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Fibromyalgia and RH negative blood group
Hi
I'm interested to know if there are many FMS sufferers who have a RH Neg blood type. I have seen quite a few people on forums who have FMS and are also RH Neg. Does anyone know if there is a connection? I would be very interested to find out.
I have been diagnosed with FMS and also have a RH Neg blood type.
I'm interested to know if there are many FMS sufferers who have a RH Neg blood type. I have seen quite a few people on forums who have FMS and are also RH Neg. Does anyone know if there is a connection? I would be very interested to find out.
I have been diagnosed with FMS and also have a RH Neg blood type.
How did you find out you have EBV? I had some tests results that came back very high for it. The test was done because of all the chronic fatigue, but I never went to the infectious disease ctr. and one of my doctors just said 'almost everybody has had mono, and those tests didn't mean much', but to me it looked like the results showed positive for it being active. The test results are difficult to read, and one doctor thought I needed to get it checked out. I have fibro, Rhumatologist said that this goes along with hypermobile joints which I have, and I believe I have Ehlers-Danlos which is one of the symptoms of the hypermobile joints. I have all the criteria for that condition. It is a collagen problem.
Just one more thought, just went on the EBS forum and you have a lot of symptoms of the people there. Have you ever had Mono?
I'm back, and wanted to proof read what I wrote last night, and it needed some things, as I suspected. One is the meds, I take the Amitriptyline only at night, and I skip the Oxycodone on the better days and then double up on it when I'm having a really extra bad day. And one of the last sentences didn't make sense about checking for mistakes, anyway I guess sometimes the body just goes haywire. But, I have felt bad on and off my whole life, even as a child, I just didn't know everybody didn't feel this way. I think the endocrine system has something to do with it. I know this is going to sound crazy but in the research I've been into with the incompatiblity with the RH-blood is this; Most people know that an RH- mother carrying a positive fetus, a child with the D protein, I believe it is D, the mother will try to destroy if she has been sensitized to this protein, and this is not an absolute fact, but I read this, and it makes sense to me, but a lot of negative blooded people will end up with some inherited positive proteins that are alien to our genetic makeup, and it causes the immune system to become hyperactive and a number of other problems simply because these bloods do not match. Of course people can certainly have problems like ours without this being connected but I've been in touch with a lot of people studying this and so many of them have these exact problems and the doctors are mystified on what is causing the problems. I didn't realize until recently that Fibro can start off with extreme fatigue as if one is coming down with something, which I've had for yrs. I never considered fibro as my condition because I did not have the standard
trigger points, or places of pain. All, this really ramped up after my hysterectomy 10 yrs ago, and had complications with that and nerve and muscle damage. But, it really does make it bad when you struggle to keep up and nobody understands, and I just don't really care anymore, and I take my pain meds, and make NO apologies for doing so. I feel so bad for you, and this business of having pain high in your chest means something is wrong, lying down is the only time I get relief? And, how in the world do you tolerate aspirin? I am severely sensitive to aspirin, you talking about a belly ache now! Some people, maybe you, can take it without problems, but it will burn your stomach up after a while. Ok, lets get to the bowel thing, I know you mentioned constipation, so have you been chronically constipated? A lot of people do not take these bowel issues seriously, but I do, it can make you feel horrible when that is not right, the bowel is a very important organ. I just heard a story about a woman having some kind of horrible pain, forget exactly what, but the doctor did an x-ray and she was impacted higher up. But, I make sure this is under control by eating a lot of fiber, like fruit, nuts, mostly a vegetable diet, and red meat messes me up for at least a couple of wks, drink lots of water but most of the time I drink a high fiber flakes with about 5 grs of fiber, these little old capsule (I finally discovered) are about 1 gr., but I mix Miralax with this, most every night especially if I have not had much fiber during the day. Miralax is expensive but they do make a generic and it works, but the main thing is regiment, regiment, regiment. I have to because of the meds I take, and being on meds particularly makes you feel bad to be constipated because of the build up of the toxins in them.Plus, the problems I have now from my particular condition, being pelvic. I also make a drink in my blender of fresh pinapple, apples, grapes, ginger, carrots and a couple of leaves of Kale, and a dash of honey if needed, but usually you don't, I also do use a little of some kind of juice, but grape juice is not a good one, cranberry, or orange is good. I do it in the blender because you don't lose the fiber that way. I have a juicer, but I think it is better to keep the pulp in it, and it is a little thicker, but I love it and it is just about a meal, especially if you add yogurt. You also may have a Gallbladder problem, or an infection somewhere, but you really need to find a good doctor to figure out this thing. I hope some of this helps. I have spent yrs researching all this stuff, but there are several areas of the body like the heart, I don't