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Endometriosis?
Hey, I've been reading everyone's questions and answers on here and I'm also looking for an answer/advise!
I'm 21 years old, and as long as I can remember I've had really heavy, really painful periods. My cramps have been so bad that I have to just curl up and cry them out, they hurt in my butt and literally from my belly button down to my knees. They've always been irregular, I would get two periods in one month and none the next. Ive also always had discomfort with sex, to the point where I just don't enjoy it much anymore. I've been to the emergency room 3 or 4 times for my cramps, each time I was in so much pain I was convinced something had to be wrong. Every time they told me its nothing, gave me some pain meds and sent me on my way. I saw three different gynecologists trying to figure out what could be wrong and got nowhere, i asked about endometriosis and I was told that it's pointless to check for it, because it's treated with birth control either way. I went through 4 different birth control pills because they all made my cramps worse. Finally I found one that didn't make my cramps worse, but didn't make them better either. I was diagnosed with IBS when I complained about having slight period cramps in the weeks I wasn't on my period. My last meeting with the gyno he prescribed me pain killers to help the cramps. I've had these for about 3 years now. They get rid of the pain, but there has to be a better way. i have a serious boyfriend and am starting to get worried about infertility but can't seem to get an answer from anyone. I would love any advise at all, I'm just so tired of not having answers!! Thank you so much for reading this!
I'm 21 years old, and as long as I can remember I've had really heavy, really painful periods. My cramps have been so bad that I have to just curl up and cry them out, they hurt in my butt and literally from my belly button down to my knees. They've always been irregular, I would get two periods in one month and none the next. Ive also always had discomfort with sex, to the point where I just don't enjoy it much anymore. I've been to the emergency room 3 or 4 times for my cramps, each time I was in so much pain I was convinced something had to be wrong. Every time they told me its nothing, gave me some pain meds and sent me on my way. I saw three different gynecologists trying to figure out what could be wrong and got nowhere, i asked about endometriosis and I was told that it's pointless to check for it, because it's treated with birth control either way. I went through 4 different birth control pills because they all made my cramps worse. Finally I found one that didn't make my cramps worse, but didn't make them better either. I was diagnosed with IBS when I complained about having slight period cramps in the weeks I wasn't on my period. My last meeting with the gyno he prescribed me pain killers to help the cramps. I've had these for about 3 years now. They get rid of the pain, but there has to be a better way. i have a serious boyfriend and am starting to get worried about infertility but can't seem to get an answer from anyone. I would love any advise at all, I'm just so tired of not having answers!! Thank you so much for reading this!
If you don't have endometriosis you could have Adenomyosis. It can cause pain and/or heavy bleeding. The uterine lining continues to grow and thicken. It's different than endometriosis.
No problem. I am glad I could help.
Yes I had migraines up until I first went on the pill 6 months before my first surgery in 2007. I have not had one since. I mean I would get them monthly. I don't even get a headache any more and if I do it is from either drinking too much wine or something like that.
Yes I had migraines up until I first went on the pill 6 months before my first surgery in 2007. I have not had one since. I mean I would get them monthly. I don't even get a headache any more and if I do it is from either drinking too much wine or something like that.
I am so glad your found this forum. I want to state some facts here in response to what you have been told.
1) The only way to diagnose Endo is through laparscopic surgery and biopsy. If excision (cut out with scissors) is done it gets the root of the disease if ablation is done it will only get the surface. An endo specialist is someone I would recommend for you.
2) Yes at times Endo can be persistent and at the moment there is no cure but excision is the gold standard. If you are taking the pill and it is not working it is because of the endo most likely. The same thing happened to me before I was diagnosed. A good surgery done by a specialist will help. After my surgery I was on marvelon 21 for 8 yrs and I barely got a period or pain.
3) Around 80% of women with Endo are diagnosed with IBS because they can't find what the underlying problem is.
If you would like please read my journals as your story is similar to mine. I would read the first one called "migraines and Endometriosis" as that was one of the first articles I wrote for hormones matters and there is a lot of detail about my bowels issues that sound a lot like yours including painful sex.
I had rectovaginal/Bowel and bladder endo.... Stage IV and frozen pelvis. Everything was wrapped around my uterus covered in adhesions and endo lesions/cysts
1) The only way to diagnose Endo is through laparscopic surgery and biopsy. If excision (cut out with scissors) is done it gets the root of the disease if ablation is done it will only get the surface. An endo specialist is someone I would recommend for you.
2) Yes at times Endo can be persistent and at the moment there is no cure but excision is the gold standard. If you are taking the pill and it is not working it is because of the endo most likely. The same thing happened to me before I was diagnosed. A good surgery done by a specialist will help. After my surgery I was on marvelon 21 for 8 yrs and I barely got a period or pain.
3) Around 80% of women with Endo are diagnosed with IBS because they can't find what the underlying problem is.
If you would like please read my journals as your story is similar to mine. I would read the first one called "migraines and Endometriosis" as that was one of the first articles I wrote for hormones matters and there is a lot of detail about my bowels issues that sound a lot like yours including painful sex.
I had rectovaginal/Bowel and bladder endo.... Stage IV and frozen pelvis. Everything was wrapped around my uterus covered in adhesions and endo lesions/cysts
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Thank you for your response! I also get migraines with aura sometimes, I got them a lot as a teenager. I didn't realize that related as well.
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