I'm 21 years old and I have stage 4 endo and have already had my left ovary removed, and had 3 different surgeries with one being a emergency surgery because I had 500cc of blood in my stomach. They said it was because of my ovarian cyst in my right ovary. I'm in the army and every day I suffer with pain so I know how you feel. My mom had ovarian cancer and endo at my age.I'm constantly going to get my blood tested and scans done to make sure I don't have cancer, because of my endo being so severe. My doctor said it can turn in to cancer and it can spread through out the body .
I have been suffered with endometriosis for 30 years, just like you.
I went through many surgeries. but never get any better. Everyday live ith pain.I realized this disease is still no cure, more surgery will more adhision, cause more disable. I just walk away from Drs, surgery, pain killers.
I tried very hard to live "normal" to work. but after 30 years suffering.
my endometriosis turn to stage 4 cancer. I am on chemo now.
but Endometriosis cancer may have better survive rate than any other woman cancer.
I hope you search second opioin, look more Drs, to eveluation your condition, make sure your pathology stage is not cancer..
I have long years to struggle to find right Drs.
Even I diagnosis cancer, many "expert" still not understand this disease.
many doctors are so confused with this disease. So I suggest you visit
Mayo clinic, Mass Genenal Hospital gyne oncology department.
Please try to see Dr. Anthony Russell at MGH.
He is a great, smart Dr, he will come up right diagnosis and treatment plan for you.
Most important is your courage, never give up. Believe in yourself.
I am with you
Love
Betty
Endo just increases the risk. If it is hereditary then the chances of you getting it are a little more then it would be if you didnt have endo.
I live on Oahu in Hawaii. Right now, I don't have an ob-Gyn because the doctor I have been seeing discontinued his medicare patients. I have a pain management doc, but go to my pcp once a month for medication refills. He has been the primary doc to manage my pain. I have been to 26 doctors in the past 20 years and most of them tell me to have kids to lessen my chances of getting ovarian cancer like my mom and her mom did, and both died young. We are going to try again to have children once we are married next month, but with the stage 4 endometriosis it is like a catch-22. My ex husband and I tried for 10 years with every fertility workup available at that time. Now 15 years later I will try again. Thanks for your response.
Endo might be cancerous and could be on the ovary, but...it is not ovarian cancer as we know it.....it is treated different and quite often with a better prognosis.
I'm so sorry for your troubles.
I don't think one thing (endo) turns into another (cancer).
You might want to let us know where you live in case someone can suggest a doctor they trust to go to for a second opinion.
Look down at the bottom of this page -- righthand column -- for a health page that discusses adhesions. With your doctor's permission, you might try working on that, I guess.
My best to you ...