Does anyone else have blood pressure problems when standing

[Melissa70817]

Today I went to my doctor.  I parked pretty close to the door, I figured I would have no problems making it inside if I tried to walk fast before feeling faint.  I got inside, went up in the elevator, got to the check in window and felt like I was going to pass out.  Of course the woman in front of me had a zillion questions.  I got to the point that I had to squat at the window waiting for the woman to finish in front of about 30 patients in the waiting room.  How embarrassing...FINALLY its my turn and the receptionist can see that I'm not feeling good.  Well, since I'm private pay because I have no insurance she has to go gabbing with everyone in the office about how much to charge me.  I literally have my head on the sign in counter leaned over because I can feel myself slipping.  FINALLY she tells me to go sit down.  She didn't have to tell me twice.  About 15 minutes later the nurse calls me back and takes my blood pressure, she has a puzzled look on her face and does it again and then again.  My blood pressure has always been perfect.  Well, this time it was 81/56.  Now wonder I felt like I was going to pass out, I WAS going to pass out.  While sitting there talking to me my blood pressure started going back up.  He sent me for more blood work and told me that if there are no findings he will have to send me to a specialist.  He told me what kind but I cannot remember.  The whole day cost me $500.00, I hope my medicaide application goes through before I lose everything that I own trying to find out what is wrong with me.  There is no way I can go back to work with this condition.  I cannot stand for more than a few minutes at a time.  I can't even wash dishes anymore.  If I get up to go to the potty I'm feeling dizzy before I get there.  UGHHHHHHH....   Is this a never ending battle or what?  Its like I told him, give me the pain just let me be able to stand, at least you can find the will (along with the lortab and soma) to fight through the pain but there is nothing you can do about these dips in blood pressure when standing.  
I can feel myself losing hope again but at least I have you guys and for that I'm grateful.  Does anyone else experience this?

[PlateletGal]

Fingers crossed !

[Melissa70817]

I hate that you all have this but it is good to know that I'm not the only one.  I am also finally glad to know that it is my blood pressure and not some sort of unknown "spell" that I'm having, which I thought is what it was for years.  With fibro you really forget ALL of your symptoms when you go to the doctor or at least I do.   So, normally when I go my "spells" were not brought up.  I've had them all of my life and I guess it is something I've just grown use to living with so I never thought to tell him.  It really does help to keep a list of all of your symptoms and bring them with you to your appointments.  I finally received my bank statement yesterday so now I can get medicaide what they need to either approve or deny me.  Keep your fingers crossed that I am approved.

[plmrsm8]

I have the same thing.  I terrified my youngest daughter when I was up there.  I got up to go to the bathroom and colapsed before I hardly got off the sofa.  
Sometimes I don't go all the way out, but my my face, neck, arms feel tinggly.
I do experience CFS and have a mitral valve prolapse and low blood pressure.

[PlateletGal]

Hi Melissa,

FM patients complain about pain... whereas CFS patients # 1 complaint is extreme fatigue. However.. just like in autoimmune conditions, many FM & CFS patients will have overlapping symptoms and/or conditions.

I know you feel bad. POTS alone can be disabling.

Hang in there.... the puzzle is being solved and there is treatment available.

[Melissa70817]

I have read that this is more hand in hand with CFS instead of FM, I wonder since FM and CFS are so close if I actually have CFS instead of FM.  I guess it doesn't matter which I have, its still painful.

[Melissa70817]

I just read a little about it and it sounds like it hits the nail on the head!!!!  Thank you so much!!!!

[PlateletGal]

Yes... you may want to do some research on POTS (postural orthostatic tachcarydia syndrome)

Hang in there, Melissa... and feel better soon.