Fibromyaligia

[TammyT1]

I am one of the lucky people who have no health insurance so over the last three years I have self diagnosed myself with Fibromyaligia.  When I first start out with the pain my husband end up taking me to the emergency room because I hurt so bad one night I could not hold a fork to feed myself.  The hospital said that I had lymes disease.  (wrong)  I followed up with a family doctor and he said that was not the case but he had no idea what was wrong with me.  To say all of this to lead up to my question....sorry.

I have knots that come up in my head is this from fibromyaligia?  I also have a series of knots that will appear on my right side.  I guess I just want someone to tell my they have these crazy symptoms too.  

[patsy10]

I would not be so sure it isn't lyme disease.  It's hard to diagnose.  Few family physicians know enough about it.  The testing is not very accurate.  A negative test does not rule it out.

I have those knots in all different places on my body.  Mine are most likely from lyme disease.

[VaBreeze]

I'm sorry you are in so much pain.  I think I would be more inclined to trust the hospital's evaluation (since they have the labs there).  Did your physician or the hospital do a Western Blot to rule out Lyme?  I understand that the symptoms of FMS are very similar to those of Lyme Disease.  I would wish you had neither of these.

When one mentions 'knots' I think of a lump type feature...like if it were on the skull it would be something that is protruding/bulging.  I haven't experienced that with FMS, although I have had times where my hair felt sensitive to the touch (which is actually the skull being sensitive).  

I hope you can get some relief soon.  I know it's no fun to be in intense pain.  Take care please.

[aurora2779]

These knots you get do they feel like cramping of the muscle? I also have fibromyalgia,and man oh man it is not fun. Some drs say it doesnt progress or get worse over time but i would strongly disagree with them. Back to the knots. I get those alll the time. most of the time its in the backs of my legs and my shoulderblades and arms. I also dont have any insurance so i pay out of pocket to see a pain specialist. Anyways I think the knots you are experiencing are the ones i have and they are called myofascial pain syndrom. you can google it and learn more about it. Sorry to hear you are in pain, and wish i could tell you it will get better. im still in denial myself and push myself too much and end up paying for it days later because i cant move.  

hope this helps....good luck