Aa
SI TURED,,,,,
Hi All,
Got alotta issues. Doc is sending me for more tests. I have been diagnosed with Fibro&CFS. CFS was diagnosed first, then shaking down the left side of my body, then Fibro, then positive ANA, then I had a seizure 3 months ago. So now I am on a lot of medication, mainly Klonopin, Elavil, Nuerontin, & Baclofen. All of which is making me drowsier then I was before the medication. But it is working for the pain. What do you do when all your medication is making you so tired you can't even think anymore? Is there something out there that will help with medication drowsiness?? Is there anything that helps with regualar Fibro/CFS drowsiness? I need something to stay awake, I have a 15mo old to take care of... HELP
Got alotta issues. Doc is sending me for more tests. I have been diagnosed with Fibro&CFS. CFS was diagnosed first, then shaking down the left side of my body, then Fibro, then positive ANA, then I had a seizure 3 months ago. So now I am on a lot of medication, mainly Klonopin, Elavil, Nuerontin, & Baclofen. All of which is making me drowsier then I was before the medication. But it is working for the pain. What do you do when all your medication is making you so tired you can't even think anymore? Is there something out there that will help with medication drowsiness?? Is there anything that helps with regualar Fibro/CFS drowsiness? I need something to stay awake, I have a 15mo old to take care of... HELP
Hi. I'm so sorry you are so tired. Is your baby sleeping through the night now? I hope so. I have Fibro, and do have tired spells during flares. A while ago, I spent a month in bed trying different meds that made me sleepy. I have 4 kids, 15 to 8 years, and that didn't work, so now I take Welbutrin for irritability, Buspar for anxiety, And Norflex, a muscle relaxer, at night and Ibuprofen and Tylenol which doesn't work well for pain, as I'm sure you know. I have heard some take Green Tea for energy. I can't take caffiene.
What may be helpful is what helped me. I had Doc identify which meds were making me sleepy. I choose to drop them. I've got busy kids, so. . . I had to. I began taking Vitamin B stress complex in capsule form daily in the morning. Tablets aren't absorbed as well. B is absolutely key for energy. Do you take a multi vitamin? I just take mine after lunch, in the afternoon. Then, if you eat the way a nutritionist told me to eat to have energy for a good month, you'll know if diet will work for you. It did for me.
The idea is high fiber, low fat, low refined sugars. This is the diet that keeps you from being exhausted! Buy a book about or download and print a list of Low Glycemic Index foods. Many are whole foods, easy to prepare. For example, the perfect breakfast is a sliced apple with peanut or almond butter. A lunch that will ward off afternoon sleepiness is salad with canned albacore tuna or leftover grilled chicken, or oatmeal with fruit. As long as it is high in fiber, low in fat, and has just a little protien -- That is the type of food that will energize you. For this to really work, you have to give up most sugar, even honey drops my blood sugar and I crash. Complex carbs like baked potato, whole wheat pasta, and bread are okay in small portions. Any fat that is hard at room temp is off limits. You can use stevia powder or liquid for sweetener (find this at health sections of stores or go to a health food store), and olive oil, flax oil, or coconut oil for fats. If you choose to, taking good fats is really important: vitamin E, or just eat lots of sesame seeds and pumpkin seeds that are rich in vit E, and omega 3 & flax comes in gel, borage oil and primrose oil are excellent for the body AND your mood. Any or all these are wonderful to take. I know it sounds hard, but it's actually easy. Stay away from processed foods like Mac N Cheese, etc. Wash a peice of fruit, or peel a cucumber or carrot instead when you are too tired to cook. I remember being so tired that chewing a corrot sounded like work. If that's the case, blend your veggies till smooth and drink 'em. I know it sounds weird, but an incredibly energizing drink is this: I take enough fresh spinach packed in to fill blender 1/2 way. Buy packages of frozen strawberries, or use fresh, and plop 7 or 8 in there with water. Blend it up super well. This can be diluted and drunk in your water, or you can just chug 1/2 c now and then. keeps well in the fridge for a week- just stir it up. I felt so good on this, and lost 20 pounds drinking this drink, and eating this diet. Lemon water is very good for you too. Drink lots of water. Eating out, you just choose from the smart menu choices they have for dieters. If you do this for a month, and don't cheat too much, you'll probably feel better.
