Is your daughter any better now? I recently saw one of those mystery diagnosis shows on tv where a man had similar symptoms for many years. He was finally diagnosed with a metabolic disorder, I cannot remember which one and there are many rare ones. Check metabolic disorders for symptom matches.
i feel for you, my 12 year old is dealing with much of the same. especially the tiredness has your daughter been looked at for arthritis esp.PA. I have PA and my feet and ankles swell 3 times the size, I can understand the pain, its incapacitating, no one can understand that its not just a matter of taking pills, it will overshadow your life when there is no relief.. I hope you find answers
My 10 year old is having alot of pain, everyday. She says that nothing helps. She also gets realy cold . Like I do cold to the bone. I have fibromyalgia. I have heard of 14 years old but not until now 10 years old having this. I thought she may. I to have mold, my towlet leaks. which the mold is on the wall black I keep it cleaned up. I am getting it fixed right away now. I should have already. It is trouble that kids have to have this. God Bless you & your child.
Here's another document on the topic. Of course I believe CFS isn't the only illness that can follow a toxic or mold exposure. A toxicologist I know agrees with me... he's seen many people who have had unexplained or inflammatory conditions after an exposure.
1: Sci Total Environ. 2001 Apr 10;270(1-3):27-31. Links
Chronic fatigue syndrome following a toxic exposure. Racciatti D, Vecchiet J,
Ceccomancini A, Ricci F, Pizzigallo E.Department of Infectious Diseases, G.
D'Annunzio University, Chieti Scalo, Italy.
I'm sorry to hear what your daughter is going through... and all of you, for that matter. In my opinion, molds or other toxics can cause an illness. And there is some evidence to back this up. I pulled this from my community:
Q: Have you seen evidence in some patients that CFS can be caused by exposure to things such as mold, or other environmental toxins?
Dr. Bell: Yes, mold and environmental toxins can definitely cause or initiate ME/CFS. Somehow toxins affect the cytokines in a way similar to the classic mononucleosis infection to set off the illness
link:
http://www.immunesupport.com/library/showarticle.cfm?id=8474&T=CFIDS_FM&B1=EM110707F