What did you ever find out?
my best friend is having this right now & getting no where with the doctors,
Thanks Dr Hagan and flossy93. I looked up Macula OCT. It is one of the tests that were performed on me before. I'll see if they can check again. I sent a message to two different people that had the same symptoms as me. I hope they get the email.
I'm sorry about your hard-to-diagnose vision problems. Not that it makes things better, but you are not alone.
Human vision is such a complicated process that there are many different causes of visual distortion and impairment, only some of which are ever identified through testing. I am speaking from personal experience.
You asked if there was a way to get in touch with the other MedHelp poster who had similar symptoms. You can try to send a message via MedHelp to that person, although if they did not sign up for email notification of messages they may not see it.
The way to send a message is to click on the user's name (just go back to the post you linked in your original message), then choose 'Send Message' in the upper right menu bar when your click brings you to their profile page.
Dr. Hagan's recommendation that your future testing include an OCT scan of the retina is a good one. This may be the ultrasound test you referred to having had done, but having it repeated n is important and may help.
You may already know that OCT is a painless, quick ultrasound test that generates a view of the retinal layers in the macula. It can help show if there is any vitreous adhesion on the retina that can be 'tugging' and causing persistent sparkles or flashing. Some retina surface membranes that can cause similar problems (as well as distortion) are transparent, and difficult to see even with the best diagnostic tools.
I know it's frustrating that identifying elusive vision problems can be so difficult. It's time consuming and mentally draining. I saw three different retina specialists over 4 months before one doctor gave me an answer that made sense to me about a sudden retina problem. And that issue never appeared on any test results; the doctor made the diagnosis based on symptoms and my vision/eye history only.
Good luck with your next appointment. I hope you will post the results of your upcoming visit. Sending positive thoughts up north to you!
Keep your appointment with the neuro-ophthalmologist. Be sure your tests included a macular OCT
JCH MD