If you can make yourself, exercise just a little. Energy begets energy. Ask women who exercise in mornings, they'll tell you they have more energy than before they didn't. One exercise you CAN do everyday for sure is warm up for 3-10 minutes, however long you last (with time, you'll probably be able to do longer if you do it daily), marching, playing with your baby, dancing- whatever. Then just hold several stretches for 1 minute each, and in 7 to 15 minutes you're done. That is a good way to start out if you are just too exhausted to walk the baby or work out.
I will tell you I do put up with some neck, shoulder, and back pain all the time, but it's bad only during flare ups, and MUCH better when I exercise. The pain I deal with does make me depressed at times, but at least I can function for the kiddies.
Hope it helps. When you are a young mom, you just seem to get used to being exhausted, but when meds enter the picture it is so hard. Have your doc see if you can adjust that soon, and test you for anemia if he hasn't. Low iron can wipe you out completely. Let me know if any of this is even possible for you to try. Good luck.
What may be helpful is what helped me. I had Doc identify which meds were making me sleepy. I choose to drop them. I've got busy kids, so. . . I had to. I began taking Vitamin B stress complex in capsule form daily in the morning. Tablets aren't absorbed as well. B is absolutely key for energy. Do you take a multi vitamin? I just take mine after lunch, in the afternoon. Then, if you eat the way a nutritionist told me to eat to have energy for a good month, you'll know if diet will work for you. It did for me.
The idea is high fiber, low fat, low refined sugars. This is the diet that keeps you from being exhausted! Buy a book about or download and print a list of Low Glycemic Index foods. Many are whole foods, easy to prepare. For example, the perfect breakfast is a sliced apple with peanut or almond butter. A lunch that will ward off afternoon sleepiness is salad with canned albacore tuna or leftover grilled chicken, or oatmeal with fruit. As long as it is high in fiber, low in fat, and has just a little protien -- That is the type of food that will energize you. For this to really work, you have to give up most sugar, even honey drops my blood sugar and I crash. Complex carbs like baked potato, whole wheat pasta, and bread are okay in small portions. Any fat that is hard at room temp is off limits. You can use stevia powder or liquid for sweetener (find this at health sections of stores or go to a health food store), and olive oil, flax oil, or coconut oil for fats. If you choose to, taking good fats is really important: vitamin E, or just eat lots of sesame seeds and pumpkin seeds that are rich in vit E, and omega 3 & flax comes in gel, borage oil and primrose oil are excellent for the body AND your mood. Any or all these are wonderful to take. I know it sounds hard, but it's actually easy. Stay away from processed foods like Mac N Cheese, etc. Wash a peice of fruit, or peel a cucumber or carrot instead when you are too tired to cook. I remember being so tired that chewing a corrot sounded like work. If that's the case, blend your veggies till smooth and drink 'em. I know it sounds weird, but an incredibly energizing drink is this: I take enough fresh spinach packed in to fill blender 1/2 way. Buy packages of frozen strawberries, or use fresh, and plop 7 or 8 in there with water. Blend it up super well. This can be diluted and drunk in your water, or you can just chug 1/2 c now and then. keeps well in the fridge for a week- just stir it up. I felt so good on this, and lost 20 pounds drinking this drink, and eating this diet. Lemon water is very good for you too. Drink lots of water. Eating out, you just choose from the smart menu choices they have for dieters. If you do this for a month, and don't cheat too much, you'll probably feel better.
If you can make yourself, exercise just a little. Energy begets energy. Ask women who exercise in mornings, they'll tell you they have more energy than before they didn't. One exercise you CAN do everyday for sure is warm up for 3-10 minutes, however long you last (with time, you'll probably be able to do longer if you do it daily), marching, playing with your baby, dancing- whatever. Then just hold several stretches for 1 minute each, and in 7 to 15 minutes you're done. That is a good way to start out if you are just too exhausted to walk the baby or work out.
I will tell you I do put up with some neck, shoulder, and back pain all the time, but it's bad only during flare ups, and MUCH better when I exercise. The pain I deal with does make me depressed at times, but at least I can function for the kiddies.
