Does all of this sound familiar

[BLUE4NOW]

First thank you everyone for posting on this...long story short for me..Dtrs tell me I have Chronic Fatiuge..through my own request positive on Epstein Barr, HHV-6..I was able to stay on the antiviral med of amantadine thru my first doctor which helped me get thru the day...new doctor listens but didnt want to re-new it, worried that it could be worst for me in the long run....i just received some mycoplasm test --blood test 2.5 (normal range 134)  (swab and spit test--negative)  I do have all book symtoms of chronic fatigue----since this all started i was dealing with a rash on lower part of neck---which is now spreading all over head and down neck (now Im loosing my hair)--lymph nodes on neck visible now---hardlly any taste buds left--gums swell every once in a while--constanly thirsty----im tried of running to dts, does everyone deal with the same symtoms?    

[Ree4tu]

I have EBV and HHV6 also and diagnosed with Fibromyalgia and Chronic Fatigue Immune Dysfunction Syndrome. My understanding is if you are taking an anti-viral for EBV and HHV6, the treatment is 6 months and you must combine it with other supplements which boost your immune system (e.g. mega dose vitamin C, Pro-Boost) and hormones (e.g. cortisol and thyroid).
You may want to have your thyroid checked thoroughly-Hypothyroid contributes to immune dysfunction. The routine tests don't always show hypothyroid like in my case.  I had a TSH 3rd Generation test which came back hypothyroid according to the reference ranges my doctor refers to.  Your body has a better chance of fighting chronic infections when the thyroid is functioning normally.

Warm Regards,
Ree4tu

[PlateletGal]

Hi ! I am sorry to hear about your diagnosis, but happy that you are on treatment. Since the antiviral medication was working, that obviously tells us that you need it. However, there are concerns about antivirals because they are immunesuppressants. If you would like, I could PM you a link that may interest you. It is the treatment that I have chosen and after I'm finished with it... I'll see where I'm at and take it from there. There is no prescription necessary for this treatment because the formulas are natural, but they do work and two other MedHelp members are on the same treatment.

I didn't have a rash with my CFS, but I'm hearing that more and more people do. Rashes are also common in patients who have lyme disease... so it sounds like you could have multiple infections.

Here is a link to an article that may interest you:

CFS Patients Subsequently Diagnosed with Lyme Disease Borrelia burgdorferi: Evidence for Mycoplasma species Co-Infections

http://www.immed.org/whatsnew/whats%20new%2011.23.08updates/NicolsonIACFSabstract2.rtf        

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You may want to consider joining the fibro/CFS forum (I'm there with my Co-CL) and checking out the Health Pages (located to the upper right hand of the screen under "discussions"). You may want to consider being tested for mycoplasma infection (two-thirds of CFS patients have mycoplama infections) and/or getting treated. The good news is.... yes... you can be treated ! The bad news is.. the treatment makes you feel worse due to herxing symptoms. It is the same thing lyme patients go through when they are being treated with antibiotics... due to the bacteria dying off in their blood.