Macula degeneration in bull-eye form after medication

[Pierron]

Hello,

I am suffering of a Chloroquin-Retinopathy with a classic Macula degeneration in bull-eye form since 2002. Until now, my vision has decreased to 20 percent, although the ************** (drug containing “chloroquin”) which was designated for curing a disease of my lungs has been terminated back in 2002 when the Retinopathy has been discovered.

Unfortunately, I am not able to gain access to any substantial information around this topic in Europe, in particular in Germany, where I am living.

I am kindly requesting your guidance to any information source or contact that might be able to help me and point to potential treatment possibilities. Even a report helping to understand what kind of evolution the disease can take would be helpful.

Could you tell me please if there any research going on for find a treatment and wen yes, where?

I would be more than happy to answer any complementary question you might ask on my medical background.

NB: Please apologize my English, I am French living in Germany.

Yours sincerely,

Paul Pierron

[onlygodknozwhy]

hii
i am Alish and i have dis same disease bull eyez mathlopthy. i am 27. and u can contact me on email id.
***@****

[onlygodknozwhy]

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[Pierron]

Dear Dr Feldman

Thank you for your prompt but disappointing answer.

I hope you understand that, when a patient is spending days and weeks looking for some worldwide information on the web and contacting you on the opposite side of the globe, he is looking for more information than the doctors/professors he consulted were able to provide.
Basically, their feedback during my last five years of research was all of the same kind; they told me that no treatment exists as of today.

In fact, my main question is if you are aware of any research on this topic (for example: genetic-therapy or stem cell therapy or other) and perhaps even of any contact you can point me to.

Sincerely
Paul Pierron

[Sandy Feldman, MD, MS]

Dear Pierron,

I would recommend that you seek the care of an eyeMD specializing in retina. They should be able to assess your eyes and advise on the course. Bring as much information as possible to the visit.

Dr. Feldman

Sandy T. Feldman, M.D., M.S.
ClearView Eye and Laser Medical Center
San Diego, California