Fibro/cfs SUFFERS?

[bonster4097]

CAN you please describe your pain?  I have not been diagnosed, but feel i have it or something similar due to the fact I am, and have been for years sore all over.  You know how someone is talking to you and they say "hey, oh, guess what" and the whole time they talk they poke you in the arm???? OMG that hurts so bad, and they freaking laugh and call me a whimp.  now my schins, my thighs, my back, my ribs. It's all so tender. I think I may have something else too! and there are so many categories it falls under. Mostly it feels like something is crawling on me, like a hair or something, and i have to grasp at it, and nothing is there. LIke I get a numb/yet burning, tingling prickly feeling.  Then this happend the other day so strongly and has only happened twice, that prickly feeling got so intense it feel like sharp needles poking me. I have no diabetes known of? according to doctor tests were normal. I have not been tested for fibro yet? I have obesity, and if you don't have obesity then you won't understand that the doctors don't treat you good. they get in a hurry and get you out and blame it all on weight. Well granted and I accept I need to lose weight, which is my fault due to my GAD, depression, and the fact i like food!, but still i hurt and it affects my job, it affects my social life, i won't go anywhere i don't have to because i am in so much pain. What if I were of normal weight and I hurt like this? what would my doctor do then?  UGHHHHHHHHHHH !!!!

[raerae0027]

HI,,I was diagnosed with Fibromyalgia 5 yrs ago,,,every single symptom you described is what I feel on a daily basis.  The tingling,,burning,,needle poke feeling is caused by your nerves,,now they have a wonderful nerve pain med Lyrica which was approved for Fibro sufferes and it is a miracle,,it doesnt completely take away my symptoms but it helps in a major way.  I would get to your doc or find a new doc and tell them you have been doing a lot of self research and you feel Fibro my be the culpret.  I got diagnosed at a neurologist maybe consider contacting one.  I hope you can get diagnosed properly and start feeling better soon  :)

[PlateletGal]

Many of the fibro/CFS experts recommend supplements and/or other medications (not Lyrica) to help manage your illness.

I'll send you a link if you would like to the latest treatments for fibro posted online by the experts. Let me know....

Best,

PlateletGal

[Jamy11]

excuse me for not using caps..i'm not feeling good today....i can't answer all your questions-i'm sorry..i've worked SO HARD to lose weight as i'm not active at all just because i have arthritis too so i have to lay on the couch a lot some days.....!ST!!!!! i am so sorry to hear that your new DR and nurse were such pains in the butt...i get scared with new DRS too and they make me SO MAD when they are in a hurry...i can understand why you don't want to go back now...CRUMB for you bonster....yes, i have fibro and arthritis....i can't take Lyrica or Cymbalta, because they give me the "runs" but a lot of people say those drugs help their fibro...my pain is so far gone that i take stronger drugs but again, i have arthritis with my fibro....i'm just SO SORRY for you.....PUT "firmyalgia symptoms" in a search engine like GOOGLE, or ASK.COM bonster to get an idea what the symptoms are.  maybe someone else can help you here.
hugs
jamy

[bonster4097]

ty so much for your kind replys. I am planning something for this I don't know what yet. I used my new doctor for one day. He and his nurse were in a big hurry with me, and I knew right then it was a big mistake, although their AD advertised specializes in depression, obesity, hypertension, etc. I was so excited that I may have actually found a doctor that would listen to what I have to say and go from there. I do rattle on because I get nervous, so doctors should realize that, shouldnt they. Now i'm scared to go, because I don't trust them now. I don't know what to  do as of yet, because I do understand about the weight, but it is also a huge addiction (food, bad kind). I really like my job, and I wanted to prove to my boss that I can be gr8 and now I can't hardly get around. Yes i'm exhausted all the time, and I'm so stiff and sore all over.  But I will try the stretches. Unfortuneatley I cannot walk that far yet. what kinds of medicines do ya'll take? do they help? and by the way I am very sorry for your multiple diagnosis kit, how do you do it? and to you also Jamy 11 ,  I assume you have the fibro? thanks hugs to you both

[Jamy11]

I was diagnosed with Fibromyalgia  by a wonderful DR but then I had to move and hate my DR now.  You need to get to a "rhumatologis"-I can't spell it.  ASK their office if the DR knows how to diagnose Fibro 1st.  You can also go to a "regular" DR too, but ASK if they know how to diagnose Fibromyalgia 1st, BEFORE you make the appoimnent.  You sure sound like you have it to me.  You have SO MANY of the symptoms.  My DR knew the 12 tender points to touch and then with my symptoms too, there was NO DOUBT.  Let us know what a DR says.  I have the creepy crawly thing that you have too.  I'd get to a DR that knows how to diagnose FMS.  Are you exhausted a lot too.  A lot of times we get chronic fatigue with this too.
Hugs---Jamy

[kitonthemoon]

Hello,

My heart goes out to ya about how your doctor treats you.  Not fair!!! Not ethical!!! (check your private message from me).

I have ME/CFS,FMS Addison, and Hypothyroidism......all of which causes pain. Sometimes, I "ouch" really loud when my husband touches my back. I have all the pains your described.  Some pains comes and goes, like the needle eletric shock pains.  Some pains are always there.  All pains intensify when I have a 'bad'day.  

After I learned yoga stretching.......my pains somehow lessened.   Many doctors believe mild stretching does help FMS,  IF, that is wha you have.  Try stretching like 2 minutes at the begining, and ease into 5.  See if it helps.  Meanwhile, you can even self check if you have tender/trigger points by following the chart from some FMS sites. Look for a rhumy, they are usually familiar with where those points located (or a GP who is knowledgeable).

Try not despair, you've have friends and support here.

Kit