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Chronic Diarrhea, No Diagnosis
I've now had diahrrea (very frequent bowel movements, 4-8X day, often flaky dissolving upon entering the water, sometimes formed but loose, and ocasionally but not often watery) for 8 months and running.
I am really frustrated because I've had extensive GI tests which were negative:
1. colonoscopy with biopsies- negative (but exess bile found in stomach)
2. endoscopy-negative (but showed severe acid reflux/hiatus hernia)
3. small bowel ex-rays-negative
4. CBC- normal counts
5. HIV test- i had done early on and was told it was negative though this was before all these diahrreal symptoms happeneed (though i have NOT has sexual intercourse b4 or since, am not a drug user, have not had transfusions).
here are some things that DID show on my tests:
1. Sonogram showed-Gall stones
2. Hida Scan showed what my Dr. said was anonfunctional gall bladder
3. I tested ASCA positive for IGG (62) and IGC (58.1) -but what does this mean with all my negative biopsies??
I also took cholestyramine for the Bile found in my stomach which my dr said was from the GB problem. it did not help the diahrrea.
Early on i also tested positive for e. hystolitica which i later tested negative for after treating with metronidazole etc, yet the diahrrea persisted.
My intestinal biposies were all negative and my dr. said it likely wasnt crohn's because i has no elevated white blood cells in my stool and also my biopsies were negative.
At first my Dr. said i tested positive for celiac/sprue marker but then the biopsies (what he called the "gold standard") were negative for that. also a non-gluten 2 week diet didnt help me.
my continued diahrrea and recent symptoms continue to make me very worried about my situation and even HIV because u have had some difficulty breathing for the past 3-4 weeks and every time i type diahrrea into the internet HIV comes up as the main cause. but i really should not be a risk for this and I DID test negative! plus my lymphocite #s were normal according to my new GI and yet even he asked me if i had been getting mouth sores and/or rashes! (why would he ask this haveing seen all my tests?!)
so i dont know what to do. this just cant be IBS. its too consistent, always is diahrrea (not constipation), and i just know its not. can you help me? do you have any ideas? where do i go from here? does anything jump out at you from my tests as to what this might be?
Amazingly I have not been losing weight AT ALL. not a pound. nor do i have fevers (actually my fever is usually LOWER - like 97.5, is that meaningful?). my muscles esp in my upper arms are often sore. what should i do? repeat any of these tests? take another HIV?? some nights i do get sweats on my neck and back!
Please tell me what you make of all these tests and symptoms?
what should i do? what could this be?
PLease, please help.
Sam
I am really frustrated because I've had extensive GI tests which were negative:
1. colonoscopy with biopsies- negative (but exess bile found in stomach)
2. endoscopy-negative (but showed severe acid reflux/hiatus hernia)
3. small bowel ex-rays-negative
4. CBC- normal counts
5. HIV test- i had done early on and was told it was negative though this was before all these diahrreal symptoms happeneed (though i have NOT has sexual intercourse b4 or since, am not a drug user, have not had transfusions).
here are some things that DID show on my tests:
1. Sonogram showed-Gall stones
2. Hida Scan showed what my Dr. said was anonfunctional gall bladder
3. I tested ASCA positive for IGG (62) and IGC (58.1) -but what does this mean with all my negative biopsies??
I also took cholestyramine for the Bile found in my stomach which my dr said was from the GB problem. it did not help the diahrrea.
Early on i also tested positive for e. hystolitica which i later tested negative for after treating with metronidazole etc, yet the diahrrea persisted.
My intestinal biposies were all negative and my dr. said it likely wasnt crohn's because i has no elevated white blood cells in my stool and also my biopsies were negative.
