Hi, about 15 years ago I was told I had a high positve ANA 1:640 and that I had chronic fatigue syndrome and possible mixed connective tissue disorder. At that point in time I think my symptoms were too vague for a full diagnosis.
My new doctor discounts the ANA completely and says I have fibromyalgia. I just hope he's not missing something.
I too have high positive ANA, just saw Dr. Monday. He said I don't have enough symptoms to say I have Lupus. It could take years he said, to have all symptoms.
So, they just treat what I have with my fibromyalgia. I just started Lyrica Monday. The first night was rough, but after that I am doing fine and not really sleepy all the time like I heard. Good Luck! But if you feel he has missed something don't give up, you know your own body.
Was the ANA repeated? If not, it should be. I think your first doctor was correct. It sounds like you may have fibro secondary to an autoimmune disorder. If the ANA is elevated then there is inflammation. There is no actual inflammation in true fibro. All lab testing comes back normal.
12 years ago I was diagnosed w/ Fibromyalgia by an internist at Mayo and Possible Mild Lupus and Raynaud's by the Rhuematologist at Mayo. They could not agree.
Now, 15 years later, a different rhuematologist at Mayo says he doesn't think I have Raynaud's, no lupus and that he can't put any weight on the positive ANA since he and his collegue wrote a paper in the subject noting that 96.6% of the healthy population has a positive ANA. Everything I read has much lower %, more like 5-20%.
Anyway, he said I clearly have Fibromyalgia and did not do tests for any other autoimmune diseases. I have a lot of nuerological symptoms too that I don't think fit the "Fibro" profile. Probably time to get a second opinion. : )
i was partly diagnosed with connective tissue disorder -fasciitis, this has also been partly diagnosed as fibromylagia (fibromyalgia) and i also have carpal tunnel syndrome (pains in both hands with swelling) i cant understand why my gp is only able to give partial diagnoses, has anyone else had problems getting a firm diagnosis, i am only really being treated with painkillers, i have tightening of my skin and pain in my muscles, i use crutches to get around is there a test i should ask my gp for to get a firm diagnosis? the docs also thaught i had raynauds disease but arnt clear about it and hace now decided its carpal tunnel. i had my colon removed and have an ileostomy due to severe bowel problems (again no firm diagnosis but suspected chrohns disease) i have problems with my liver and heart which i am told could all be connected somehow. is there anyone who is going through a similar condition as i feel so alone in this as i dont know anyone with similar.
I, too, have a very high positive ANA titer (1:640 - speckled pattern). Please check out my post on the health pages. Many fibro and/or CFS patients have a positive ANA titer and some autoimmunity issues:
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.