Hope it helps. When you are a young mom, you just seem to get used to being exhausted, but when meds enter the picture it is so hard. Have your doc see if you can adjust that soon, and test you for anemia if he hasn't. Low iron can wipe you out completely. Let me know if any of this is even possible for you to try. Good luck.
Having to wait 6 months doesn't sound right unless you're waiting to get enough quarters. The social security website has a wealth of information, and there's a number to call. Also, there's an SSDI intro booklet with all the rules spelled out and that's what I'd rely on over anything else. I took a quick look and it says on the website - apply as soon as you're disabled.
I recommend getting the application form and figuring out what you are going to say before starting up the process and quiting work. It can take time to fill it out so might as well take your time before you're pressured. It's a great way to shorten the overall time. There will be a 2nd set of forms to fill out too, after the first application ones, so getting a copy from the support group of what other people have received can be nice. The 2nd set varies and is more of the same, sometimes in more depth, so it's not scary unless you aren't expecting them.
For the meds, I'd stop them all with the help of a doctor (klopin can help with seizures but coming off can cause them) and then adding things back very slowly to see what the minimum doses are that work. If that's too unrealistic or not medically recommended, then play with dosing now with the doctors help. With everything changing all the time for you, you don't know what symptoms you really have at the moment. You can also consider straight pain killer patches instead of these meds (for seizure history your doctors may want to stick with these.) I've known people to go off their meds they've taken for years and discover that underneath it and all the side effects, they were actually now well. You're probably not there yet, but you don't want to medicate for years without knowing what symptoms are left.
Doctors are giving you a lot of diagnoises, but chances are there's one thing going on with you that's causing this array of problems, so don't let the alphabet soup scare you. They way they are using it, it's just different letters for each set of symptoms and test results, all in the autoimmune family.
Something that helps some CFS people with fatigue is NADH. It boosts a part of the powerhouse cycle at the celluar level. It was studied as a CFS herbal medical (for FDA approval) and I don't know why they didn't complete the rather expensive process. Dr. Joseph Bellanti at Georgetown or George Washington Hospital in DC was the researching it (very, very respectable doctor). However, it does have an impact for many people. It takes up to 3 months for it to show. When it kicks in it can be dizzying and overwhelming - it was for me - so I dont' use it. I didn't try to titrate it down. I know someone who had a brain lesion start up while starting it and on ritalin, and no one knew what triggered it, so I'd be very, very careful to stay at low amounts and be patient waiting for it to kick in. (She had a very odd medical profile in general anyway.) I haven't heard of any other problems though and the group I'd learned of it from, almost everyone had tried it. Some of them are still using it years later.
Every single drug you're taking can be tiring by itself, so if you take off or down even one or two you may see a difference.
If you can get an SSDI attorney to talk with you - it's always best to get legal advice early on in these things. (Often with SDDI they don't want to talk to you until you've been denied once.) They may answer if it's better if you graduate downward at work before leaving to prove you tried. If you have LTD that's a poor approach though because THOSE benefits for all eternity are based off the last time period's pay.
It can take a long time to get SSDI, sometimes a couple years. However, the proccess for CFS and FM is much better than it was years ago, and if the forms are filled out well and with a little luck (to get a not terrible reviewer, and most are okay) and with some medical labs to back it up, it can take a couple months to 6 months. It's impossible to know, but you do need to be no working during that time. You can shorten the process by figuring out what tests and doctors appts they are likely to send you to, and do them on your own before you apply, so you don't have to go through it with them. If you have thick folders at a bunch of doctors then you are in good shape that way.
Good luck!
I recommend getting the application form and figuring out what you are going to say before starting up the process and quiting work. It can take time to fill it out so might as well take your time before you're pressured. It's a great way to shorten the overall time. There will be a 2nd set of forms to fill out too, after the first application ones, so getting a copy from the support group of what other people have received can be nice. The 2nd set varies and is more of the same, sometimes in more depth, so it's not scary unless you aren't expecting them.