At first my Dr. said i tested positive for celiac/sprue marker but then the biopsies (what he called the "gold standard") were negative for that. also a non-gluten 2 week diet didnt help me.
my continued diahrrea and recent symptoms continue to make me very worried about my situation and even HIV because u have had some difficulty breathing for the past 3-4 weeks and every time i type diahrrea into the internet HIV comes up as the main cause. but i really should not be a risk for this and I DID test negative! plus my lymphocite #s were normal according to my new GI and yet even he asked me if i had been getting mouth sores and/or rashes! (why would he ask this haveing seen all my tests?!)
so i dont know what to do. this just cant be IBS. its too consistent, always is diahrrea (not constipation), and i just know its not. can you help me? do you have any ideas? where do i go from here? does anything jump out at you from my tests as to what this might be?
Amazingly I have not been losing weight AT ALL. not a pound. nor do i have fevers (actually my fever is usually LOWER - like 97.5, is that meaningful?). my muscles esp in my upper arms are often sore. what should i do? repeat any of these tests? take another HIV?? some nights i do get sweats on my neck and back!
Please tell me what you make of all these tests and symptoms?
what should i do? what could this be?
PLease, please help.
Sam
Thank you for the suggestions. I will look into them.
If you are eating a lot of sugar and drinking tons of milk, that is indicative of yeast in your digestive track. You definitely have a toxic colon and you can go to your local herb shop or GNC for colon cleanse and yeast cleanse information. If you must drink milk, switch to the organic brands. Milk is full of antibiotics and hormones that are given to the cows to increase milk production. Even organic dairy isn't all that great for you. Milk increases mucous production and causes stomach upset in most people. Everyone suffers from diarreah at different times in their lives but having it constantly is definitely a red flag. You may consider doing a parasite cleanse as well. If you do detox, it's imperative you drink LOTS of pure water and if the diarreah continues, you might consider colonics. A qualified colon hydrotherapist wil be able to tell you what they are seeing and the source(s) of your problem. Good luck and good health to you!
Hello, I just happened upon this website today and thought I would throw out my situation and see if anyone has any thoughts BESIDES sending me to see a doctor for testing.
I have had diarrhea since I was a kid and am always amazed on those very rare occassions when a normal poop comes out. As a kid I had diarrhea everyday. As a youth it continued and worsened. So, that when I went running for cross-country practices, I made it a regular route to pass by the porta potty in the park (Sometimes I just had to stop in the woods). It has continued off and on as an adult also. I noticed that during this last winter i started to gain weight for the first time because, for the first time I did not do any real exercise. However, now that its summer and I take a walk with my husband each night, I end up running home and just barely making it to the restroom. This happens on a nightly basis and as you can imagine my husband, besides myself is very tired of it. (However, due to past experiences and my desire to not be someone's pin cushion,I am un willing to go into the doctor for various testing.) I am willing to live with it, rather than see a doctor, but if I can get some ideas as too what it could be then I may be able to sorta test myself and perhaps remedy the situation on my own by what I eat or what I do etc. (which would delight my husband) I have investigated some information about this subject online and discovered that I could be lactose intolerant. I do eat a tremendous amount of sugar, which worsens my diarreah and tons of milk (drink a gallon a week, sometimes more). Two items which I have eaten a lot of my whole life. In fact my mom was once very concerned about it when I was a kid and tried to take my milk away, but my dad said let her drink as much as she wants and so I have. Anyway, I have been taking lactaid pills, but am unsure if they are working just yet. I am 30 and generally healthy, but not necessarily a healthy eater, although that is very slowly changing. Anyway, I wondered why the exercise sets off the diarreah? Do you have any thoughts or suggestions on this that do not involve seeing a doctor.
