loss of vision in dim light

[ukinvb]

Thank you for taking the time for reading my post.  Currently looking at possible ms diagnosis.  Last check up with opthamologist It was mentioned I had occular rosacea and I missed a red color plate.  4 months prior all was fine.  I have been experiencing some double vision and last night lost sight in the right eye it was dim in my room but the left eye saw perfectly the right nothing.  I got up for a while in the light all was fine as soon as went back to bed noticed I could see outlines no detail with that eye.  Had a similar issue driving had to remove my sunglasses as it made my vision bad in the right eye.  Do you think this is something to worry greatly about.  my evoked potential eye test is not till March or my next opthamologist appointment.

thank you

[Sandy Feldman, MD, MS]

Dear ukinvb,

Anytime one experiences a sudden loss of vision, it is important to get checked immediately, to ascertain the cause and possible treatments.  Please go to your ophthalmologist.

Dr. Feldman

Sandy T. Feldman, M.D., M.S.
ClearView Eye and Laser Medical Center
San Diego, California

[ukinvb]

Thank you.  Went to Neuro opthamologist did not really feel I got a complete eye test.  It was more neurological...My vision issues are so intermittent and now I have a new one where I see almost a halo around objects so am seeing them even after my eyes have moved from that object.  Dr. did perform some bloodwork and listed diplopia as reason TSH, RPR B12, Folate and myasthenia gravis panel which I have had many times and to date has been negative.
I do note and he found strange in lumbar puncture high EBV showing re-infect which has been the case for the last 3 yrs and mycoplasma which I cannot seem to get rid of it is up and down and I have been on antibiotics for a long time for lyme and now possible ms diagnosis.  my wbc all were flagged abnormal too low to differentiate although I have had high wbc and neutrophils almost consistently for 3 yrs on my general bloodwork.  seems I am a mystery.  Sadly the cost is high as I am becoming disabled.  I am at the end of my tether.  My eye issues are just the icing on the cake and I still have issues with dim light but have not experienced total blindness since. I have had an eyelid twitch for 2 years consistently and no one knows why and it is a non issue for them. It happened in my 2nd trimester I think of pregnancy and I just thought it was a hormone thing. I have photosensitivity that my primary care physician can verify I did not always have. The eye doc said some people are just like that...I was not.  It is comical to watch for my family not so much for me.   If you shine a light in my eyes they go crazy moving was just in right eye now is starting in the other.  This is a problem as I need sun glasses to drive but then one eye has less vision than the other.  rpr negative TSH seemed within normal range, MG panel not yet back.
I kept hearing maybe the twitch is anxiety? The only anxiety is from the fact they cant treat the twitch!  so after the baby took zoloft did not help just made me put on weight.Came off that, I limit caffiene-not that..  All has to be related just no one has put the pieces together.  People have danced around with maybe lupus, ms fibromyalgia, MG, MS GB, CFS, polymyalgia rhumatica(sp?) connective tissue disease, Parkinsons-you name it.  All know I am sick but dont know with what.  1 doc without even checking my bloodwork had decided maybe I was just suffering conversion disorder-nice- SED at that time had gone from 1-60 in 2 wks wbc elevated to 17 I could not walk or even dress myself.  I wanted to stick the EMG needle in her behind when I found out the results...boy catch all diagnosis-hate them.  too tough to figure out must be nuts especially if you are a woman! (sorry for the rant)
Small non specific foci on brain appeared after baby I use the same machine and slices each time as I had a meningioma incidental finding looking for MS prior to lyme diagnosis and gamma knife in 07 that is stable to date........muscle weakness, pain, fatigue, loss of muscle tone, tremors, incontinence on and off, walking issues, issues with balance, issues watching moving objects, word retrieval issues at times, slurring speech at times,arthritis, vitamin c and d defficiency, sleep issues and boy did I mention fatigue! so big had to name it twice!
Life as I knew it has changed so much.  I used to hike and camp, work full time, travel all over the world.  Now a walk to the park few blocks puts me out for a day or two.  I have an appointment with UVA to see ms specialist 1 doc thinks 95%MS other no MS.  I don't care what they call it I just want it treated.  The foci are specific for something as since the birth of my baby (pregnancy was great almost no symptoms) I keep getting worse and fear that in the proccess of being bounced around I keep slipping through the cracks. I had positive IFA for lyme from IGENEX and positive lyme from IGENEX.  I am sure you know the IDSA /CDC and Lyme controversy and the findings of the Blumenthal investigation. Sadly we are all caught up in beaurocratic limbo and in the meantime going untreated for so long we end up with autoimmune conditions as a result of non treatment of this pathogen and its co-infections.  I am about ready to just give up sit back and just let what will be be.  i have fought for so long and for so many but with my eyesight deteriorating as well as everything else for the first time I can say I am depressed.
I cannot afford to go to the Dr who can treat the lyme as he does not take insurance any longer although he was a respected AIDS Dr. when he began treating lyme he was harrassed and sued by insurance companies...so I sit and pray someone will find an answer so my 4 children can have thier mother back and my husband his wife.
Sorry to blabber on but my eye dr visit was not as planned and for some reason I always hope and pray I can get the help I need. Seems that is not this week.  maybe next week.
Sincerely,

Carolyn Thomas