Aa
Dazed and Confused
Dreading yet another surgery, what to do? After being diagnosed w/ endo at 16 and living with it everyday since has taken its toll on my life. I have had numerous surgeries, 2 years of Lupron, one beautiful baby and a recent miscarriage. Since I miscarried my reproductive system has gone haywire. My doc gave me meds to induce a period b/c I stopped cycling, I am ovulating just not dropping. Everyday I endure massive amounts of abdominal pain, I had to go to the hospital on Monday b/c I was blacking out b/c of the pain. All of this has taken over my life and I want it back. I supressed everything in reguards to my endo for several years and it is at a point where I have to deal with it now. I am awaiting yet another laparoscopy/hysteroscopy and depending upon what that shows I was reffered to a specialist in Oregon...anyone know of this Doctor or been to an "endo specialist"? To me this disease feels like a cancer, it might not kill you but it sure takes over your body and your life. Anyone out there feel the same way or is it just me?
I am glad that it isn't just me! :) Gives me a little light at the end of the tunnel. Everything that I have gone through with the endo, miscarriage and chronic pain have put me in a downward spiral. I am now on antidepressants and anxiety meds to help me cope b/c I had a complete meltdown after having to go to the doctor. It made me face the endo again which I had suppressed for the past 3 years. I think it also brought back the heartache of the miscarriage since I haven't been back to the doctor since. When people aren't in your shoes or are living with the problems that you have they just don't understand. I don't know how many times I have been told from my family and certain doctors that it is all in my head. I know my body, I know my pain, I KNOW when something isn't right. It's hard that you have to fight the disease everyday but having to fight the doctors to try and find a treatment is even worse.
Nope, it's not just you...I feel as though I lost my life to this years ago, too. People who don't suffer with endo have no idea, I believe that they think that it just makes your periods worse. WRONG! It effects everything and everyday. Somedays I just sit and wonder when the pain is going to start, even if it's nowhere near time for my period.
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