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Stage 4 endo and large ovarian cysts

Ive been stressing since I found out I have grown another large ovarian cyst and got to have laparotomy bikini cut surgery on March 12 so what should I do to prepare for my laparotomy surgery, what should I expect once I get to the hospital, after surgery, and how long will I be in the hospital, I also have stage 4 endo too. I'm in pain constantly bowel problems sleep problem tired all the time also I have to go to the hospital on the 27 of this month I guess for tests so what should I expect for that?
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136956 tn?1688675680
Okay :) good luck!
Helpful - 0
Avatar universal
I really have no other choice I have no insurance and ive had the open surgery once cause I was in so much pain in 2010 that my family thought it was my apindex but when I got to the er it they did the utrasound vaginal and saw a large cyst and then the er docs told me I needed emergency surgery the doc I had wasnt a nice doc the next day well afternoon was my surgery so I dnt kn what they did till I really woke up the next day cause they were checking my incision the doc still wudnt talk to us so when I went for my two week check up I asked him cause my discharge papers weren't right other than two med size cysts were left thats when I asked him and he told me I had a laparotomy and endo I had to ask him to spell it cause I never hurd of it well in dec of 2010 I was in so much pain I went back and fwd to the hospital till my job insurance kicked in I went to the gyno and I had a very large cyst and a med cyst and she said I was stage 4 endo she was talking about lupron but I lose my job so I couldn't go back to her so now its 2013 and I went to the doc was bleeding alot during and after sex she sent me to get utrasound and thats when I went back she said it was very huge very large and that I had a med one too so she had me on the table and asked where I had it done I raised up my stomach and she said thats where she was gonna go in at which im fine with so now im just waiting till the 12 of march
Helpful - 0
136956 tn?1688675680
I can't express this enough, this surgery can be done laparscopically and you want it done by a expert. If you want me to guide you in that direction and to see if one is close to you message me or post here where you live so I can give you some information.

you can read my journals and my blog I have had this disease for 23 yrs and I have done tons of research and raise awareness to help those that are looking for answers and need support.
Helpful - 0
136956 tn?1688675680
I think that you need to way your options if a doctor is doing a laparotomy he doesn't have the skill to be doing laparscopically and it can be done.

I can only tell you from experience and from being an advocate for this disease that you need to find an Endometriosis specialist and there are only a handful of specialist around the world to treat 190 million women with Endo. So that being said don't just accept what this doctor has said and be okay with an open surgery because it can 100% be done with key hole surgery.
Helpful - 0
Avatar universal
The laparotomy is a more serious cause the open u up and they just told me my test are what I have to have before the surgery but thanks for you comment
Helpful - 0
1814032 tn?1392518958
I too have endometriosis. I've had one laparoscopy done. Never had a laparotomy before. I do know that this is a lot more serious surgery than a laparoscopy is. This surgery is when they actually go into your lower abdominal area and hopefully find all scar tissue, cysts ect ... Have you ever had a laparoscopy surgery? This is done with a tiny scope that has a camera on the tip, it only needs a tiny hole to go through, and it's inside of you belly button. My scar isn't noticiable, only I can find it. The laparotomy is supposed to be the best possible way to find and remove all scar tissue and/or endo from most of your organs. I do know that this surgery will cause a longer recovery than the laparoscopy does. I'm not sure what else you can expect though.
I also have severe endo pain, it's really bad these last couple of months and only getting worst. I'm looking for a endo obgyn specialist for my surgery. I also have severe bowel pain, especially in my rectum. I get severe cramping, sharp/stabbing pains in my abdomin, pelvic area and vagina. I was diagnosed with IBS, IC (interstitial cystitis), Endometriosis, and also Anxiety, Depression and ADHD.
I couldn't even tell you what to expect from the upcoming tests you have soon. What are they for??
Helpful - 0
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