I have had diarrhea since I was a kid and am always amazed on those very rare occassions when a normal poop comes out. As a kid I had diarrhea everyday. As a youth it continued and worsened. So, that when I went running for cross-country practices, I made it a regular route to pass by the porta potty in the park (Sometimes I just had to stop in the woods). It has continued off and on as an adult also. I noticed that during this last winter i started to gain weight for the first time because, for the first time I did not do any real exercise. However, now that its summer and I take a walk with my husband each night, I end up running home and just barely making it to the restroom. This happens on a nightly basis and as you can imagine my husband, besides myself is very tired of it. (However, due to past experiences and my desire to not be someone's pin cushion,I am un willing to go into the doctor for various testing.) I am willing to live with it, rather than see a doctor, but if I can get some ideas as too what it could be then I may be able to sorta test myself and perhaps remedy the situation on my own by what I eat or what I do etc. (which would delight my husband) I have investigated some information about this subject online and discovered that I could be lactose intolerant. I do eat a tremendous amount of sugar, which worsens my diarreah and tons of milk (drink a gallon a week, sometimes more). Two items which I have eaten a lot of my whole life. In fact my mom was once very concerned about it when I was a kid and tried to take my milk away, but my dad said let her drink as much as she wants and so I have. Anyway, I have been taking lactaid pills, but am unsure if they are working just yet. I am 30 and generally healthy, but not necessarily a healthy eater, although that is very slowly changing. Anyway, I wondered why the exercise sets off the diarreah? Do you have any thoughts or suggestions on this that do not involve seeing a doctor.
http://www.aegis.com/
they have a forum where you can ask doctors on AIDS issues
they have a forum where you can ask doctors on AIDS issues
Hello. A few summers ago, I had your problem.
A gastroenterologist admitted me to the hospital
immediately. He had me hooked up to a basic
minerals and fluids drip, and for a week,
I couldn't have anything but water. Now, this
is the "answer" part... They studied every little
thing that came out of me, and after a week,
declared that I had an inidentifiable parasite.
My cousin was in the hospital at the same time,
for the same reason, on a different floor.
Same diagnosis. And we lived in the same neighborhood.
The problem disappeared after the one week fast
and rest in bed. Maybe the fluid and minerals
in my system were really out of balance! Who
knows - they did not. Maybe you should ask to be
admitted and lay in bed for a week and have healthy
sterile fluids flow through. I felt wonderful for
the next few weeks!!!
A gastroenterologist admitted me to the hospital
immediately. He had me hooked up to a basic
minerals and fluids drip, and for a week,
I couldn't have anything but water. Now, this
is the "answer" part... They studied every little
thing that came out of me, and after a week,
declared that I had an inidentifiable parasite.
My cousin was in the hospital at the same time,
for the same reason, on a different floor.
Same diagnosis. And we lived in the same neighborhood.
The problem disappeared after the one week fast
and rest in bed. Maybe the fluid and minerals
in my system were really out of balance! Who
knows - they did not. Maybe you should ask to be
admitted and lay in bed for a week and have healthy
sterile fluids flow through. I felt wonderful for
the next few weeks!!!
Hello. A few summers ago, I had your problem.
A gastroenterologist admitted me to the hospital
immediately. He had me hooked up to a basic
minerals and fluids drip, and for a week,
I couldn't have anything but water. Now, this
is the "answer" part... They studied every little
thing that came out of me, and after a week,
declared that I had an inidentifiable parasite.
My cousin was in the hospital at the same time,
for the same reason, on a different floor.
Same diagnosis. And we lived in the same neighborhood.
The problem disappeared after the one week fast
and rest in bed. Maybe the fluid and minerals
in my system were really out of balance! Who
knows - they did not. Maybe you should ask to be
admitted and lay in bed for a week and have healthy
sterile fluids flow through. I felt wonderful for
the next few weeks!!!
A gastroenterologist admitted me to the hospital
immediately. He had me hooked up to a basic
minerals and fluids drip, and for a week,
I couldn't have anything but water. Now, this
is the "answer" part... They studied every little
thing that came out of me, and after a week,
declared that I had an inidentifiable parasite.
My cousin was in the hospital at the same time,
for the same reason, on a different floor.
Same diagnosis. And we lived in the same neighborhood.
The problem disappeared after the one week fast
and rest in bed. Maybe the fluid and minerals
in my system were really out of balance! Who
knows - they did not. Maybe you should ask to be
admitted and lay in bed for a week and have healthy
sterile fluids flow through. I felt wonderful for
the next few weeks!!!
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