I was diagnosed with Fibro & Neuropathy in 2009 after having to take aggressive treatments (Surgery, Radiation, Herceptin, Hysterectomy and Oral Cancer Inhibitors) for Breast Cancer (IIIA HER2+), however, I believe I have had it since my teenage years since I dealt with bouts of pelvic/hip pain, joint pain,IBS, and miagraines most of my life. It is amazing how easy it is for people to say it is all in your head when you are not the one suffering. Fibro just got worse after all the treatments and I have tried what everyone else has. However, I have not seen anyone mention the drug Savella which works differently from Lyrica & Cymbalta and it has helped me some. At least I do not feel like dying.....LOL! They say the drugs or treatments are worse than the diseases and they are pretty much right. I would recommend any of you to ask your doctors about Savella because I came by it just doing research after all of my Doctors wanted to put me on the two others that are the usual recommended treatments. My Doctor had not heard about it until I mentioned it. I take 50 mg. twice a day and it has helped me with the extreme fatique, chronic joint/pelvic pain and IBS. I to am looking for another area other than the OHIO Valley......it is the worse area of all! Did I mention I also have allergies??? I have traveled through most of the US and parts of Colorado & Northern CA seems to improve me the most. I now have Lymphedema in my right arm from the surgery for the BC and am now trying to keep infections & swelling down and once again....many Doctors do not know how to handle this condition either. We are still our best advocates/researchers/advisors for each other because we live it!!!
Hi Fibrocan, be cautious of Vancouver, the weather flips all over the place and the huge heavy weather symptoms flared me up terribly, when we used to go 3X a year on course, I was a sick as a dog. I found Victoria was way more stable and consistent. We went there for 2 weeks and I felt like a million bucks! Long term goal is to go there. I was a different person, I had energy, I walked everywhere! I live in the Okanagan valley and there are days where I am bed ridden, and have been hospitalized. The valley is the worst. In the summer 40 degrees in the day crashing to 10 degrees at night. Reaks havoc with my body. Vancouver Island has the most consistent weather in Canada.
I just stumbled on this site, but I thought I'd throw my two cents. I have fibromyalgia and I live in Winnipeg, Canada -- it's cold in the winter and hot in the summer. I find it's not the cold, humidity or heat that make me hurt -- it's the change of season, and the change of weather conditions. We've been suffering a lot with the cold, and I haven't been too bad. But then we have days where it goes from -28 to +4 (Celsius) in one day and then I really suffer. I'm looking at moving to Vancouver, because, while I know it's wet and cool, it is always wet and cool.
Check out the youtube video "Autoimmune Disorders and Immunizations" by a Dr. Tent. Great info
I've enjoyed reading everyone's posts. As we ALL know Fibro for one person is never the same for another person. I'm 46 years old and was diagnosed with Fibro in 1988. Two scenerios in the last 25 years that I was pain FREE. The first, oddly enough, when I was pregnant. Second when I visited Arizona. I have lived my whole life in the Chicagoland area. Where if you don't like the weather, wait 5 min and it will change. Pain levels always changing from mild to severe. I take cymbalta, seems to help mask the pain somewhat, mainly exercise by running to fight off pain, which leads people to think I dont or Cant really be hurting. Crazy as it sounds, If i'm going to hurt, I want to be doing somthing that gives me a reason for hurting, NOT just hurting for no reason. I'm a single parent due to a death of 4 children, my only reason for fighting on, for the last 11 years.
I'm waiting for my youngest to graduate HS before moving anywhere for relief. So scared that moving isn't going to help. Looking at Phoenix or Bullhead City, AZ. Any suggestions. Thanks for Listening.