Help! Sick but undiagnosed.

[JLMe]

I am a 46 year old woman who has been experiencing hand and foot pain almost constantly for 3 months.  At times my feet get cold and then they start to burn.  There is no warmth but the palms and soles turn a reddish color.  The reddish color does not involve my arches of my foot. This can happen when I have been walking but can also happen upon awakening.  The pain is usually temporarily relieved by warming them (either gentle massage or placing them under a cover).  My hands ache especially when I have to drive (holding the wheel) or hold the telephone. I have been put on neurontin for this with minimal improvement.  
I also have random aches and pains such as right sided neck pain (believed to be muscular, however I do have swollen glands that keep coming and going in my neck), occasional back pain, and I have had a sore throat for almost 4 weeks.  I have muscle twitches as well.
Lately, my tongue has been extremely dry and irritated (as if I burned it sipping hot coffee).  I have been drinking more water, but this has not helped.  Also, I have had recurrent cyts in my underarm and vaginal area (sebaceous cysts).  I am on antibiotics now.
I have had alot of bloodwork done (including rapid HIV and Lyme, but no mononucleosis test though) which only revealed vitamin D deficiency.  I have been taking replacement and since then some of the aches and pains have gone away.  I have also had Xrays of my feet and EMG/NCV which showed mild carpal tunnel. Neuro says MAYBE FIBRO but Rheum says NOT FIBRO, something else.  Any thoughts anyone? I am miserable.

[JLMe]

This is JLMe.  

Thanks 30poundsMore.

Add to my post:  now I notice my tongue seems full.  It hurts and the pain corresponds to the area around the edges which have a scalloped appearance!  It is affecting my eating habits because it burns when I eat something.  What the (bleeeeep) is wrong with me??  Is this part of fibromyalgia?  

[30poundsMore]

Remember, Fibromyalgia is a name for a plethora of symptoms, not an actual disease caused by one thing.  I used to get mad an confused when and old time friend and Natural Health Practitioner would tell me this, but he was right, Fibromyalgia is an Immune System Disorder that was (is) TRIGGERED by Something, if you can just pin down what "It" was, Maybe you can get some relief, you cant help your body if you dont know what caused it.

Don't give up, i hope this helps


Wendy.