know much about. The other thing is the Thyroid, many people have pain issues because of this, and a lot of time the doctors will not treat you for Hypothyroid, if it is subclinical, which mine was, but even with a small dose of synthyroid helped me when finally I found someone who would treat it. Thyroid also affects your memory, big time. Anyway, I've said enough.I do hope you get some help, I know the desperation, and isolation you feel, my husband has not been very understanding that's when I turned to the computer, and I have had to diagnose everything I've had. But, seriously, you need to get some kind of scan for that pain when you lie down, you could have some kind of tumor or something. Keep us posted, you're in my prayers. Forgive me if I repeat myself here on this forum, sometimes it is weeks or months since I've read yours and my replies, and I just read yours way up there, and got a lot of the answers I was going to ask, and i did see that you have scans, and if they can't find something I would definitely try to find someone to give you ENOUGH pain meds! I know it is difficult now here in the states because of all the abuse on the streets don't know how it is there, but you need something to give you some kind of life. I am finally on a regiment that at least gets me by, and I do have somewhat of a tolerable life, but I am propped up on the meds, and they don't make me drowsy or anything. I do take Vyvanse which is a timereleased stimulant, a small dose, and that was a life saver, but it does scare me to think I couldn't have it, I would just have to lay down I guess.
Keep us posted.
trigger points, or places of pain. All, this really ramped up after my hysterectomy 10 yrs ago, and had complications with that and nerve and muscle damage. But, it really does make it bad when you struggle to keep up and nobody understands, and I just don't really care anymore, and I take my pain meds, and make NO apologies for doing so. I feel so bad for you, and this business of having pain high in your chest means something is wrong, lying down is the only time I get relief? And, how in the world do you tolerate aspirin? I am severely sensitive to aspirin, you talking about a belly ache now! Some people, maybe you, can take it without problems, but it will burn your stomach up after a while. Ok, lets get to the bowel thing, I know you mentioned constipation, so have you been chronically constipated? A lot of people do not take these bowel issues seriously, but I do, it can make you feel horrible when that is not right, the bowel is a very important organ. I just heard a story about a woman having some kind of horrible pain, forget exactly what, but the doctor did an x-ray and she was impacted higher up. But, I make sure this is under control by eating a lot of fiber, like fruit, nuts, mostly a vegetable diet, and red meat messes me up for at least a couple of wks, drink lots of water but most of the time I drink a high fiber flakes with about 5 grs of fiber, these little old capsule (I finally discovered) are about 1 gr., but I mix Miralax with this, most every night especially if I have not had much fiber during the day. Miralax is expensive but they do make a generic and it works, but the main thing is regiment, regiment, regiment. I have to because of the meds I take, and being on meds particularly makes you feel bad to be constipated because of the build up of the toxins in them.Plus, the problems I have now from my particular condition, being pelvic. I also make a drink in my blender of fresh pinapple, apples, grapes, ginger, carrots and a couple of leaves of Kale, and a dash of honey if needed, but usually you don't, I also do use a little of some kind of juice, but grape juice is not a good one, cranberry, or orange is good. I do it in the blender because you don't lose the fiber that way. I have a juicer, but I think it is better to keep the pulp in it, and it is a little thicker, but I love it and it is just about a meal, especially if you add yogurt. You also may have a Gallbladder problem, or an infection somewhere, but you really need to find a good doctor to figure out this thing. I hope some of this helps. I have spent yrs researching all this stuff, but there are several areas of the body like the heart, I don't know much about. The other thing is the Thyroid, many people have pain issues because of this, and a lot of time the doctors will not treat you for Hypothyroid, if it is subclinical, which mine was, but even with a small dose of synthyroid helped me when finally I found someone who would treat it. Thyroid also affects your memory, big time. Anyway, I've said enough.I do hope you get some help, I know the desperation, and isolation you feel, my husband has not been very understanding that's when I turned to the computer, and I have had to diagnose everything I've had. But, seriously, you need to get some kind of scan for that pain when you lie down, you could have some kind of tumor or something. Keep us posted, you're in my prayers. Forgive me if I repeat myself here on this forum, sometimes it is weeks or months since I've read yours and my replies, and I just read yours way up there, and got a lot of the answers I was going to ask, and i did see that you have scans, and if they can't find something I would definitely try to find someone to give you ENOUGH pain meds! I know it is difficult now here in the states because of all the abuse on the streets don't know how it is there, but you need something to give you some kind of life. I am finally on a regiment that at least gets me by, and I do have somewhat of a tolerable life, but I am propped up on the meds, and they don't make me drowsy or anything. I do take Vyvanse which is a timereleased stimulant, a small dose, and that was a life saver, but it does scare me to think I couldn't have it, I would just have to lay down I guess.
