Almost 2 years ago I developed symptoms relating to rheumatoid arthritis. Over the last months these symptoms have become significantly worse. My doctors cannot find the source of the problem and say that it isn't arthritis. I have had CAT scans, MRI scans, seen rheumatologists, neurologists, physiotherapists, more blood tests than I'd care to mention. In fact I don't think I have any blood left. Now I have just been told there is nothing anyone can do. There must be a reason for me needing to take 150mg of Oxycontin per day, 2400mg Brufen Retard, Temazapam and anti depressants. Even with all of these I still have a lot of pain, which is still unbearable most of the time. I have been told have a form of Fybromyalgia, but still there is nothing anyone can do.
I cannot do anything strenuous without spending time afterwards either sitting or sleeping. I did physio 3 times a week which was fine, but when I stopped the pain still came back worse than ever. The pain comes when I have stopped whatever it is I was doing, but is not as bad while I do anything that might involve physical bodily activity. If I could continueously work or be active without a break perhaps it would be better, but that is physically impossible. I haven't had 8 hours continueous sleep since I don't know when. Four hours is about the most I get unless I take more anti depressants, which turn me into a zombie.
The pain is all over my body except my chest. I have swollen hands, arms, legs and feet. It is like having flu but 100 times worse.
Can anyone please help me?