What should I do?

[Lauralovesollie76]

I've had saliva testing done by two different labs in the last year and a half. One was through my chiropractor and the other was through a natureapath. Both sets of results indicated low adrenal function. The most recent labs indicated that my Progesterone was extremely low.

My main doctor took the results seriously and aggreed that I should be taking the progesterone cream that my chiro gave me. She also referred me to an endocrinologist who I saw yesterday.

I'm currently on Cytomel and Levothroid for hypothyroidism, and am taking a bunch of other stuff for my Fibromyalgia. I'm still so tired and achey all the time. It's hard for me to funciton. There's so much I want to do but I just get wiped out too easily. Even socializing is exhausting.

Anyway, I took an ACTH Stimulation test last week and I got the results from my endo yesterday. She said I was fine and that my adrenal function is not an issue at all. She actually said to me that maybe my symptoms are coming from something in my subconcious. "Depression can make you feel this way", blah blah blah. I tried to tell her that I know what depression feels like, and I've never been physically debilitated the way I am now. I'm not withdrawing from activities because of depression. My desire to live my life is very strong. I know there's something wrong with me.

That really offended me and I knew that she wasn't someone to get any help from. She also made light of my saliva test results and pretty much said they didn't mean a thing, (they aren't reliable at all).

Where should I go from here? I CAN'T accept that this is my life and this is how I'm going to feel for the rest of it. For the first 28 years of my life I felt a certain way, I'd call it normal. I had a great career and social life and I'd like to resume all of it. I'm tired of being told that depression is the only cause here. Taht doesn't help me at all. I'm already taking Wellbutrin for my Fibromyalgia, and I live a very calm and healthy life. I don't have any stress. I've taken steps to insure that I'm getting rest and avoiding people and situations that arent' good for me. My life today is very satisfying, escept for the chronic tiredness and weak, achey body.

Any advice?

[LLWB]

I just started Lyrica about a month ago. Before I started taking it, I did nothing but work and sit on couch. Now I have been swimming, and walking a mile a day. My outlook is so much better. My dr gave me samples, until we hit the right dosage. It was just approved for fibro recently. I suggest you give it a try. I also take Cymbalta, so I think the Lyrica would work well with the Wellbutrin. It somehow blocks the nerve pain. They don't know how, but who cares if it works! Good luck. I know how hard it is to want to do something, and just don't have the energy. Good luck.

[ItalianMama3]

Hi, I live in the Seattle area and I had good advice and help from the Fibromyalgia & Fatigue Center here. There are about 16 centers all over now and were started by a man who had Fibro and was given the run around by Dr.'s for years. http://www.fibroandfatigue.com/   Also Dr. Teitlbaum  https://www.endfatigue.com/home.nsf - I have gone to one of his seminars... there is a good line of supplemnts from Enzymatic (get it at Super Supplements or most health food stores) The Fibro center you'll have to pay upfront and bill your own insurance company, but my first and second visits alone were worth it. We did very extensive blood work and it was so great talking to a Dr. who knew everything I was going through. I was diagnoised in Nov. 05' with CFIDS and Fibro, I have EBV and am Hypothyriod, produce no progesterone as well. So I definately know what your going through.  There has been good and bad times. Your doing the right things with stress management and it'll get better especially having someone who really knows this illness inside and out!  I went there for about a year and with what I learned I have continued care seeing my ND and a NP for all my needs now and nothing out of pocket but copays. Hope this helps!