spinchter of oddi dysfunction HELP

[KayP1971]

is anyone out there?  I have my gallbladder and have spinchter of oddi dysfunction just diagnosed.  I have had this pain in my URQ since I was a child ..... but now it has come and will not go away.  Please talk to me .... Kay

[KayP1971]

I have not have the ERCP that you mentioned done.  So far, I have not found anyone who knows much about it.  I am on nifedipine SR 30 mg twice daily - 1 hour before meals.  Sometimes it works very well and sometimes not.  Today I took a baby aspirin and it actually seemed to help the pain in between,.  Usually in the morning I feel good but then by afternoon I begin to hurt  and it increases.  I cannot tell that what triggers it other than stress -- which I have been under more than my share of the last few years -- cancer, loss of mom and then dad six months later, dtr's husband leaves the the same week dad dies --- oh yeah, bell's palsy in there ..... No suggestions from doc yet -- I will see my primary care doc this coming Monday.  It was my oncologist that diagnosed the problem (after an emergency room visit because of severe unrelenting pain) -- the good part was that it is not pancreatic cancer.  .... the oncologist ordered the HIDA scan -- and then gave me the diagnosis.  

Any suggestions to suggest to my primary care doc?  The last time I saw him after my diagnosis he told me that if they take the gall bladder out then I will not have as much pain --- obviously he had not read up on this diagnosis -- which I plan to update him when I see him.  

Thanks for responding!!!!!!!!!
Kay

[CalGal]

Kay, did they do and ERCP with manometry for diagnosis? Is the doc you're working with knowledgeable about SOD? What medications have you tried? What suggestions has the doc made?