I am so sensitive to cold that if any cold water hits my body, or my sheets are cold, or a cool breeze, ANYTHING COLD, puts my body into a shocking pain. Its like when you eat icecream when your teeth are sensitive to cold, only its through my whole body. Does anyone else have a problem similiar to this?
I was hit with Raynauds (cold sensitivity) this past year. I don't seem quite as bad as you, but my nose gets very painful when it is even a little cold. Also, my toes turn blue. Is your issue new? I had a hard time staying warm before the Raynauds but not like this.
I have this happen in my hands...instant pain with cold. Making hamburger patties or mixing meatloaf is so brutal. My feet and also very cold sensitive and are very painful even tho my hubby says they dont feel very cold to the touch. Luckily I don't have it all over my body...hopefully it won't get that way. Have you talked to the dr about it?? Wonder what they say about it.
Thank you both for making me feel like I am not crazy. My Drs don't know what to think, except that it might be due to severe fibrmyalgia, which I have had before they even knew what it was. It didn't get really bad until after my first spine surgery, however my neurosurgen says he doesn't think it has anything to do with that. I can really relate to both of you, but they have never said anything about Raynauds syndrome. Maybe I should ask about that. Do you live in the cold weather? I dread winter coming so bad, as I live in Minnesota.
interesting. because it sounds so nerve-related but dr says no.
i have cfs and mild fibro, and i notice that once i'd developed cfs and fibro, i was hypersensitive to a lot of things - noise, light, wind, some foods. also had a patch of skin across my ribs that had this cold sensitivity you speak of - talk about painful! - dr didn't say much, probably cause i wasn't complaining enough - it only hurt in winter when my cold hand or sheets or water touched it - so i would just make sure it didn't get near anything cold!
good luck with it. sorry hearing it's so painful. i wonder if you can eliminate a food that might be causing some of the problem, or supplement minerals, vit b, c, d, magnesium
Yes...I do. I take a lose dose, extended release morphine twice a day...and vicoden for breakthru pain. We are in the process of getting to a full dose of Savella in the hopes that it will help with some of the pain.
I take it by your name that you are sober from something. It may be none of my business, but I will tell you that I have been sober from alcohol for almost 3 years, as I was using to help my pain. I do have to be careful that I don't take advantage of my pain meds. I am also on Lyrica & cymbalta & celebrex. Not sure how much they work, but am sure they help somewhat. What is Savella?
I live in St. Cloud. We are about 1.5 hours north of the cities...or so...up Hwy 94.
Savella is a new fibro med...similar I believe to Cymbalta. They say it works like the anit-depressants on pain signals...but is not one. I have tried Neurontin and Amytriptiline too but too many side effects with no results. Savella has had some pretty wicked side effects too but they seem to settle down after a week or two...then flare up a bit for me at dose changes. I think maybe it may help some. It is hard to tell. I don't seem to have full days of feeling good but parts of some days seem like they may be a bit better. Do you run into alot of side effects when they combine the 3 meds for you? They are talking about adding Wellbutrin to mine but not sure till next week what he will do. Congrats on your 3 years. Yes I am sober and very proud of it. I am a recovering meth addict...will have 6 years in Jan. I was devestated when I had to take pain meds for the first time after a surgery. I really beat myself up but finally have come to terms with the fact that I have to take care of myself. I am one to scrimp and save cuz tomorrow might be so much worse so in reality I should probably take more than I do. Pills have never been my thing so I am in a much better place with allowing myself some relief without feeling like I have compromised my sobriety.
First of all I would like to say that I have really enjoyed our chats. It is so helpful to talk to someone else who understands what it feels like to battle the chronic pain, & also the battle of addiction. I go to weekly AA meetings, but they have no idea about the pain thing. I go to St. Cloud weekly, as my father is in the VA hospital there. I lived there as a child & had all my children at the hospital, & doctored at the Women & Childrens Clinic. St Cloud is only about 40 miles from ML.
Congrats to you also on your sobriety. What a wonderful accomplishment! What day in January? I am Jan. 5th. Wow, I am always amazed by God's love & the places that he leads me . I truly believe this was no coincidence that our paths have met,as we have so much in common, right down to the same sobriety month.
