I've been living with PET in one ear for several years now and thought it was from getting water in my ears when swimming. Being diagnosed was a shock, and the thought of surgery was a big u-uh moment! So I've just been living with it to the best of my ability. Well, long story short, yesterday I noticed that sucking/chewing on a large peppermint lifesaver seemed to make my tube close. I deliberately ate a couple when my ear went off today, and each time it worked! Is it the peppermint oil? I dunno, but I don't care why it works. It just works for me. Just had to share this in case someone else finds the information useful.
I almost cried when I read your entry. I have the exact same symptoms and have been told by two ENT's that they can't help me. The second went as far as telling me that after having these symptoms for 4 years it would go away if I put a hot towel on my neck! I am a medical professional myself and so had thought I would be taken a little more seriously. I can't take it anymore. I am constantly bending over to clear my ears only to have them clog again as soon as I swallow. Have you made any progress? Is there anything I can do?
I am currently on Premarin nasal spray twice a day for about a month (compounded) for the treatment of PET. Now for about the past week I am waking up at around 2:15 every morning and can't go back to sleep. I am also having some headaches. Does anyone know if these are side effects? It seems to be working except for a few times. My Dr. said he can take fat from my neck and put it thru my nose to my eustation tube to "fatten" it up, but it may cause hearing loss. If my insurance will cover it, I am about so desparate I may try it. What do you think about that and do you think the insomnia and headaches are side effects of the Premarin spray?
Doing great with the water sniffing. So far it has worked every single time and lasts a few days. If anyone else out there is trying this, please let us know your results. I have experienced no problems at all with this - it feels just like getting water up your nose while swimming.
Just wondering how you are doing still with the water sniffing. And if you had any problems with it.
Okay, I've been sniffing water up my right nostril for the last 4 months on and off as required to stop the PET in my right ear. I sniff about 1 tspn of water up my right nostril while tilting my head to the right (awkward but it works for me). When I feel that sting by my right ear, I know I hit the right spot. Water will run out of your nose and you'll have to blow - so keep a hanky near! I had PET today again - 92 degrees and very humid; I sniffed up a bit and it was gone and did not come back the rest of the day. It seems to last a few days, and I don't seem to get it as often as I did. Not a permanent solution, but the best I've come across yet .... and no more drinking multiple glasses of water for the same goal. Good Luck to you all.