My 18-mo-old had a fundoplication on is having very unstable glucose levels - his "episodes" have become more frequent and today was example:
6:30am - woke up SCREAMING his head off (after waking up every 2 hours during the night with excessive thirst and peeing through 4 diapers - 8pm-6:30am - this is a typical night for us for past 9-10 months).
7am - glucose=65
7:30am - ate 1/4 cup dry crumbled cheerios/graham cracker mixture and drank 1/2 cup water
8:30am - lethargy, dark circles under eyes, retching a little bit, eventually completely limp and goes to sleep....glucose is 267
9am - still lethargic, but responsive to pinches..glucose is 200..eventually we get him to play
9:20am - minced chicken frank
10am - minced small pancake
noon - cranky, cranky, cranky, SCREAMING angry about ?..glucose is 66
This is a very typical scenario. However, today was the first day that we actually used glucose monitor.
He had a fundo on April 28 (immediately followed by cdiff and rotavirus).
He really retches (and has even vomited twice) followed by lethargy and sleep - if we include anything in his diet like diluted cow's milk, soymilk, rice milk, apple juice, pear juice, OJ, etc.
Other than the excessive thirst and excessive peeing at night (and never really sleeping too much), he LOVED milk and juice and most foods (thanks to a great OT) prior to his fundo. Now, he craves all of these things, but if he ingests his glucose levels go nuts.
Is this "dumping syndrome" or ? Isn't 267 one hour after small meal high?
Should we see endocronologist? Do you know of a good one in SD?