Aa
Suspect endometriosis
HELP
I have been told I could possible have endometriosis and I am waiting on a laraposcopy. I have been suffering from what I thought was IBS and terrible periods but things seem to have got worse now. I finished my period 3 days ago and since it has ended I've had pains like period pains, this is first I've noticed this and was wondering if this is a sign of endometriosis? Always I have a period for 2 days and then it turns brownish for days. I general feel unwell and tired all the time, no energy for anything. I'm lucky I make my work. Starting to wonder if its all in my head!!!!!!!!
I have been told I could possible have endometriosis and I am waiting on a laraposcopy. I have been suffering from what I thought was IBS and terrible periods but things seem to have got worse now. I finished my period 3 days ago and since it has ended I've had pains like period pains, this is first I've noticed this and was wondering if this is a sign of endometriosis? Always I have a period for 2 days and then it turns brownish for days. I general feel unwell and tired all the time, no energy for anything. I'm lucky I make my work. Starting to wonder if its all in my head!!!!!!!!
It sounds like it could be a possibility.
Have you had an ultrasound done to see if there are any cysts or fluid floating around?
Brown blood is a sign of old blood.
A lot of women are diagnosed with IBS when in fact it is Endo. I am one of those. At age 15 I started to get sharp rectal pains and severe constipation, colonoscopies came back with nothing, same with every other test I had done.
At the age of 27 I was finally diagnose with Stage IV Endometriosis. I also had a recto-vaginal cyst and that might have been what was causing the rectal knife like random pains throughout the month.
Have you had an ultrasound done to see if there are any cysts or fluid floating around?
Brown blood is a sign of old blood.
A lot of women are diagnosed with IBS when in fact it is Endo. I am one of those. At age 15 I started to get sharp rectal pains and severe constipation, colonoscopies came back with nothing, same with every other test I had done.
At the age of 27 I was finally diagnose with Stage IV Endometriosis. I also had a recto-vaginal cyst and that might have been what was causing the rectal knife like random pains throughout the month.
I get the same sharp rectal and also in the vagina during period and sometimes can't go to the toilet. I am waiting on an app for an ultrasound and an app for key hole surgery. I am 24 and at 16 I was put on the pill for the same problems but last year I came off the pill and slowly but surely all old problems came back. Seems to have got worse, taken over my life and I'm sick and tired of it! The pain isn't just with my period now, I get it randomly now.
How are you now after you have finally been diagnosed?
How are you now after you have finally been diagnosed?
Well I had deep infiltrating Endometriosis so they cut deep into the pelvic wall which is crucial as you can't leave any Endo behind. Unfortunately because I was misdiagnosed for 14 yrs it damaged my bladder, bowels, and ureters. I am about 60-70% better but that is only do to excision being done not laser. However there was problems with carbon residue on my bladder flap after my last surgery which is caused by the laser so I am glad that was taken care of as I was peeing 60+ times a day at that point. I also had a partial bowel obstruction that was fixed recently from scar tissue as well. Will I ever be 100% I doubt it. I am on the BCP and have been since my first surgery in 2007. If I come off it the pain comes back and same with the heavy bleeding and I just can't handle that so I stay on it. I am 36 now and I smoke so it puts me at a high risk which is scary.
If you have rectal pain it is a good possibility you have moderate to severe disease depending on what the US says. Have you had a colonoscopy to rule out any bowel disease?
If you have rectal pain it is a good possibility you have moderate to severe disease depending on what the US says. Have you had a colonoscopy to rule out any bowel disease?
No I've had nothing other than an app with gyno who did an internal, listened to the problems I am having and said he would book me in for a scan and a laraposcopy as it could be endo and only way to find out is through this produce
Well they are being proactive and you are lucky. Most women have to fight for an exploratory laparoscopy . :)
Oh don't get me wrong they were willing enough to treat with hormone tablets but I stood firm and told them noway as they don't know for sure what it is and I want it to be checked fully before anything else as I have been dealing with the same problems since I was 15-16.
Yes smart move!! I did the same. I rejected the Lupron and the gyno said it didn't matter if I had Endo or not surgery won't make a difference.
Lets just say I left her and never looked back and yes the surgery did make a difference big time.
Lets just say I left her and never looked back and yes the surgery did make a difference big time.
I think it's ban out of order that they can just hand out hormone tablets to deal with 'endo' if I even have it. I just wanted answers after all these years and wanted to be believed. I was starting to feel it was all in my head if you get what I mean. So I just stood my ground and made sure something was getting done as its taken over my life!! Glad to hear surgery helps if I do have it. How long did it take to recover from surgery and what should I expect after it?
