I just had a nasty experience w/ a first time appointment w/ a physician and she had the nerve to tell me that she doesn't believe in FM and said it just means I'm severely depressed and that I need to see a physiologist and be examined. She told me my symptoms that I have are all in my head. However, I was being treated for my FM from a pain specialist, neurologist, rhumatologist, and going to a physical therapist until I lost my health insurance because I was no longer fit for duty and was forced to resign from my job so I have been struggling to find a doctor to help me from the wonderful free medical health program that Virgina has to offer.
I hate to say this, but welcome to our world. I think at some time everyone has gone through this. You need a Dr. that specializes in Fibro. Everytime I call for a new Dr. I make sure he has a lot of fibro patients and lots of knowledge on fibro. I've been through so many dear,kimmi. My heart goes out to you. Killing your self is not the way to solve it. that would bring on many more problems especially for your child. You are wrapped up in how you are hurting physically and mentally right now, but don't forget the feelings of your family. I thought of this many times also, my dear. "they'de be better off without me". But, they won't. They would have guilt the rest of their lives and wonder what they should have done to save you. And on behalf of God, He doesn't want you to do this. He has a plan for you and you really don't want to mess up His plans!!! Take something for depression and if that doen't work, try something else until you get a handle on your depression. Then you will be able to think about what you want to do about these Dr;s. Pray for a Dr.to come into your life that will not only be knowledgabe but will be understanding and empathetic.
Good look Kimmi and many blessings to you. You are worth it!!!!! Blossom2512
I was first diagnosed with Fibromyalgia in 1996...but it really wasn't that bad at that time and I just brushed it off. It did explain my fatigue and pain issues, but I was young and I was going to fight this. Well, in 2002 I was involved in a near death accident (I hit a guard rail head on at 60 mph) This was when my problems really began. I had a doctor that did treat my condition but then left the practice. I eventually found a doctor that I really liked and we really got a good doctor patinet relationship...I began seeing her in 2003 and until this year I had seen this doctor a few times a year and of course when I was in attack. This week I scheduled an appointment with her and when I arrived at the appointment they wouldnt see me they didn't take my insurance. I was willing to pay cash for the visit and they still wouldn't see me. I have GREAT insurance so I don't know what there issue was anyways. I was forced to find another doctor which is next to impossible to find a doctor that will treat fibromyaligia. I found one and I think I really like her. She has new ideas to help me which I would be so grateful for. I just had a gastric bypass surgery and have already lost 80 pounds in the past 3 months so I am more active, but that can cause me to overdo things and send me into an attack.
I've had this disease for many years now myself, and I know what you all are speaking of. My only additional comment to all of this is that I believe that the non-treatment of chronic pain is a modern holocaust. The only job of the medical profession is to reduce or eliminate pain. They do not do this as a result of pernicious laws restricting effective drugs or other treatments. This has to end, there has to be a revolution in thinking here.
I am just in the saddest awe to see how many people are in the same mess I am in. It really is sad. I am a 32 year old female. I have had this since childhood. I was told it was growing pains back when and have been checked for arthritis, RLS, etc. I'm sure you all know the years of false diagnosis. Utter was a few years ago that I was diagnosed with fibromyalgia. At first, I thought...Yea! The newest disorder to be diagnosed with....having no faith that it was what I had anymore than growing pains was accurate. However, after years of research and reading others stories, these strangers are describing my life perfectly, so at last I finally know what is wrong with me. I also have IBS and insomnia. Then this past January, my situation worsened when i lost my Dr. Get this! My husband and I along with my 2 children have been using this Dr. for 7 YEARS. I took Tramadol and lortab daily for years along with other meds like Klonopin and blood pressure meds. My Dr. Started going to school and only took appointments before lunch. The latest appointment I could get was 11am and you had to book it a month in advance. Mornings and nights are my worst time and I missed an appointment twice in the last year because I woke up in such a mess, I could not make myself get out of bed to go. Then with no warning, I got 3 letters certified mail. One for me...one for my husband and one addressed to the parents of my children saying that we had been "non compliant " and could no longer be patients. I could not believe it. I thought I had a decent Dr. I called to ask what we had done thinking it had to be a mistake. I was givrm a list of 10+ reasons that are considered non compliant....mostly drug use issues but we don't use anything except what the Dr. Prescribed. We don't even smoke or drink....ever! Nothing bad at all! Try to find a new Dr. That treats chronic pain....None treat chronic pain in new patients!!! NONE!!! So what do we do? I even tred a Dr. Group that talks on the news about fibromyalgia. I drove an hour and a half to little Rock for this Dr. Just to get told when I was there that she treats fibromyalgia patients but never with narcotics...only with herbal medicine. I know my teeth hit the floor. If herbal meds worked, I would use them. I don't like the idea of killing my liver with narcotics, but nothing else helps. Believe me, I have tried EVERYTHING! !! massage, chiropractor, vitamin therapy and every pill u can think of...rx or OTC. Even a few old wives remedies. The drug abusers of the world habeas ruined everything. I also tried a pain clinic that i drove an hour to Batesville, AR and was treated so rudely by that Dr. I don't know how she keeps patients. Actually, I do know....we are so desperate for pain relief that we have to suck it up and they can treat us anyway they want because it is the only way to get any help....that is IF you find a Dr. That will even treat you. I have been in a mess for months....try loosing all your meds cold turkey after years of taking them. It is not fun! And i certainly understand every statement made here about the lack of care from a Dr. What happened to "First, Do no harm" They must have changed it to " First, Do nothing!" good luck to u all!
I know exactly how you feel!!I am now going through a similar problem!My Family Doctor of 30 years passed away last year and he placed a doctor in his practice to take care of his patients well guess what I went to the doctors appointment yesterday and he now tells me..Well now after this visit he will no longer be giving me pain meds!!!!!!I fought for years against going on pain meds with my family doctor we tried them all before i finally gave in and started on perks.I do NOT abuse them i take 4 a day and like you sometimes i need an extra especially with all the snow we have had this year!My Family doctor and i had tried for many years to get my pain under control and now that it is and he is gone this new doctor i think does not believe in FMS He is rude talks down to me like i am second class I do NOT like living with having to take meds but it was a last resort and yet this new doctor doesn't even take the time to read my file and see the years i suffered in pain and took nothing at all!!!!I finally had gotten to a point in my life that i do not spend my day in bed crying and now it will all go back to a point that saw me quit a good job in the automotive industry ,constant pain and thoughts of suicide!!I give up!!!