I have an 8 year old child who has being on daily phenoberb for the past 5 years and more. He takes it constantly at night together with Tegrottol 3 hours before the phenoberb. I am beginning to be worried about my child's developmental stage. He talks but not logical, he walks but not stable, he is hyperactive but lacks coordination.
For how long would this drug taking last? Everytime we go to the hospital on appointment doctors say "continue the drugs" because, maybe, he got seiture. Sometimes the doctor that sees us is different from the one that saw him previously hence has no choice than to say continue with the drugs.
What can I do? since the 1st doctor that introduced this drug is no longer working with the same hospital. What can I do considering the fact that my child sleeps calmly whenever he is given the drugs and wakes up feeling drowsy and has short span attention.
Please it may interest you to know that my son had undergone surgery two times (i.e. planting of shunt in his head through is abdomen). The shunt has been removed but certain improvement is yet to take place. Will my son survive? Will he ever be normal? Will he live long couple with the fact that he has being on this drug for more than 5 years?
I need your advice please.