For the meds, I'd stop them all with the help of a doctor (klopin can help with seizures but coming off can cause them) and then adding things back very slowly to see what the minimum doses are that work. If that's too unrealistic or not medically recommended, then play with dosing now with the doctors help. With everything changing all the time for you, you don't know what symptoms you really have at the moment. You can also consider straight pain killer patches instead of these meds (for seizure history your doctors may want to stick with these.) I've known people to go off their meds they've taken for years and discover that underneath it and all the side effects, they were actually now well. You're probably not there yet, but you don't want to medicate for years without knowing what symptoms are left.
Doctors are giving you a lot of diagnoises, but chances are there's one thing going on with you that's causing this array of problems, so don't let the alphabet soup scare you. They way they are using it, it's just different letters for each set of symptoms and test results, all in the autoimmune family.
Something that helps some CFS people with fatigue is NADH. It boosts a part of the powerhouse cycle at the celluar level. It was studied as a CFS herbal medical (for FDA approval) and I don't know why they didn't complete the rather expensive process. Dr. Joseph Bellanti at Georgetown or George Washington Hospital in DC was the researching it (very, very respectable doctor). However, it does have an impact for many people. It takes up to 3 months for it to show. When it kicks in it can be dizzying and overwhelming - it was for me - so I dont' use it. I didn't try to titrate it down. I know someone who had a brain lesion start up while starting it and on ritalin, and no one knew what triggered it, so I'd be very, very careful to stay at low amounts and be patient waiting for it to kick in. (She had a very odd medical profile in general anyway.) I haven't heard of any other problems though and the group I'd learned of it from, almost everyone had tried it. Some of them are still using it years later.
Every single drug you're taking can be tiring by itself, so if you take off or down even one or two you may see a difference.
If you can get an SSDI attorney to talk with you - it's always best to get legal advice early on in these things. (Often with SDDI they don't want to talk to you until you've been denied once.) They may answer if it's better if you graduate downward at work before leaving to prove you tried. If you have LTD that's a poor approach though because THOSE benefits for all eternity are based off the last time period's pay.
It can take a long time to get SSDI, sometimes a couple years. However, the proccess for CFS and FM is much better than it was years ago, and if the forms are filled out well and with a little luck (to get a not terrible reviewer, and most are okay) and with some medical labs to back it up, it can take a couple months to 6 months. It's impossible to know, but you do need to be no working during that time. You can shorten the process by figuring out what tests and doctors appts they are likely to send you to, and do them on your own before you apply, so you don't have to go through it with them. If you have thick folders at a bunch of doctors then you are in good shape that way.
Good luck!
Thank you so much for the information, I will definately be putting all of it on my grocery list. I haven't gotten a chance to try the green tea yet.
Doc took me off of the Amitriptyline and put me on Cymbalta and OMG is the pain so much worse. I don't know if I need to wait for it to kick in or that I need a higher dose or what. He took me off of the Amitriptyline because it was the only medication he was willing to change at this time. He upped the Neurontin and kept the Klonopin the same. But holy cow can I tell the difference. I don't know whether to just wait to see if the Cymbalta is going to work or go back to the other pill now. But something has to happen.
We can't afford for me to go on disability yet, we are under the impression to file I would have to be off work for 6 months. Last night my team lead offered me time off to get used to my medication, I am tempted to take her up on it, but we can't afford for me not to be working right now.
Kind of like a catch 22. Don't you love it :)
Heather
Doc took me off of the Amitriptyline and put me on Cymbalta and OMG is the pain so much worse. I don't know if I need to wait for it to kick in or that I need a higher dose or what. He took me off of the Amitriptyline because it was the only medication he was willing to change at this time. He upped the Neurontin and kept the Klonopin the same. But holy cow can I tell the difference. I don't know whether to just wait to see if the Cymbalta is going to work or go back to the other pill now. But something has to happen.
We can't afford for me to go on disability yet, we are under the impression to file I would have to be off work for 6 months. Last night my team lead offered me time off to get used to my medication, I am tempted to take her up on it, but we can't afford for me not to be working right now.
Kind of like a catch 22. Don't you love it :)
Heather
Thank you so much for the information, I will definately be putting all of it on my grocery list. I haven't gotten a chance to try the green tea yet.
