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ebv is horrible

let me tell u people ive had it for a year now. the symptoms you read about is only a quarter of it. my symptoms include white tonge, painful swollen lymph nodes , skin problems , testical pain , burning in buttocs, leg pain , lower back pain, hot flashes, mouth ulcers, dhiarrehia, red skin areas , all kinds of numbness and tingling in the body including the genital area. also eye

Ebv resembles all kinds of cancers and stds. i was brushed off and ignored by docs because they did no the seriousness of this virous and how long it actually affects you. i found it takes up to 2 years to go away after the age of 25 im 29 years old. I was treated very poorley at ers and doctors offices. There first assumption is aids , cancer or an std. when the docs tell you it goes away in 2 months its bull thats only  the beggining. maintain a good diet and multi vitamins everyday.
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Avatar universal
ps11,
Thanks for your words, they are comforting and reassuring.
Like you, I am also having trouble accepting my HIV negative results.
I think the main reason is because my health and physical condition is still not as it was before the exposure.

Yes, I had two blood tests (At different dates) for mono, the first was positive igM for EBV, then a few weeks later, positive for IgG. This shows that it was a new, acute infection. This was back in mid November 2014. The acute mono symptoms (sore throat, fever, night sweats, white inflammed tonsils, swollen eyelids etc) all finished around early December 2014. But now the other symptoms - white tongue, dry mouth, dry/flaky skin on face, loose stools, peripheral neuropathy, fatigue - all continue.

Today I visited a clinic again for another full panel STD test including HIV - it is 14 weeks post exposure. The doctor was very dismissive and said firmly that I dont have HIV, he was very keen to kick me out and he didnt want to hear about my symptoms.  He then sent me to a counsellor instead who I spent half an hour with. This was actually useful, as the counsellor explained clearly that I need to forget about HIV, that my negative tests show conclusively I dont have it, etc.

So, I guess I need to find another explanation for my symptoms; but also, to focus on mentally getting back a calm and rational state.

You have given good advice. What do you recommend for boosting my immune system?
I already take Vit D, vit B12, iron supplements daily. I try to eat well and also take lemon/ginger with hot water in the morning, coconut oil, etc.
Let me know if you have any tips.

What is your situation now? Did you find out what is causing your symptoms - it is mono, or something else?
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Avatar universal
Hi wantonjoe,
I promise to you that Hiv is not your problem (without any doubts)! I had exactly the same situation! i had for 6 DUO test and the last one was 9 month after my last exposure but i could not accept the results because symptoms of mono are very similar to the symptoms of Hiv!
Did you do a blood test for mono?
Still i have white tongue and peripheral neuropathy! mono is a complicated disease and everyone has a different symptoms! sometimes it takes more than one year for recovering from mono!
Anyway, try to forget about Hiv and just concentrate to boost your immune system for recovering faster!
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Avatar universal
Hi ps11,
I am trying to forget HIV but i am finding it very difficult, due to symptoms I have which are not normally associated with mono - things like sebhorreic dermatitis, dry mouth/white coated tongue (possibly thrush), peripheral neuropathy, etc.

I had confirmed blood tests for acute EBV mono in November - so i know that I had this. My worry is that I was co-infected with something else (possibly HIV) at the same time.

I have had 4 DUO tests negative for HIV at 3,5,8 and 11 weeks - and 2 rapid antibody tests negative at 10 and 13 weeks. So, I have done the right tests at the right times. But , still I am very worried due to the symptoms still being present.  
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Avatar universal
Hi,
It would be possible! i remember that i had swollen sub-lingual gland in the acute infection.

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Avatar universal
Die anybody have swalen sublingual glands as well and  problem swalowing
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Avatar universal
I strongly recommend you to forget about Hiv!! Hiv is not your problem! Mono is the worst diseases that i have ever had in my life! i am struggling with mono for about 9 months. do not waste your money by doing more Hiv test!
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