Keep us posted.
I am so sorry to hear this, and yes I know exactly how you feel, but I do have the meds that hold me up, thank God! Red meat I just can not digest, at least for days, so I stay away from that,even though I feel I need the protein, and the other things it provides. At first I did not know that all that you describe is all the symptoms of Fybromiagia. Usually, they talk about certain parts of your body that hurts, but I hurt all over, and burn, and some days it is not very bad, and other it is H----! And yes, I have read hr. upon hr. about all the different things concerning all that we have talked about here, including Magnesium. My memory comes and goes, sometimes it is better than others, and I do think it may have to do with foods, but I basically eat the same foods, and I eat well, as far as a good diet, and I drink plenty of water. I take Amitriptyline 25mg. but I also take Lyrica,which has caused weight gain, but it helps a lot, and I take 4 Hydrocodone, of 10-325 a day plus I have a script of 1 Oxycodone a day, and I just take double on the days I need and none on the days I need it, but the MS Contin, which is time released does help, which I have had in the past, but because I changed dr.s started all over, with the lowest dose. Anyway, I think there has to be a virus, or bacteria, or some kind of autoimmune disorder that causes this. I have spent a lot of time looking into having RH negative blood, and even if you don't have negative blood, if it is in your family it can cause problems. My heart goes out to you because the doctors don't have a clue. Don't feel bad about going on and on because I have been going on and on for over 10 hr.s now. And, it is funny that the memory thing is involved in all this, because I have problems with this now for yrs. Research Fibromyalgia, and you will see a lot of the same symptoms. I am A negative blood type, and I think that is one of things that causes some of the problems we have. I have to go, sorry, I didn't have time to read over this to make check mistakes. Write back anytime, I know you pain.S
Hi, again it's late, 4.00am here in Scotland, and I'm up because when I lied down to sleep I am in so much pain in my chest, I feel like my heart is being squeezed and the pain goes through my stomach, down to my groin and down my leg to my toe, this happens every night, I dread going to my bed more and more. I am so exhausted and drained I just want to fall into a deep sleep where my whole body feels like it's rested, this only happens to me once in a blue moon, especially if I have had 2 or three nights of sleep deprivation and have not ate certain foods. I have tried the elimination and introduction of food stuffs, but I always revert back to my craving for starchy foods and sweet things. I feel at the end of my tether tonight, I have no motivation and feel quite depressed with this quality of life! My gp's just don't know what is wrong with me, I have not been to see a doctor for months because I just fear they will send me away again and still not have any answers for me. Sometimes I feel I can't go on with this anymore. I am sick and tired of feeling exhausted and in constant pain, burning, aching, throbbing, sickening, stabbing, piercing, palpitations, feeling like my heart is going to give out on me, forgetting things that people have just said to me, my short term memory is getting worse, I have constant headaches, I think the worse thing for me is the fact that I can't sleep properly. The only medication that I am on just now is Amitriptyline 25mg for nerve pain, which is supposed to make me sleep, Omeprazole 40mg, for my stomach acid, and Ibuprofen and paracetamol. The doctor had me on Diclofenac 50mg but they made me so constipated and the surgeon in the hospital told me to stop taking the diclofenac and start taking 75mg of aspirin per day instead. I am confused and need help. Also, I used to take antioxidants and magnesium tablets, but have not took those for about a year because my GP said not to because an alternative therapist prescribed them for me!!! I am thinking of going to private health care to see if I can get better results. I am looking into the 'Eat right for your blood group'...I too am killed with pain in my chest and stomach and spleen area when I eat red meat and certain other foods! Sorry I have went on and on! Thanksgiving, thank you very much for your expertise and advice x
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