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Platelet Gal MRI abnormal findings for fibro?
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Platelet Gal MRI abnormal findings for fibro?

Hi Platelet Gal

Just wondering, if you might elaborate on what type of abnormal MRI findings
have been found in people with fibromyalshia.

I have been dx's with fibro and MS       very courious.          thanks Warkitten2008
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Hi WarKitten,

I haven't seen any research or could find anything about abnormal MRI findings in patients who have fibromyalgia. I suspect the reason for this is because there hasn't been enough research on fibromyalgia (my opinion). That is why I will often try to remind people to get involved and contribute to these non-profit agencies (such as the Whittemore Peterson Institute or The Institute of Molecular Medicine). If you can't contribute financially, consider joining some non-profit groups, such as the CFIDS Association of America.  When you become a member, that organization has more political power in Washington.

Since you have MS, that would explain the abnormal MRI. However, I can tell you that if you have overlapping CFS symptoms (which many fibromyalgia patients do), then that could also explain an abnormal MRI finding. I haven't seen the research yet, but I suspect that fibromyalgia patients could also have abnormal MRI findings. I have also seen several posters here who were diagnosed with fibromyalgia, but seem to have more fatigue than pain.... I think they have CFS.

MRI Scan --- "Half have abnormal MRI scans" --- Dr. Paul Cheney

source: http://www.ncf-net.org/conference/CheneyTestimony.htm


"Cranial MRI will show small T2 weighted high intensity lesions in 80% of cases" ---- Dr. Charles Lapp


source: http://www.cfstreatment.info/for_your_doctor.htm

Here is another link to a medical review that supposedly discusses the differences in MRI findings between CFS and MS. Membership is free. I signed up to a be member, but haven't received my e-mail confirmation yet.

http://arjournals.annualreviews.org/doi/abs/10.1146/annurev.med.49.1.1



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Have you ever come upon anyone before who has had the dx of Fibro with MS?  I think this is the first time i've heard of this and it is quite curious in nature.
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PlateletGal

Thank you so much for your reply, I am going to check out the links
you gave me.

VaBreeze,  I have come across several people on the MS fourm that have been
Dx's with fibro and MS.

In my case I started having problems 20 years ago, and they dx's me with fibro.
it was not till last year that they found MS. (so im wondering if the fibro dx was a
big mistake all those years ago)
Altho the ruemy didnt take the fibro dx away the neuro just added MS. So frustrating.

Thanks again                  Warkitten
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Thank you for your resonse.  I didn't realize that was happening.  This is why there is a belief that the two may somehow be connected.  Begin with fibro and end with a dx of MS.  I don't believe it was a mistake, rather they likely didn't see the symptoms as being related to MS as far as severity and then obtaining an MRI to see the lesions.  Both of these illnesses are so very complex.  I'm so sorry to hear about your dx, but I do believe it is better to know what is taking place within our own bodies, than to not know and be fearful.

Please take care of yourself Warkitten.  We will be keeping you in prayer.
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Hi VaBreeze:

Yes this is happening all over the place,  there are those that have been dx's
with MS first then Fibro later.  Its so crazy.
And also, As far as my MS goes yes it does cause alot of pain.  I think it is different
for each individual as far a pain goes.  It can also depend alot on where a lesion is
located in the brain as to what part of the body may be affected.
and also it can affect me some days more than others.  which is better than the times
when it affects me for weeks at a time.
As far as the fibro issue im having problems with the tendons near the joints, hips
elbows, fingers hands, ect.
Not to mention 2 back surgeries from DDD.     its been a crazy few years lol
anyway I just wanted to make mention of a few of the things above and introduce myself
abit better.
Thanks again for your replys               Warkitten2008
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620923_tn?1405964489
Just wanted to add, that I was dx'd with chiari and also have fibro.....so I too have an abnormal MRI.


"selma"
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Oh my Warkitten2008.  You've really had a hard time lately.  I'm so happy to meet you and welcome you to the community.  There was a time when fibro would be made as the first dx, but the thinking then was that this was the calm 'before' the storm.  Once another dx was made, the fibro was dropped.  Time changes everything as they move along in the research made about this illness.

