EBV - Reactive mononucleosis

[luna700]

I've been diagnosed with EBV - Reactive mononucleosis, with test results of NA IgG of 600.

My doctor is placing me on a vitamin cocktail with A, B, D, Zinc, Thymus, Monolaurein and Neurochondria. I'm also supposed to be sleeping 9 to 12 hours a night, plus an additional nap of 1 to 3 hours a day.

I'm wondering if other people get a similar treatment plan, and if so, how successful is it?

[fighter261]

I too am fighting chronic reactive EBV.  I am seeing a holistic MD who also found that I have hypothyroidism (taking Armour for that).  She has started me on weekly IV Nutrient drips, which I will do for the next 5 weeks- one per week and then taper to once a month.  From what I've read, the most important vitamin we need (in huge amounts) is C and it doesn't seem to be part of your regimen.  My drip included 25ML of C along with calcium gluconate, magnesium sulfate, all the B Vitamins, Selenium and Zinc.  My schedule did not permit me to start the drip right away as it was a holiday, so I began taking 1000-2000 Vitamin C (w/ quercitin for better absorption) every hour for 5 days and on the 3rd day the debliitating 'brain fog' which had been plaguing me for months suddenly lifted.  It has not come back.  Still fatigued and sleeping between 9-13 hours a night, but my mood is greatly improved and I have hope- which is essential to getting well.  I should also tell you that she has me on Transfer Factor EB Broad Spectrum and Transfer Factor Multi Immune.  After her initial diagnosis a month ago, I ordered an e book by Elizabeth Noble which is incredibly informative and worth the $37 bucks.  She stresses the Vitamin C and also suggest Olive Leaf, which I am also taking.  I'm not sure which of the things that I'm taking is actually helping, but will keep doing them all if that is what it takes.  Have spent at least $1500 dollars on supplements and doctor fees.  Some of it will be eventually reimbursed by Insurance, but they sure are slow!  Good luck to all and I encourage you to do research, ask questions, take charge, find friends to support you and find the right doctor- most eastern medically trained docs have no idea how to treat EBV and will give you the 'it's a virus, not treatable except with rest' line.  For this it is best to combine both traditional and alternatively trained docs.

[9DodgeFan]

Hello, I don't think there are really "EBV specialists" out there, but an Infectious Disease Specialist would be what you're looking for.  They generally have much better knowledge, and have seen more "out of the ordinary" EBV than regular doctors.  Good luck in your searching!

[Looking_For_EBV_Specialist]

I have been looking for a EBV specialist on-line and am not having much luck.  I just spotted your post. Can either of you suggest someone? Or how to find a EBV specialist?
I am happy I am not the only one with this, but not happy for you of course.  I too, wouldn't wish this on anyone.  Everything you both said is SO TRUE!  
A) Yes, lots of sleep. I've been get 8 hrs and creeping up to 9 hrs lately, which still doesn't seem to be enough.  I haven't had a Dr to say get 9-12 hrs.  B) Avoid stress (that's a tuff one when your a human being living life). C) Make better food choices, take vit & supplements. Eating better food is a continual process for me.  It gets better and better each year as I work towards a better & better health plan.
And the comment of those around us, how true.  I can not believe there is no treatment for this. Have either of you tried Glutathione injections?  I had two really good days, but nothing since.

[9DodgeFan]

Hi, it sounds like your doctor has you on the best possible track.  Getting lots of sleep (or at least rest) is the most important factor.  Taking vitamins and eating healthy can possibly help your immune system fight off the infection more quickly.  Other than that, there isn't any treatment that has been consistently proven to beat EBV.  Unfortunately it will probably take a little longer than you would like, but if you can take the right steps, there's an extremely good chance you'll get through this and back to normal!

[GenerationEBV]

Hi. I just posted right above you. I had reactive EBV a year ago and I thought it went away. Was told to rest and eat well and I might get over it. I thought I was over it... felt fine for 7 weeks... then everything started spiraling downward. The sicker I got, the more docs I saw, the more confused I became. Take care of yourself. Get your rest... and when you feel better... keep resting. Make sure it's gone. This awful virus can do anything to you it wants if your immune system lets down it's guard. Relax, meditate, avoid stress... I hope you don't have small children. My children (especially the two youngest) now mimic my illness. I cant walk or talk right. I get stares in public. I continue to work so myself and my children have medical insurance... but I think I might be over-doing it. I have no choice. Work is a struggle. I starteded taking stimulant medication to make it through the day. It was either that or steroids... and steroids weaken the immune system so I went with amphetamines. The doc prescribing thinks its fine but I think I should be resting... not dragging kids to school, babysitter, homework, diapers, forcing my way through work (work is actually easier than the kids). If you can just rest, rest, rest. The longer your sick the more those around you will doubt the validity of your illness. They will think you have developed a mental problem or something. Most my coworkers, friends and family think I am crazy. They cannot believe that no doctor has been able to help me. They offer stupid suggestions. They think I am depressed. NO... depressed is "I don't want to carry on..." - I am "I am trying my hardest to carry on but my will alone is not enough". I hope your outcome is better than mine. I would not wish this on anyone.