate flu vaccines! it made my life like hell!!!

[Davidiscured]

I bought a machine from game time therapy it was worth every penny

[BB0904]

What Pemf machine did you get?  No more breakouts and no more prednisone?  It seems that my breakouts are more and more frequent.  Any help is appreciated.

[loriann1236]

I looked up PEMF Machines and WOW, there are so many different ones.. I have Systemic Lupus, Rhumitoid Arthuritis, Mixed Connective Tissue Diesease and to top it off.. last summer was diagnosed with Vascularitis.. I was put in the hospital and given sterioides and cell-cept... this worked... but not it is back and in different places than before... how can this help me and also which machine do u recommend?? Which one did you use??
Thanks... loriann 1234 @ hot mail . com

I spaced my email so it would show up here for u..
Thanks for any help you may be able to give.. also did your insurance pay for this?

[tony2200]

What kind of pemf machine did you use and at what rate and frequency were you using it. My email is ***@**** am desperate for a cure for this other than predisone.

[Davidiscured]

I had leukocytoclastic vasculitis for a year and am now finally cured thanks to a high powered PEMF machine I purchased. I used it every day two times a day for 9 minutes and after two months I am fully cured. The PEMF machine helps oxygenate you blood and realign your cells in my body. It worked for me I am more than happy to share my success with you. It was a horrible disease that I would not wish on my worst enemy.. If anyone has any questions email me at ***@****. 

[jewel3]

IS THERE A LINK BTWN FLU VACCINE AND THIS DISEASE????

I have been suffering for 5 years....off and on each month!!!!   I am a 25 year old female. My backgound is of asian decent. I was a normal healthy 21 year old when I first received the flu vaccine. I decided to take it bc the doctors recommended it for those who have a newborn....which I just had my first child who was 5 mo. at the time.

After the receiving the vaccine, I got the flu and became very sick! A week later, I had deep stomach pain and pain in my knee joints. To my discover were little red bumps underneath my arms and then spreading to my lower legs. My life has been altered bc of this disease! I NEED HELP. Bc I also have protein in my urine, I am seeing a nephrologist. All the doctors that I have been in to see, DENY any link to the flu vaccine yet when I pull up medical research...there are so many researches linking the two.

I am dying for a cure. I eat healthy, am active, and love life! Why is this happening to me. PLEASE HELP IF YOU ARE A DR. OR HAVE ANY INFORMATION/ADVICE. I am scheduled to see a rheumatologist in 2 wks.

[reidweaver]

There are many reasons for leukocytoclastic vasculitis.  If you are in a flare and developing ulcers, a punch biopsy with an immunofluorescent test will often determine what is causing this.  In my case, it was cutaneous polyarteritis nodosa.  Prednisone would control the flare as long as it was in my system, but as soon as it was out, another flare would begin.  My disease has been primarily hereditary (50% of my family has had autoimmune disease of some type) and stress.  Through treatment combining prednisone and Imuran I achieved nearly 5 years remission.  With my father's diagnosis of mesothelioma this year, my disease has returned.

Although vasculitis can be contained to skin, nerves and muscle, it is important to control it.  Staph infections in an ulcer can lead to very serious complications.  Some vasculitities are not contained to just the skin and can affect the gut and other organs.  Without treatment they can be fatal.  It is really important to determine if your vasculitis is a reaction to a medication or stress, or an indication of something more systemic.