Doc took me off of the Amitriptyline and put me on Cymbalta and OMG is the pain so much worse. I don't know if I need to wait for it to kick in or that I need a higher dose or what. He took me off of the Amitriptyline because it was the only medication he was willing to change at this time. He upped the Neurontin and kept the Klonopin the same. But holy cow can I tell the difference. I don't know whether to just wait to see if the Cymbalta is going to work or go back to the other pill now. But something has to happen.
We can't afford for me to go on disability yet, we are under the impression to file I would have to be off work for 6 months. Last night my team lead offered me time off to get used to my medication, I am tempted to take her up on it, but we can't afford for me not to be working right now.
Kind of like a catch 22. Don't you love it :)
Heather
Doc took me off of the Amitriptyline and put me on Cymbalta and OMG is the pain so much worse. I don't know if I need to wait for it to kick in or that I need a higher dose or what. He took me off of the Amitriptyline because it was the only medication he was willing to change at this time. He upped the Neurontin and kept the Klonopin the same. But holy cow can I tell the difference. I don't know whether to just wait to see if the Cymbalta is going to work or go back to the other pill now. But something has to happen.
We can't afford for me to go on disability yet, we are under the impression to file I would have to be off work for 6 months. Last night my team lead offered me time off to get used to my medication, I am tempted to take her up on it, but we can't afford for me not to be working right now.
Kind of like a catch 22. Don't you love it :)
Heather
Wow! I didn't think of Magnesium! I take it with Calcium every night. Night is when it is best absorbed (Calcium) but I think you could take magnesium any time of day. Calcium and dairy has a sedative effect so take that right before bed.
That is so awesome that you and your hubby walk it out together!!!
I wish my husband would do that. He's a sweetheart in a lot of other ways so no complaints here, but it sounds so fun. Did the green tea work? For exhaustion as severe as yours. . .Check with health food stores. The people there are usually VERY knowledgeable, but I would still research any advice they give you then check with the doc, of course. Maybe there's a supplement or some sort of action you could take that would help you. I believe there are answers and that those who search hard enough will find what will improve life dramatically.
I just looked up a study done by Susan M. Lark, M.D., author of "Chronic Fatigue and Tiredness." She says even a slight iron deficiency can affect your energy level, so you could experiment with lean beef, oyster (I happen to love them, but I love spinach, too) and clams-- steamed up with butter and garlic salt- they are divine. With your meat you need some Vit C to maximize absorbsion, so orange juice, broccoli, kiwi- tons of lemon juice on those cracker crumbed oysters. . .I actually take black strap molasses. Put it in oatmeal, or whole wheat pancakes, waffles.
The second thing she says, "In studies where Magnesium and Potassium were taken together, 90% saw improvements in their energy levels. I recommend btween 100 and 200 milligrams of each mineral for up to six months to see if they alleviate fatigue.. It's safe for anyone in good health, but those with kidney or heart problems should consult their doctor first." She also refers to a study of those with low Vit C intake, that they all were fatigued and that 4,000 milligrams a day gave them more stamina, though it warns that much may cause diarrhea in some. Then you cut back slightly on the dose till it goes away. The iron plugs, the C loosens-- HEY! Maybe we got it balanced out here. LOL!
This was all taken from my Prevention's book, "Healing With Vitamins."
So it says 12-15 mg Iron, 100-200 mg Potassium and Magnesium and Vit C 4,000 a day. I'm no doctor, and I would check with yours, but it is worth a shot. I'm so sorry you are so tired. Keep trying things and don't get discouraged or impatient with yourself. You are doing so well with what you've had on your plate. There is hope.
That is so awesome that you and your hubby walk it out together!!!
I wish my husband would do that. He's a sweetheart in a lot of other ways so no complaints here, but it sounds so fun. Did the green tea work? For exhaustion as severe as yours. . .Check with health food stores. The people there are usually VERY knowledgeable, but I would still research any advice they give you then check with the doc, of course. Maybe there's a supplement or some sort of action you could take that would help you. I believe there are answers and that those who search hard enough will find what will improve life dramatically.
I just looked up a study done by Susan M. Lark, M.D., author of "Chronic Fatigue and Tiredness." She says even a slight iron deficiency can affect your energy level, so you could experiment with lean beef, oyster (I happen to love them, but I love spinach, too) and clams-- steamed up with butter and garlic salt- they are divine. With your meat you need some Vit C to maximize absorbsion, so orange juice, broccoli, kiwi- tons of lemon juice on those cracker crumbed oysters. . .I actually take black strap molasses. Put it in oatmeal, or whole wheat pancakes, waffles.
