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Has anyone been to the Chronic Pain Team?
Hello
I have been referred to go and see the Chronic Pain Team at the Hospital. I see that its Anaesthetists, Physiotherapists, Physiologists and Occupational Therapists.
I got a letter quite a few weeks ago with a form I have to fill in and it need to be in by Friday this week. Well I don't want to fill it because I don't want to go at all, I have fallen out with mum about it today, saying that I will fall out with everyone and no one will help me then. Gp also wants me to go. She also said it might be worth seeing a Physiologist as apparently they help you cope with the pain. But there is no way. I hear that and think they all think im mental and its in my head.... even when now after 4 years they have finally found out that it is gynaecology problem.
When I was in hospital a couple of months ago when the dr came and said about chronic pain team after he had gone a lady from next bed came to me and said you see physiatrists cos they think its all in your head when u go to them.
So there is just no way I am off. And the letter that came with an address to send it back to and its in the mental part of the hospital.
Has anyone else been to Pain team and what did you get out of it?
Thanks
I have been referred to go and see the Chronic Pain Team at the Hospital. I see that its Anaesthetists, Physiotherapists, Physiologists and Occupational Therapists.
I got a letter quite a few weeks ago with a form I have to fill in and it need to be in by Friday this week. Well I don't want to fill it because I don't want to go at all, I have fallen out with mum about it today, saying that I will fall out with everyone and no one will help me then. Gp also wants me to go. She also said it might be worth seeing a Physiologist as apparently they help you cope with the pain. But there is no way. I hear that and think they all think im mental and its in my head.... even when now after 4 years they have finally found out that it is gynaecology problem.
When I was in hospital a couple of months ago when the dr came and said about chronic pain team after he had gone a lady from next bed came to me and said you see physiatrists cos they think its all in your head when u go to them.
So there is just no way I am off. And the letter that came with an address to send it back to and its in the mental part of the hospital.
Has anyone else been to Pain team and what did you get out of it?
Thanks
This is my friend's blog from the UK. She has a good page here that shows the list of doctors available that deal with Endo. She had rectovaginal Endo like myself. http://endostar.co.uk/endometriosis-specialists/
When he says "retrograde Menstruation" you can tell he knows nothing as that theory is called the Sampson theory and it is over 100 yrs old. Most doctors are still stuck in some time warp zone with this disease and can't seem to come to terms that there is a lot more new information out there now and retrograde menstruation has been ruled out. It has to do with abnormal cells that grow outside the uterus. New research believes that this happens in the womb and that you are born with it but it activates with hormones. They have found Endo in fetuses.
I am not sure what you mean by "theatre?" How could he see the scar tissue on the bowels? Was it pulling your organs in a different direction?
If he is saying it is the worst he has ever seen that is not a good sign. I would change doctors immediately. Any doctor that tells you its the worst he has ever seen means he does not have the experience.
Have you had surgery to diagnose Endo before? sorry not sure if I asked you that yet.
When he says "retrograde Menstruation" you can tell he knows nothing as that theory is called the Sampson theory and it is over 100 yrs old. Most doctors are still stuck in some time warp zone with this disease and can't seem to come to terms that there is a lot more new information out there now and retrograde menstruation has been ruled out. It has to do with abnormal cells that grow outside the uterus. New research believes that this happens in the womb and that you are born with it but it activates with hormones. They have found Endo in fetuses.
I am not sure what you mean by "theatre?" How could he see the scar tissue on the bowels? Was it pulling your organs in a different direction?
If he is saying it is the worst he has ever seen that is not a good sign. I would change doctors immediately. Any doctor that tells you its the worst he has ever seen means he does not have the experience.
Have you had surgery to diagnose Endo before? sorry not sure if I asked you that yet.
Thank you for replying. I have filled that form in this morning and I have sent it back. So hopefully it will be quite a while before I get an appointment yet anyway.
I have been bad for 4 years went into one hospital quite a lot they took my appendix out thinking it was that. then when I was still bad after I saw a gynaecology consultant and she was so horrible saying that it is defiantly not a gyni problem which every time I went into hospital I was on period. But no she wasn't having any of it.
So the gp referred me to a different hospital which even that consultant wasn't going to take me to theatre till at least end of this year. Another Consultant came on ward and took me on as one of his... he had me in theatre in just a few weeks after. I was on period that day. He said there was a lot of retrograde menstruation and that it was the worst he had seen in a long time. and lots of adhesions worst on my bowel. So he put the coil in. That was September.
When u type about retrograde in, it brings up endometriosis straight away.
And endo is also put on my sick notes everytime.
Is that endo??
I live in NorthYorkshire
Thank you
I have been bad for 4 years went into one hospital quite a lot they took my appendix out thinking it was that. then when I was still bad after I saw a gynaecology consultant and she was so horrible saying that it is defiantly not a gyni problem which every time I went into hospital I was on period. But no she wasn't having any of it.
So the gp referred me to a different hospital which even that consultant wasn't going to take me to theatre till at least end of this year. Another Consultant came on ward and took me on as one of his... he had me in theatre in just a few weeks after. I was on period that day. He said there was a lot of retrograde menstruation and that it was the worst he had seen in a long time. and lots of adhesions worst on my bowel. So he put the coil in. That was September.
When u type about retrograde in, it brings up endometriosis straight away.
And endo is also put on my sick notes everytime.
Is that endo??
I live in NorthYorkshire
Thank you
I got nothing from the pain clinic except more hormonal meds. It doesn't hurt to see a therapist one that deals with chronic pain though. I was misdiagnosed for 14 yrs and it definitely played a role psychologically if I want to admit it or not. This disease is relentless and your pain is real. I think you should at least consider that to help at least talk to someone if you get nothing substantial out of it don't go back. Easy as that.
As for your Endo have you ever seen an Endo specialist? There are only a handful worldwide for 200 million women so it might be in your best interest to go that route first . Many gynos don't know how to operate on Endo or don't know that Endo has so many different faces to it and all lesions don't look the same with everyone. Also only a small number of surgeons can excise (cut out) Endo which gets to the root of the disease where as reg gynos just scrape the surface with the laser which leaves it behind which continues to grow.
If you let me know where you live I can guide you into the right direction and also I want you to know it's not in your head. I believe you
As for your Endo have you ever seen an Endo specialist? There are only a handful worldwide for 200 million women so it might be in your best interest to go that route first . Many gynos don't know how to operate on Endo or don't know that Endo has so many different faces to it and all lesions don't look the same with everyone. Also only a small number of surgeons can excise (cut out) Endo which gets to the root of the disease where as reg gynos just scrape the surface with the laser which leaves it behind which continues to grow.
If you let me know where you live I can guide you into the right direction and also I want you to know it's not in your head. I believe you
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