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Anyone d/n with FMS also w/Celiac?

I was just recently d/n with Celiac and some family has sudgested it could cause most of my FMS symptoms, I just wanted to know if anyone else has this d/n and had got better from gluten free diet?  
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Avatar universal
Almost all health food stores that I've seen will carry some kind of gluten-free products.  Be careful of taking things from bins, though...they're often cross-contaminated as people use scoops from other bins, etc.  Try to always buy pre-packaged stuff.

Oh and there's a Celiac forum here on MedHelp.  You can ask around there and see if you can find others in Toronto.  I'm sure there'll be a few people who can tell you specific stores in TO that're good.
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Avatar universal
Thanks so much, I am in Toronto so I will see what groups are close.  The only stores that I have found gluten free at is the big chain stores (Superstore)  do you know if health food stores or any specialty stores carry more varity of gluten free?
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Avatar universal
Largely, it comes down to making almost all your own foods.  Rice will probably become your new best friend. :)

When you're looking at processed foods, all you have to do is read the ingredients list and make sure nothing's on it that you shouldn't have.  For most people in Canada, the big ones are:  obvious sources of wheat such as flour, malt flavouring, and commercial-grade oats.  There's a ton of others, of course, but honestly, if you don't see any of those three, you're probably safe.  As for the "commercial-grade" oats, oats *can* be found in gluten-free varieties, usually at natural food stores, but in anything off-the-shelf, they're always considered to be contaminated because they're normally processed on the same equipment as flour.

There's lots of information to be found on www.celiac.ca (you'll especially want to look at http://www.celiac.ca/EnglishCCA/egfdiet2.html), and if you've got enough energy for it and you're in a moderately large city, you can probably join a local group.  See http://www.celiac.ca/EnglishCCA/echptr.html for a list of current cities and their groups.

If you have further questions, by all means, feel free to ask!
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Avatar universal
Thanks so much for your feed back on this issue not, I have been trying to stick to gluten free diet but everything has gluten or wheat in it...I really think I need to understanding what items are ok to eat not so sure on processed foods ( ie veggies, soups, tomato sauce, cream cheese and of course any sweets).  My stomach problems have seemed to clear up from eating mostly gluten free though, I figure if I eat all gluten free maybe I will be symptom free someday.  Any additional advice on how you treat your celiac or gluten intolerance would be great.
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Avatar universal
I've got Celiac and only later did I develop CFS.  There were a lot of similarities in symptoms between the two, though the symptoms from one person with Celiac and the next can differ markedly.

So if you've got Celiac and you're *not* on a gluten-free diet, then yes, the symptoms may resemble FMS or CFS.  If you *are* on a gluten-free diet, though, if it's the Celiac alone that's the cause of the problems, the symptoms should clear up completely within anywhere between 6 months to a couple of years, though often there's significant improvement within as little as a few days or weeks.

You must be *completely* gluten-free to hope for any improvement, though.  Even miniscule amounts of gluten will cause symptoms to go right back to where they started from - though your ability to recover from inadvertent exposures will probably improve over time as you become more healthy with the lack of gluten.

That said, as others have implied, it could easily be that your FMS is something entirely separate and will not respond noticeably to the change in diet (apart from overall health improvements, anyway).
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Avatar universal
I forgot to add, only my stomach issues have improved. Everything else has worsened. I was diagnosed with Celiac 2 1/2 yrs ago, and fibro about a yr ago.
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Avatar universal
I have celiac disease and I have been told I have Fibro. I was diagnosed with Celiac before the Fibro diagnosis. My fibro symptoms have only gotten worse over the last few years. I have not gotten any better.

Just my 2 cents!
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Avatar universal
From what I know about Celiac's is it can cause symptoms of FMS.  I don't have Celiac, but I have a gluten intolerance and adhere to a gluten-free diet, which has not taken away my FMS/CFS symptoms. Many people with FMS/CFS also have a gluten-intolerance. I think if you strictly adhere to a gluten-free diet, you will find out in time if your symptoms are all Celiac-related.

Warmest Regards
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