It took 14 yrs for me to be diagnosed during my 23 yr battle with this disease I was diagnosed with about 10 other co-morbid disease but not Endo. If it hadnt had been for that 10cm endometrioma that grew I can say that I would still be undiagnosed. sigh...
My first surgery was radical excision of stage IV endometriois, deep disection of the pelvic floor, removal of an Endometrioma, removal of a rare, benign mensentric cyst in the sigmoid colon, frozen pelvic etc. It was all over I was covered up to my ribs along with massive amounts of scar tissue up the right side because of a previous bowel surgery when I was 7. He also did a presacral neurectomy (PSN) which they sever the nerves from the uterus to the spine to stop the pain signal from going to the brain.
That being said I had to stay overnight as the pain was unbelievable the surgery itself was supposed to be 2-3hrs long went over 5hrs. I was on a morphine drip and a catheter had to be put back in because of the work on the bladder I could not pee. So by noon the next day I was able to go home. Make sure you bring a pillow for the ride home to put on your lap for bumps in the road.
I was in pain for the first week pretty bad, the gas pain is what hurt the most so you will feel pain in your shoulder and that is the gas trying to get out. I went back to work after 2 weeks but couldn't lift anything. After 3 weeks I felt much better and a month much better.
The second surgery was 2 hours long, minimal endo, lots of scar tissue and an embedded ovary in the pelvic floor. Surgeon was not an Endo specialist so she didn't do much and closed me back up. I was better 3 days later and could have gone back to work after a week.
So it really depends who is doing your surgery and what they are doing. My first surgery I was prepped for everything I knew most of what to expect I just didn't know what was going on inside until 6 weeks after the surgery.
What you need to do is ask what their plans are once they go in.
I would make sure you have lots of magazines and movies to watch and make sure you rest rest rest, remember the inside needs to heal even if you feel better after a couple of weeks try not to lift stuff for a while.
Mints will help with the after anesthetic pastiness in your mouth.
I bled like mad after my first surgery and passed a clot the size of a book but eventually went away after a couple of weeks.
try to lie flat to get the gas out and walk around if you can this will help alot.
Have stool softeners on hand because the pain killers will cause constipation.
I think that is all I can think of. If you want to look at my journals I write a lot of articles for a website and it has a lot about my surgeries, meds etc.
Let me know if you need anymore answers :)
My first surgery was radical excision of stage IV endometriois, deep disection of the pelvic floor, removal of an Endometrioma, removal of a rare, benign mensentric cyst in the sigmoid colon, frozen pelvic etc. It was all over I was covered up to my ribs along with massive amounts of scar tissue up the right side because of a previous bowel surgery when I was 7. He also did a presacral neurectomy (PSN) which they sever the nerves from the uterus to the spine to stop the pain signal from going to the brain.
That being said I had to stay overnight as the pain was unbelievable the surgery itself was supposed to be 2-3hrs long went over 5hrs. I was on a morphine drip and a catheter had to be put back in because of the work on the bladder I could not pee. So by noon the next day I was able to go home. Make sure you bring a pillow for the ride home to put on your lap for bumps in the road.
I was in pain for the first week pretty bad, the gas pain is what hurt the most so you will feel pain in your shoulder and that is the gas trying to get out. I went back to work after 2 weeks but couldn't lift anything. After 3 weeks I felt much better and a month much better.
The second surgery was 2 hours long, minimal endo, lots of scar tissue and an embedded ovary in the pelvic floor. Surgeon was not an Endo specialist so she didn't do much and closed me back up. I was better 3 days later and could have gone back to work after a week.
So it really depends who is doing your surgery and what they are doing. My first surgery I was prepped for everything I knew most of what to expect I just didn't know what was going on inside until 6 weeks after the surgery.
What you need to do is ask what their plans are once they go in.
I would make sure you have lots of magazines and movies to watch and make sure you rest rest rest, remember the inside needs to heal even if you feel better after a couple of weeks try not to lift stuff for a while.
Mints will help with the after anesthetic pastiness in your mouth.
I bled like mad after my first surgery and passed a clot the size of a book but eventually went away after a couple of weeks.
try to lie flat to get the gas out and walk around if you can this will help alot.
Have stool softeners on hand because the pain killers will cause constipation.
I think that is all I can think of. If you want to look at my journals I write a lot of articles for a website and it has a lot about my surgeries, meds etc.
Let me know if you need anymore answers :)
Constipation is just part of my daily life or else I am always running to the toilet. There is no pattern at all. Thank you for all this information!! X
No problem whatsoever let me know if you need any more help :) I am sure all will go well, you seem like you are in good hands and that is really hard to come by with this disease so I am really happy for you :)
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