Surgery

[snowiscool]

Hi all,

Had surgery over a week ago - so the GOOD news is here is no cancer in there.  What a relief that was.  

The **** news is that I have to have a hysterectomy which means definitely no kids.  I kinda thought maybe I would have one kid in the next couple of years so I have to come to terms with that.

I was in hospital 4 nights instead of one as it was quite complex.  There was endometriosis all over the left ovary and the the adhesions from it had caused the ovary to attach to the bowel wall, the fallopian tubes and the pelvic wall so she had to take the left ovary out and remove all that endo from the other organs.   The ovary was very enlarged and the cyst was still on it and was filled with blood as it was an endometrioma (cyst from endometriosis).

I lost a lot of blood post-op and was collapsing when I went to stand up.  I blacked out twice and once ended up on the bathroom floor and woke up with a pillow under my head and sheets over me!  All I recall was pressing the button for the nurse to come in as I was feeling faint on the loo.  She said she came and I stood up and then put my head on the wall and went down.  She had to get an orderly to help get me back to bed.   The other time I was sitting on the toilet and the nurse was right there and I came to looking at her close up thinking "Who the hell are you and where am I?"  She said I blacked out for 2 minutes with my eyes open! The drain was taking up a lot of blood, more than it should have and I was also bleeding out of the drain as my pjs and sheets were soaked about 4 times with blood.  My doctor said I would have to go  back to surgery as she thought a blood vessel had reopened but thank God it settled and I didn't have to but it left me very anaemic and weak.  She didn't want to do a transfusion though so it just took a few days to build up my blood loss.

Apparently the right ovary is as bad as the left and the uterus has a huge fibroid pushing on the bowel.  The fibroid is INSIDE the uterus which means she can't take it out without taking out the uterus.  The fibroid has added about 1/3 of the size to the uterus yet again. So all in all I'm still kinda trying to make some sense of all this and feeling a bit sorry for myself.  I have 3 weeks off work.   I have no idea how the surgeon didn't rupture the bowel as she showed me photos of how the endo had entangled itself all over the bowel like a vine, yet she managed to get it off without damaging the bowel.  I do have really bad cramps in that area though which she said is normal as the bowel is been aggravated and traumatised.

TAKE care...

[Neta100]

Hi there.  I am so sorry to hear about what is happening to you.   I was in a similar situation as yours since I was diagnosed with a complex septated left ovarian cyst and uterine fibroids.  They ran the CA -125 marker and it came elevated.  My PCP told me he had to remove everything and that I wasn't going to be able to have kids.  I was shocked and depressed, but I started searching in the internet and talking to doctors until I found one that was more conservative and was willing to preserve my fertility and let me be able to have kids.

I had surgery on December 27 (a bikini line incision) and the doctor couldn't see what was going on.  He had to make a bigger incision, but what he found was that I had a big endometrioma and he was able to drain it and preserve it.  He did washings and he told me that the other fallopian tube was pretty swollen, but that it wasn't anything malignant.  The surgery took around 3 hours and I was left vomiting for the rest of the day, but the next day I felt better, with pain but much better.  The only thing was that my bowels stopped moving and I wasn't able to go to the bathroom and was in a lot of pain.

Three weeks later, I am still swollen and my bowel movements have started and I am able to go to the bathroom.  He recommended a 3-month Lupron shot to control the endometriosis and told me to let nature take its course.

I hope everything goes OK.

Best wishes,

Neta

[Sagittarius]

Hi. I had very similar situation like you (plus tumor and minus the uterus situation), but more than three years ago. My right ovary was removed and the endo from other organs. Since than I was on Yasmin pills (for almost three years). But, Yasmin didn't helped a lot and the situation got serious with my left ovary, too. So I had to go to another surgery but I didn't want because in the firs I could die and I was scared of doing taht again! And I had a punction done in may 2008. After that I was on Zoladex shots (they make you go into the condition of an early menopause). Those six months were horrible!! After that, I started with Yasmin again, in order my organism to stabilize and to continue with the next step. I don't know what is the next step. I am going to a doctor next week. I really hope that the things are better, because I can't stand all the horrible side effects anymore! My doctors tell me that I should get pregnant and that will solve my problem at least for a couple years. They think that that is a temporary solution for my case. They are afraid that I could loose my left ovary, too and that there could be some other complications and they are suggesting that is better that before that happens I have a child, because if the worst happens I will be granny without children at the age of 25! Well I strongly hope that the situation is going to be better, because I want kids and I want to be healthy and safe! And I hope that everything is going to be ok with you, too and that you will be healthy and happy, without these horrible problems and taht you will able to have your own child/children! I wish you all the best! If you want to talk about something, I am here. Take care!