eye sight affected

[shawnk]

I have had mono since February 09.  It started out with a 102 degree fever for about a week.  I slowly got better after about three weeks almost back to normal, but then it hit me really hard again at the beggining of april with severe chest pains.  That has all gone away except for being tired of course.  The one thing that hasn't gotten better is my eyesite.  It has been affected since the begging of it all.  It is slightly blurred and a few floters.  It was getting better, but now its to the point I don't want to drive cuz I feel umcomfortable.  I am goin to see a eye doctor tomarrow.  Just wondering if anyone has experienced this and if its something to worry about or will it just get better as mono goes away?

[ginak]

Our symptoms sound very much alike. Interestingly enough, I had been looking at your posts a while back and wondering how your tests turned out. I don't think CNS Lupus is as bad as something like MS or some of the other worse diseases. I have not had a neurologist to suggest this as an option for me. Right now, all I know is that I have EBV and low vitamin D. I have a clinical dx of lyme disease and I am not really sure if I believe in this dx or not. I do have a low CD57, but the ID doctor didn't think this was anything to be concerned about. I too have had a whole host of tests only to be told to wait until September to have another MRI of the head and spine. I have a new symptom of feeling heat and cold sensations in my extremities. I have been told that this is just another parasthesia. I hate not knowing what is really wrong with me because I feel like my life is on hold. I hope that you can get some of the answers that they need without doing the LP. I had one before and I don't think I will ever have another one again. I had a very bad experience with this. I have not had a + ANA, but I had an increased Sedimentation Rate. Right now, I have been to so many doctors, but none of them can seem to tell me what is wrong. I am now thinking of taking the alternative route and have found a Wholistic chiropractor who may be able to help me. I can only hope and pray. You may PM me at any time.

[tia77]

Hi I just read your post and If you don't mind I wanted to tell you what has been happening to me.  Always have had joint pain and numbness in hands and a positve ana with 1:640---In feburary sever chest pain that went around to the back with back pain, muscle pain and cramping in arms and legs.  Numbness in feet and front of shins.  Pcp said I had low vit D.  Went back to rhemy he said fibro.  then had to go to an eye doctor due to a blue flashin light in corner of my eye.  Ordered a mri which I had some spots on.  Went to neur and orderd neck, back mri no spots in cord.  Mra of brain all clear on that.  eeg, baer, and vep all clear.  Went to new rhemy and they want a LP and more specific blood work.  They are thinking Cns lupus.  She also said I just had EBV in my blood.  She felt I had it within a few month.  It seems kind of what you are going through.  My vision still feels off.  A little blurry or something.  Can't put my finger on it.  Eye specialist said I look good.  I have more floaters than I normaly do and I think I get a hazy vision thing looking up and down.  Now I'm wondering if this EBV and low vitamin D is causing most of this.  My chest pain isn't that bad now just occationally.  Back still hurts and the muscle things is pretty bad on some days.  I also get muscle cramps in legs.  I never had any fever that I know of.  I did feel pretty tiered right before Christmas and even canceled my husbands work party.  So maybe thats when I had it.  What is your though?  Sorry to go on and on but I'm pretty scared because I always though CNS Lupus was pretty bad.  

[ginak]

Hello Shawn,

I too have EBV and I have blurry vision and eye floaters as well. This is not uncommon. However, I have a ton of other neurological symptoms. There are previous posts on the forum that talk about dry eyes and eye floaters as well. I hope this has helped you.