You're most welcome. I wish you the best of luck and keep in touch.
Hi. I was given antibiotics at the time but it's truly been so long I don't remember what the meds were. I am going to tell the rheumatologist about this and take it from there. Thank you very much for your time and advice!
Thanks for the tips! I am definitely going to bring all of this up at my appointment. And I will definitely check out the lyme forum. thanks so much!
Bartonella is a common co-infection in lyme disease. The tick passes lyme disease in addition to Bartonella. You can also get it from a cat scratch. Were you treated for this?
If they did not treat the bacterial infection, yes it can be causing problems. Even if they gave you antibiotics, if it did not eradicate the bacteria it would remain in your body. Lyme is not easily treated unless it is caught in the early stages. Patsy10 has some good information about this in the Lyme Forum and she is knowledgable about this disease.
Research has shown that these illnesses are likely caused by bacterial/viral infections. The rheumatologist should run tests to rule out any other medical problem that might be causing like symptoms, prior to dx'ing you with FMS. I would definitely have him retest you for Lyme Disease. Also, if you look into our Health Pages at some of the articles regarding Dr. Garth Nicolson, you can learn more about what his research has shown.
Hope all goes well at your appt. and please keep in touch.
When I was 18 I got tested for Lyme disease and was told I had a mild form of it called bartonella. (not sure if I spelled that right) apparently thats when you get bitten by a tick that already bit a cat! (I know super weird!) But that doctor told me it wouldn't cause me any severe problems. Do you think it's possible he was wrong and that is the problem?
Thank you for answering me. I am going to make an appointment with my primary care doctor, and then I'm told from there I will get a referral to a rheumatologist to look into fibromyalgia. We'll see what happens, any answer at this point would be great, no matter what it is. Just to know. Thanks again!
Have you been tested for lyme disease?
Since this has been going on for so long and evidently your doctors have not mentioned Fibromyalgia to you, I would talk with my doctor about this. Just from what you've said it is possible that you have fibro, but sounds like you have other health issues going on. As you've probably already read in your research of fibro, they are still researching the cause(s) of fibro and there is not yet any one med they can give for it. What works for some does not work for others. Please talk with your doctor and I hope you have one who truly is understanding about your pain and will work with you to find something that helps. My heart goes out to you; pain is no fun!
Joyce