Hi selma.  Nice to see you today. How are you doing and what is the latest news regarding your health and doc. visits?  I'm continuing to keep you in my prayers and hope all is well.
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My thought is that the MS is causing secondary fibro symptoms.  In primary fibro testing is usually normal.  Did you have a full work up for MS when the fibro started?  If not, then I would think possibly that the MS was missed.
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Well Patsy that is a very good question you ask about the work up for MS way back
in the beginning.
The answer is no, I did not get a complete work up  back then. (not like I got last year).
My primay back then sent me to a ruemy and a neuro, he actually thought I had MS
by some of the symptoms I had been experiecing. but the neuro did a very quick exam
and no testing of any sort. he sent me back to my primary doc with a clean bill of health.
My primary still insisted he thought MS, but you know 20 to 25 years ago what did I
know about this stuff. so I never questioned it, after that. Mainly because the ruemy
had several appointments with me and finally dx'd me with fibro and mixed connective
tissue disease.  needless to say I didnt have internet back then, and there wasnt much
info in the librarys back then.  So,  I guess I made it this far with a good attitude
because back then they just said its nothing thats going to shorten my life span
and we can treat the pain with meds.  Then things kept getting worse and worse and well, you all know the drill.    You may have a good point about the MS causing secondary fibro symptoms, I have been trying hard to piece this together with my docs.
Im so greatful for this website and all it has to offer.  I have learned so much here and
it gives me relief to be able to educate myself on these things now.


Oh had I known then what I know now, I probably could have been in alot better
shape than I am now.  All in all tho I am getting around with out aid of any sort, I can
still drive and am still independant.    It just takes me forever to get things done
as I have to rest inbetween everthhing so much.

Hi Selma nice to meet you,  Hummm Iv heard of Chiari but cant remember what it is,
I will have to look it up.
Its hard to keep up with all the different fourms for all the overlapping syndromes.

Thanks all for your replys            Warkitten2008
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You will probably never really know.  MS can be a slowly progressing disease for many people with symptoms but no true loss of function.  I'm not sure if MRI's were even available 25 years ago.  I had my first one in 1987.
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HI VaBreeze- so far I am hanging in....waiting!!


Warkitten2008- chiari  malformation is a congenital condition when the foramen magnum is mis shapened. The brain is overcrowded and is forced down the opening where the spinal cord and spinal column attach to the brain stem. The part of the brain that gets forced down are called tonsils.....most drs gage the sevarity of the condition by the lenght of the herniation( how long the tonsils hang below the foramen magnum)
The herniation can cause the tonsils to put pressure on the spinal cord and the nerves and cause all types of neuro issues.Even without a herniation this condition can cause just as much pain and symptoms of a larger herniation.The biggest problem is the overcrowding can cause a lack of flow of the CSF.
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How did they diagnose you ? Did they do an LP or are they diagnosing your MS symptoms based off the MRI results alone ? I was reading in Dr. David A. Jernigan's new book, "Beating Lyme Disease" about a woman he saw who was misdiagnosed with MS. One of her legs was paralyzed and she other numerous symptoms. It turned out that she had LYME disease instead.

Many people with autoimmune conditions and these syndromes are being misdiagnosed.
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P.S. ~ It took me a while to find the links but Lida Mattman, Ph.D., who is the author of Cell Wall Deficient Forms and a Nobel Prize Nominee, has presented evidence of how MS is a spirochetal disease !

According to the article:

"Mattman is confident that it is only a matter of time before her research will be given credibility. In explaining why current testing for Lyme disease is unreliable, Mattman referred to the blood test using immuno-fluorescence assay (IFA). Here, she explains, the lab is looking for the antibody. It won't always be detected, because the spirochete can "masquerade" in other forms that delude the immune response."


If I had MS... knowing what I know now about cell wall deficient bacteria.... I would speak to this woman !



sources:

http://www.lymebook.com/cell-wall-deficient-forms-mattman
http://www.personalconsult.com/articles/lymeandms.html
http://www.ctlymedisease.org/bio.htm
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