I too have tried Amitryptiline & Gabapentin, (is that neurontin?). Anyway, they did nothing for me. I also was terrified to start taking narcotics after my spine surgeries, but like you, needed to take care of myself. Now its the only thing that is getting me through the day & allowing me so much quality time with my grandchildren. My Dr says she will switch me to morphine if I want to, but what I am doing right now is making life tolerable. Even the horrible cold pain gets some relief with the percocet & oxy. My oxycontin is 40 mg & slow released like your morphine. I don't want to get hooked but will not go backwards either. I am not sure how many side effects I have encountered, cuz when you already feel so rough, its hard to notice. But once I tried to go off my Lyrica cold turkey for a day, because I was going to a pain clinic the next day & I wanted to feel the pain to better explain it to them. What a dope I was! I never made it to the appt cuz I was so sick with sweating & chills together & vomiting, etc. Dr pretty much chewed my butt off & then told me how dangerous it was.
I know that isnt a side effect, but it sure was horrible. What kind of side effects do you experience with a dose change or new med? In one of our earlier chats you mentioned cold pain when touching hamburger. Do you also have problems with arthritis & if so, who is your rheumatologist? I go to the cities & I hate driving there. Would much rather go to St Cloud, as I have always known my way around there pretty good.
Hi Debbilee...my date is Jan 20th...and I too enjoy meeting someone with things in common. It ***** for both of us that it has to be pain and past addiction...but hey...it is nice to have people in your world that understand what you are going thru. That is wierd that you come to my town every week. Maybe we should try to meet up somewhere for a nice warm cup of coffee if you have time.
Oh wow I bet you did have a rough time when stopping Lyrica cold turkey. That had to be rough. I went to the pain clinic and had the same idea about pain meds. No...they need to see what I really feel like. They were doing range of motion and everything. All I did was make myself suffer...as they cannot see my pain. The same test were repeated a few weeks later and I said oh this is not fair...I have taken my pain meds...the test won't be accurate. Oh yeah...they were....I couldn't move any further with them...I just thought I could. So now I be sure to take them when I need too. lol.
Yes, Gabapentin in the generic for Nuerontin. I am hopeful that maybe this Savella is helping. I have been so frustrated lately thinking I hurt worse...or is this how I have felt all along and just notice more while paying close attention to the pain. I was getting really upset. Well...I didn't realize I had other things going on. The dr says how can you not tell you are in pain...she could tell...my kidneys and bladder are inflamed enough that she could tell. I told her that with the other 32 spots that I hurt/ache it is kind hard to tell the difference. So...as a bonus I have yeast and urinary tract infections right now. Not fun. The upside to all of it that this awful pain that had settled into my lower back, hips, and abdominal area will get better after the dose of meds. I do have some arthritis but not that they treat overall. Some spots with injections. I went to see Dr. Anne Wolfe for my fibro evaluation but she said I had to follow up with my primary. Too bad too cuz she really understood and was sooo nice. I am sure I have missed some things but this is what really causes my fingers to go cold is using the computer so I am going to go for now. I sent my email in a private message. Look forward to hearing from you.
Hahaha...funny that they edited my post with *****...lol...it wasn't even a swear word but ok. I figured I would try to finish answering your questions. The dosage increase of Savella causes dizzy, nausous, and hot flashes for sure. There has been some wierd tingling too but maybe that is a good sign that it is getting to the nerves?? Not really sure what to think about that but will talk to the dr about it on Wed. I just did my last increase yesterday so now am at full dose. Now if I can get the infections under control I will have a better idea of whether it works for me. I am hopeful. I don't blame you for not wanting to go to the cities. I only go there on rare occasions. Usually only to go to airport and Monster Jam...love the big trucks and powerful engines. Yes...I am a hick. I wish I lived in the country. St. Cloud seems huge to me...lol. Hope you are having a good day.
I too have sensitivity to wind. It's impossible to get people (myself included sometimes!) to understand about the pain and super sensitivity. It is so helpful to read all posts from people suffering from the same issues.
Because of all these issues I have become more and more isolated an depressed, especially this last year with my Raynaud's- (I'm 51 and live alone in NY) I am seriously thinking of moving someplace warm and dry. Any advice on this would be helpful.
yes.... when i am exposed to very cold temps, I turn beet red, break out in huge HIVES and itch and burn like the devil! Fingers & toes and nose stay cold, get numb and hurt, frequently, as well....
doc finally said i'm allergic to cold!
HAH! imagine that!?
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