The second thing she says, "In studies where Magnesium and Potassium were taken together, 90% saw improvements in their energy levels. I recommend btween 100 and 200 milligrams of each mineral for up to six months to see if they alleviate fatigue.. It's safe for anyone in good health, but those with kidney or heart problems should consult their doctor first." She also refers to a study of those with low Vit C intake, that they all were fatigued and that 4,000 milligrams a day gave them more stamina, though it warns that much may cause diarrhea in some. Then you cut back slightly on the dose till it goes away. The iron plugs, the C loosens-- HEY! Maybe we got it balanced out here. LOL!
This was all taken from my Prevention's book, "Healing With Vitamins."
So it says 12-15 mg Iron, 100-200 mg Potassium and Magnesium and Vit C 4,000 a day. I'm no doctor, and I would check with yours, but it is worth a shot. I'm so sorry you are so tired. Keep trying things and don't get discouraged or impatient with yourself. You are doing so well with what you've had on your plate. There is hope.
I found that good quality magnesium supplements helped with energy greatly. Try www.ndshealthcare.com and look at the Magnesium Plus supplement.
Hi,
I also have a difficult time with sleeping. With the change in the weather this weekend, I was sleeping at least 15 hours a day and my back was in pure pain. I am also on some of the meds that you are on and I am sleepy all the time. I am on disability, so I don't work. I know that you have to work due to your family situation. Have you ever thought about applying for disability. I don't know if you can as you are working.
I am personally trying to wean myself down on my medicine, but I am still very tired. The worst part is that because the pain is so bad and the percocet has stopped working, my dr is wanting to put me on a morphine patch. I go to my pain management dr today to see what he says.
Here I go rambling LOL
Good Luck and I hope you find something that will keep you from being so tired.
Barb
I also have a difficult time with sleeping. With the change in the weather this weekend, I was sleeping at least 15 hours a day and my back was in pure pain. I am also on some of the meds that you are on and I am sleepy all the time. I am on disability, so I don't work. I know that you have to work due to your family situation. Have you ever thought about applying for disability. I don't know if you can as you are working.
I am personally trying to wean myself down on my medicine, but I am still very tired. The worst part is that because the pain is so bad and the percocet has stopped working, my dr is wanting to put me on a morphine patch. I go to my pain management dr today to see what he says.
Here I go rambling LOL
Good Luck and I hope you find something that will keep you from being so tired.
Barb
OOPS, missed some....
Haley was sleeping great through the night until I started a new job that is night shift. The job lets me sit rather then stand for 8 hrs... not much better really cause most days it makes my whole body ache from sitting so long.
She has started to even back out with her sleeping schedule. It has taken better part of 2 months to get her into a normal sleeping pattern again. I work from 3:30p-12:00a and the babysitter puts her to bed at 9:30p so she wakes up around 7:30a-8:30a. Then when I wake hubby up around 11 am I get another hour - hour and a half nap before going to work. It's complicated sleeping situation that the medication is only making worse.
Heather
Haley was sleeping great through the night until I started a new job that is night shift. The job lets me sit rather then stand for 8 hrs... not much better really cause most days it makes my whole body ache from sitting so long.
She has started to even back out with her sleeping schedule. It has taken better part of 2 months to get her into a normal sleeping pattern again. I work from 3:30p-12:00a and the babysitter puts her to bed at 9:30p so she wakes up around 7:30a-8:30a. Then when I wake hubby up around 11 am I get another hour - hour and a half nap before going to work. It's complicated sleeping situation that the medication is only making worse.
Heather
Searching, thanks for answering back so soon,
Doc checks me regularly for B12, Iron, Calcium and a whole lot more because I had Gastric Bypass almost 3 years ago. About 8 months after having surgery I started having unbelievable fatigue and they found I had Epstien Barr Virus, very high titer at that. I was told at that time I would probably be dealing with fatigue for the rest of my life. I was told I had Chronic Fatigue Syndrome that it could last 6-8 months and to just deal with it. I was in bed all day long and the only thing the doc said was there was nothing they could do to help. So when the fatigue hit again, I didn't think anything of it until I had the unbelievable pain that went from my neck down my back and into my legs.
