Chronic Diarrhea, No Diagnosis

[SamTheMan]

I've now had diahrrea (very frequent bowel movements, 4-8X day, often flaky dissolving upon entering the water, sometimes formed but loose, and ocasionally but not often watery) for 8 months and running.
I am really frustrated because I've had extensive GI tests which were negative:

1. colonoscopy with biopsies- negative (but exess bile found in stomach)
2. endoscopy-negative (but showed severe acid reflux/hiatus hernia)
3. small bowel ex-rays-negative
4. CBC- normal counts
5. HIV test- i had done early on and was told it was negative though this was before all these diahrreal symptoms happeneed (though i have NOT has sexual intercourse b4 or since, am not a drug user, have not had transfusions).

here are some things that DID show on my tests:
1. Sonogram showed-Gall stones
2. Hida Scan showed what my Dr. said was anonfunctional gall bladder
3. I tested ASCA positive for IGG (62) and IGC (58.1) -but what does this mean with all my negative biopsies??

I also took cholestyramine for the Bile found in my stomach which my dr said was from the GB problem. it did not help the diahrrea.
Early on i also tested positive for e. hystolitica which i later tested negative for after treating with metronidazole etc, yet the diahrrea persisted.
My intestinal biposies were all negative and my dr. said it likely wasnt crohn's because i has no elevated white blood cells in my stool and also my biopsies were negative.
At first my Dr. said i tested positive for celiac/sprue marker but then the biopsies (what he called the "gold standard") were negative for that. also a non-gluten 2 week diet didnt help me.

my continued diahrrea and recent symptoms continue to make me very worried about my situation and even HIV because u have had some difficulty breathing for the past 3-4 weeks and every time i type diahrrea into the internet HIV comes up as the main cause. but i really should not be a risk for this and I DID test negative! plus my lymphocite #s were normal according to my new GI and yet even he asked me if i had been getting mouth sores and/or rashes! (why would he ask this haveing seen all my tests?!)

so i dont know what to do. this just cant be IBS. its too consistent, always is diahrrea (not constipation), and i just know its not. can you help me? do you have any ideas? where do i go from here? does anything jump out at you from my tests as to what this might be?
Amazingly I have not been losing weight AT ALL. not a pound. nor do i have fevers (actually my fever is usually LOWER - like 97.5, is that meaningful?). my muscles esp in my upper arms are often sore. what should i do? repeat any of these tests? take another HIV?? some nights i do get sweats on my neck and back!
Please tell me what you make of all these tests and symptoms?
what should i do? what could this be?
PLease, please help.
Sam

[Emit444]

For about a three week period once a year I take (these are at a health food store) One tablet each of a two part colon cleanse formula (Ultimate Cleanse, by Nature's secret), I follow that in about twenty minutes with a 16 oz of juice containing two rounded teaspoons of psyllium husk powder (dietary fiber, like Citrucel etc) and 1 tbs. of Colloidal bentonite (Sonne's No.7: an absorbent aid in detoxification). The fiber and clay (bentonite) absorb the toxins and mucous that the Ultimate cleanse removes. I found that I need to do this for a week following any antibiotic treatment and again after any surgery. Wisdom teeth and tonsillectomy in my case.