I got pregnant, Jan 2006 and Haley was born Oct 2006 after that I was sleeping everytime Haley was sleeping and then some.
May 2007, I started shaking on the left side of my body, was in the hospital for 4 days while they tried to figure it out. It still hasn't been figured out at this point and I am scheduled to see a neurologist for the seizure I had 3 months ago.
In August I was going through another fatigue spell, sleeping all the time and aching all over, that's when the doctor started doing tests. He gave me a blanket diagnosis of Fibromyalgia, he tested for Rheumatiod Arthritis and other things and he did the ANA test. He said because the other tests came back negative he expected this one to come back negative too. Well it didn't. So now I have to see a Rheumatologist too.
I am going to have to tell the one doctor I have, who prescribes the Klonopin and Neurontin for the shaking and seizures that I am not getting used to the medication. I see him tomorrow. The other doctor I don't see until the end of the month, after I see the Neurologist and the Rheumatologist. One thing I can say about the medication is that it is working, but with the drug head and exhaustion.... which one do you choose?
I do exercise the best I can at this point. I found this walking at home video that works great and I have hubby doing it with me. I love it and it doesn't hurt too bad. As for the diet I really stick with the Gastric Bypass diet. I mean, why have the surgery if you aren't going to stick with the diet. It is low carb way of eating.. high protien as protien is the hardest to digest, then vegies, then fruit, then bread.
I will definately check into the green tea. Anything at this point, I took 2 naps today and it's not like I layed down to do so. I was sitting watching Haley plan and Bam, I was out. I get so tired of feeling this way. I am still working and trying my best to take care of the household. There has to be a way to stay awake.
Anymore tips are greatly appreciated!!!!
Heather
Doc checks me regularly for B12, Iron, Calcium and a whole lot more because I had Gastric Bypass almost 3 years ago. About 8 months after having surgery I started having unbelievable fatigue and they found I had Epstien Barr Virus, very high titer at that. I was told at that time I would probably be dealing with fatigue for the rest of my life. I was told I had Chronic Fatigue Syndrome that it could last 6-8 months and to just deal with it. I was in bed all day long and the only thing the doc said was there was nothing they could do to help. So when the fatigue hit again, I didn't think anything of it until I had the unbelievable pain that went from my neck down my back and into my legs.
I got pregnant, Jan 2006 and Haley was born Oct 2006 after that I was sleeping everytime Haley was sleeping and then some.
May 2007, I started shaking on the left side of my body, was in the hospital for 4 days while they tried to figure it out. It still hasn't been figured out at this point and I am scheduled to see a neurologist for the seizure I had 3 months ago.
In August I was going through another fatigue spell, sleeping all the time and aching all over, that's when the doctor started doing tests. He gave me a blanket diagnosis of Fibromyalgia, he tested for Rheumatiod Arthritis and other things and he did the ANA test. He said because the other tests came back negative he expected this one to come back negative too. Well it didn't. So now I have to see a Rheumatologist too.
I am going to have to tell the one doctor I have, who prescribes the Klonopin and Neurontin for the shaking and seizures that I am not getting used to the medication. I see him tomorrow. The other doctor I don't see until the end of the month, after I see the Neurologist and the Rheumatologist. One thing I can say about the medication is that it is working, but with the drug head and exhaustion.... which one do you choose?
I do exercise the best I can at this point. I found this walking at home video that works great and I have hubby doing it with me. I love it and it doesn't hurt too bad. As for the diet I really stick with the Gastric Bypass diet. I mean, why have the surgery if you aren't going to stick with the diet. It is low carb way of eating.. high protien as protien is the hardest to digest, then vegies, then fruit, then bread.
I will definately check into the green tea. Anything at this point, I took 2 naps today and it's not like I layed down to do so. I was sitting watching Haley plan and Bam, I was out. I get so tired of feeling this way. I am still working and trying my best to take care of the household. There has to be a way to stay awake.
Anymore tips are greatly appreciated!!!!
Heather
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